{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,8,2]],"date-time":"2025-08-02T16:38:56Z","timestamp":1754152736846,"version":"3.41.2"},"reference-count":19,"publisher":"SAGE Publications","issue":"3","license":[{"start":{"date-parts":[[2024,8,1]],"date-time":"2024-08-01T00:00:00Z","timestamp":1722470400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"crossref","award":["2R25CA142519"],"award-info":[{"award-number":["2R25CA142519"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Clinical Practice in Pediatric Psychology"],"published-print":{"date-parts":[[2024,8]]},"abstract":"<jats:sec>\n            <jats:title>Objective:<\/jats:title>\n            <jats:p>Families or loved ones of adolescents and young adults (AYA) with a poor cancer prognosis who preserved fertility and did not survive treatment may choose to pursue posthumous-assisted reproduction (PAR; i.e., use of preserved reproductive material for future family-building attempts). Decisions about PAR may be occurring in the context of grief and bereavement, which is associated with ethical and psychological considerations because grief can complicate a person\u2019s capacity for informed decision-making.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Method:<\/jats:title>\n            <jats:p>Through the use of a five-step ethical decision-making model, the American Psychological Association\u2019s Ethical Principles of Psychologists and Code of Conduct, and a blended case example, the ethical and psychological considerations for families of AYA with poor prognosis who pursue PAR are discussed with an ethical analysis.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Results:<\/jats:title>\n            <jats:p>Ethical and psychological considerations included assessing the potential for harm to involved parties, navigating PAR decision-making with responsibility and honesty, examining the accessibility of PAR, and considering informed consent\/assent and autonomy.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Conclusions:<\/jats:title>\n            <jats:p>Clinical recommendations for supporting families and loved ones exploring PAR in the context of grief were discussed, with considerations for improving clinicians\u2019 comfort and competence with PAR, incorporating grief into informed consent conversations, standardizing conversations about PAR, and promoting an interdisciplinary approach to PAR-related decisions.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Implications for Impact Statement<\/jats:title>\n            <jats:p>Families or partners who have lost their adolescent or young adult loved one to cancer may wish to pursue posthumous-assisted reproduction (PAR; i.e., using the deceased\u2019s reproductive material for future family-building attempts). Families and partners may be experiencing grief when making decisions about PAR, which can raise ethical and psychological concerns. Pediatric psychologists are uniquely positioned to support surviving loved ones pursuing PAR in the context of grief to educate on the ways that grief can complicate decision-making processes and offer mental health support, while also respecting the autonomy of decision-makers.<\/jats:p>\n          <\/jats:sec>","DOI":"10.1037\/cpp0000502","type":"journal-article","created":{"date-parts":[[2024,3,14]],"date-time":"2024-03-14T10:09:58Z","timestamp":1710410998000},"page":"358-365","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Ethical and Psychological Considerations for Posthumous-Assisted Reproduction for Adolescents and Young Adults With Poor Cancer Prognosis in the Context of Grief"],"prefix":"10.1177","volume":"12","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4800-1884","authenticated-orcid":false,"given":"Benjamin","family":"Parchem","sequence":"first","affiliation":[{"name":"Institute for Sexual and Gender Health, Department of Family Medicine and Community Health, University of Minnesota Medical School"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6730-5613","authenticated-orcid":false,"given":"G. Nic","family":"Rider","sequence":"additional","affiliation":[{"name":"Institute for Sexual and Gender Health, Department of Family Medicine and Community Health, University of Minnesota Medical