{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,16]],"date-time":"2026-10-16T02:44:45Z","timestamp":1792118685787,"version":"4.4.0"},"reference-count":44,"publisher":"Elsevier BV","issue":"4","license":[{"start":{"date-parts":[[2012,4,1]],"date-time":"2012-04-01T00:00:00Z","timestamp":1333238400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2012,4,1]],"date-time":"2012-04-01T00:00:00Z","timestamp":1333238400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2022,1,19]],"date-time":"2022-01-19T00:00:00Z","timestamp":1642550400000},"content-version":"vor","delay-in-days":3580,"URL":"http:\/\/www.elsevier.com\/open-access\/userlicense\/1.0\/"}],"content-domain":{"domain":["gimjournal.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Genetics in Medicine"],"published-print":{"date-parts":[[2012,4]]},"DOI":"10.1038\/gim.2011.62","type":"journal-article","created":{"date-parts":[[2012,1,19]],"date-time":"2012-01-19T11:52:48Z","timestamp":1326973968000},"page":"490-496","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":49,"title":["Offering aggregate results to participants in genomic research: opportunities and challenges"],"prefix":"10.1016","volume":"14","author":[{"given":"Laura M.","family":"Beskow","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Wylie","family":"Burke","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stephanie M.","family":"Fullerton","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Richard R.","family":"Sharp","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1038\/gim.2011.62_bb0010","author":"Haga"},{"key":"10.1038\/gim.2011.62_bb0015","author":"Dressler"},{"key":"10.1038\/gim.2011.62_bb0020","author":"Bredenoord"},{"key":"10.1038\/gim.2011.62_bb0025","author":"National Heart, Lung, and Blood Institute working group"},{"key":"10.1038\/gim.2011.62_bb0030","first-page":"191","article-title":"OECD guidelines on human biobanks and genetic research databases","volume":"17","author":"Organisation for Economic Cooperation and Development","year":"2010","journal-title":"Eur J Health Law"},{"key":"10.1038\/gim.2011.62_bb0035","unstructured":"Eiseman E, Bloom G, Brower J, Clancy N, Olmsted SS. Case Studies of Existing Human Tissue Repositories. \u201cBest Practices\u201d for a Biospecimen Resource for the Genomic and Proteomic Era. RAND Corporation: Santa Monica, CA, 2003."},{"key":"10.1038\/gim.2011.62_bb0040","author":"Beskow"},{"key":"10.1038\/gim.2011.62_bb0045","author":"Meulenkamp"},{"key":"10.1038\/gim.2011.62_bb0050","unstructured":"US Department of Veterans Affairs. Sharing Aggregate Research Results With Participants. http:\/\/www.ethics.va.gov\/docs\/infocus\/InFocus_20090330_Sharing_aggregate_research_results.pdf (2009)."},{"key":"10.1038\/gim.2011.62_bb0055","author":"Fernandez"},{"key":"10.1038\/gim.2011.62_bb0060","author":"Knoppers"},{"key":"10.1038\/gim.2011.62_bb0065","author":"Wolf"},{"key":"10.1038\/gim.2011.62_bb0070","author":"Parker"},{"key":"10.1038\/gim.2011.62_bb0075","author":"Miller"},{"key":"10.1038\/gim.2011.62_bb0080","author":"Goering"},{"key":"10.1038\/gim.2011.62_bb0085","unstructured":"King NMP, Henderson GE, Stein J. Beyond Regulations: Ethics in Human Subjects Research, 1st edn. University of North Carolina Press: Chapel Hill, NC, 1999."},{"key":"10.1038\/gim.2011.62_bb0090","author":"Israel"},{"key":"10.1038\/gim.2011.62_bb0095","author":"Chen"},{"key":"10.1038\/gim.2011.62_bb0100","author":"Beskow"},{"key":"10.1038\/gim.2011.62_bb0105","author":"International HapMap Consortium"},{"key":"10.1038\/gim.2011.62_bb0110","author":"Marshfield Clinic PMRP Community Advisory Group"},{"key":"10.1038\/gim.2011.62_bb0115","author":"Trinidad"},{"key":"10.1038\/gim.2011.62_bb0120","author":"McGuire"},{"key":"10.1038\/gim.2011.62_bb0125","author":"Caulfield"},{"key":"10.1038\/gim.2011.62_bb0130","author":"Greely"},{"key":"10.1038\/gim.2011.62_bb0135","author":"Mascalzoni"},{"key":"10.1038\/gim.2011.62_bb0140","author":"Elger"},{"key":"10.1038\/gim.2011.62_bb0145","author":"O\u2019Doherty"},{"key":"10.1038\/gim.2011.62_bb0150","author":"Trinidad"},{"key":"10.1038\/gim.2011.62_bb0155","author":"Ludman"},{"key":"10.1038\/gim.2011.62_bb0160","author":"Lemke"},{"key":"10.1038\/gim.2011.62_bb0165","author":"Contopoulos-Ioannidis"},{"key":"10.1038\/gim.2011.62_bb0170","author":"Ioannidis"},{"key":"10.1038\/gim.2011.62_bb0175","author":"Holland"},{"key":"10.1038\/gim.2011.62_bb0180","author":"Yarborough"},{"key":"10.1038\/gim.2011.62_bb0185","author":"Bunin"},{"key":"10.1038\/gim.2011.62_bb0190","author":"Dixon-Woods"},{"key":"10.1038\/gim.2011.62_bb0195","author":"Beskow"},{"key":"10.1038\/gim.2011.62_bb0200","unstructured":"National Bioethics Advisory Commission. Research Involving Human Biological Materials: Ethical Issues and Policy Guidance, vol. 1. US Government Printing Office: Rockville, MD, 1999."},{"key":"10.1038\/gim.2011.62_bb0205","author":"NHLBI Working Group"},{"key":"10.1038\/gim.2011.62_bb0210","author":"Beskow"},{"key":"10.1038\/gim.2011.62_bb0215","author":"Partridge"},{"key":"10.1038\/gim.2011.62_bb0220","author":"Kreuter"},{"key":"10.1038\/gim.2011.62_bb0225","first-page":"1,6","article-title":"Rethinking respect for persons enrolled in research","volume":"9","author":"Parker","year":"2006","journal-title":"ASBH Exchange"}],"container-title":["Genetics in Medicine"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/www.nature.com\/articles\/gim201162.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/www.nature.com\/articles\/gim201162","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1098360021042015?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1098360021042015?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/www.nature.com\/articles\/gim201162.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,22]],"date-time":"2025-10-22T01:43:18Z","timestamp":1761097398000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1098360021042015"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2012,4]]},"references-count":44,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2012,4]]}},"alternative-id":["S1098360021042015"],"URL":"https:\/\/doi.org\/10.1038\/gim.2011.62","relation":{},"ISSN":["1098-3600"],"issn-type":[{"value":"1098-3600","type":"print"}],"subject":[],"published":{"date-parts":[[2012,4]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Offering aggregate results to participants in genomic research: opportunities and challenges","name":"articletitle","label":"Article Title"},{"value":"Genetics in Medicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1038\/gim.2011.62","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2012, The Author(s), under exclusive licence to the American College of Medical Genetics and Genomics","name":"copyright","label":"Copyright"}]}}