School"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4208-9889","authenticated-orcid":false,"given":"Gwendolyn P.","family":"Quinn","sequence":"additional","affiliation":[{"name":"Department of Obstetrics and Gynecology, New York University Grossman School of Medicine"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2024,8]]},"reference":[{"key":"e_1_3_1_2_1","unstructured":"American Psychological Association (APA). (2017). Ethical principles of psychologists and code of conduct. https:\/\/www.apa.org\/ethics\/code"},{"key":"e_1_3_1_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/cam4.5345"},{"key":"e_1_3_1_4_1","doi-asserted-by":"publisher","DOI":"10.1136\/medethics-2022-108204"},{"key":"e_1_3_1_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0272-7358(00)00062-3"},{"key":"e_1_3_1_6_1","doi-asserted-by":"publisher","unstructured":"Bower B. & Quinn G. P. (2012). Fertility preservation in cancer patients: Ethical considerations. In Quinn G. P. & Vadaparampil S. T. (Eds.) Reproductive health and cancer in adolescents and young adults (Vol. 732 pp. 187\u2013196). Springer Netherlands. 10.1007\/978-94-007-2492-1_15","DOI":"10.1007\/978-94-007-2492-1_15"},{"key":"e_1_3_1_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2018.04.002"},{"key":"e_1_3_1_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.iccn.2018.07.006"},{"key":"e_1_3_1_9_1","doi-asserted-by":"publisher","DOI":"10.1037\/0000036-000"},{"key":"e_1_3_1_10_1","doi-asserted-by":"publisher","DOI":"10.1080\/13625187.2016.1203892"},{"key":"e_1_3_1_11_1","doi-asserted-by":"publisher","unstructured":"Madeira J. L. (2020). Counselling prior to medically assisted reproduction. In Allahbadia G. N. Ata B. Lindheim S. R. Woodward B. J. & Bhagavath B. (Eds.) Textbook of assisted reproduction (pp. 605\u2013610). Springer Singapore. 10.1007\/978-981-15-2377-9_67","DOI":"10.1007\/978-981-15-2377-9_67"},{"key":"e_1_3_1_12_1","volume-title":"Guidelines for the storage, use, and disposal of sperm from a deceased man","author":"National Ethics Committee on Assisted Human Reproduction","year":"2000","unstructured":"National Ethics Committee on Assisted Human Reproduction. (2000). Guidelines for the storage, use, and disposal of sperm from a deceased man. Ministry of Health."},{"key":"e_1_3_1_13_1","unstructured":"National Health and Medical Research Council. (2017). Ethical guidelines on the use of assisted reproductive technology in clinical practice and research."},{"key":"e_1_3_1_14_1","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2018.78.1914"},{"key":"e_1_3_1_15_1","doi-asserted-by":"publisher","DOI":"10.1093\/humrep\/del287"},{"key":"e_1_3_1_16_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10677-019-10012-y"},{"key":"e_1_3_1_17_1","doi-asserted-by":"publisher","DOI":"10.2190\/OM.61.4.b"},{"key":"e_1_3_1_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.xfre.2020.06.005"},{"key":"e_1_3_1_19_1","unstructured":"US Department of Health and Human Services National Institutes of Health National Cancer Institute & LIVESTRONG Young Adult Alliance. (2006). Closing the gap: Research and care imperatives for adolescents and young adults with cancer (NIH Publication No. 06-6067; Report for Adolescent and Young Adult Oncology Progress Review Group). https:\/\/www.cancer.gov\/types\/aya\/research\/ayao-august-2006.pdf"},{"key":"e_1_3_1_20_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2016.05.013"}],"container-title":["Clinical Practice in Pediatric Psychology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1037\/cpp0000502","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1037\/cpp0000502","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1037\/cpp0000502","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,7,22]],"date-time":"2025-07-22T11:54:47Z","timestamp":1753185287000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1037\/cpp0000502"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,8]]},"references-count":19,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2024,8]]}},"alternative-id":["10.1037\/cpp0000502"],"URL":"https:\/\/doi.org\/10.1037\/cpp0000502","relation":{},"ISSN":["2169-4826","2169-4834"],"issn-type":[{"type":"print","value":"2169-4826"},{"type":"electronic","value":"2169-4834"}],"subject":[],"published":{"date-parts":[[2024,8]]}}}