{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,22]],"date-time":"2025-10-22T21:53:17Z","timestamp":1761169997294,"version":"build-2065373602"},"reference-count":40,"publisher":"Elsevier BV","issue":"6","license":[{"start":{"date-parts":[[2013,6,1]],"date-time":"2013-06-01T00:00:00Z","timestamp":1370044800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2013,6,1]],"date-time":"2013-06-01T00:00:00Z","timestamp":1370044800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2022,1,19]],"date-time":"2022-01-19T00:00:00Z","timestamp":1642550400000},"content-version":"vor","delay-in-days":3154,"URL":"http:\/\/www.elsevier.com\/open-access\/userlicense\/1.0\/"}],"content-domain":{"domain":["gimjournal.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Genetics in Medicine"],"published-print":{"date-parts":[[2013,6]]},"DOI":"10.1038\/gim.2012.149","type":"journal-article","created":{"date-parts":[[2012,12,6]],"date-time":"2012-12-06T11:22:20Z","timestamp":1354792940000},"page":"466-472","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":9,"title":["Developing a comprehensive, effective patient-friendly website to enhance decision making in predictive testing for Huntington disease"],"prefix":"10.1016","volume":"15","author":[{"given":"Alice K.","family":"Hawkins Virani","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"S.M.","family":"Creighton","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M.R.","family":"Hayden","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"author":"MacDonald","key":"10.1038\/gim.2012.149_bb0010"},{"author":"Kremer","key":"10.1038\/gim.2012.149_bb0015"},{"author":"Wiggins","key":"10.1038\/gim.2012.149_bb0020"},{"author":"Harper","key":"10.1038\/gim.2012.149_bb0025"},{"author":"Creighton","key":"10.1038\/gim.2012.149_bb0030"},{"author":"Tassicker","key":"10.1038\/gim.2012.149_bb0035"},{"author":"Bloch","key":"10.1038\/gim.2012.149_bb0040"},{"author":"Wiggins","key":"10.1038\/gim.2012.149_bb0045"},{"author":"Benjamin","key":"10.1038\/gim.2012.149_bb0050"},{"key":"10.1038\/gim.2012.149_bb0055","unstructured":"Macleod R, Tibben A, Frontali M, et al. Recommendations for the predictive genetic test in Huntington\u2019s disease. Clin Genet 2012;9999."},{"author":"Hayden","key":"10.1038\/gim.2012.149_bb0060"},{"author":"Dufrasne","key":"10.1038\/gim.2012.149_bb0065"},{"author":"Decruyenaere","key":"10.1038\/gim.2012.149_bb0070"},{"author":"Meiser","key":"10.1038\/gim.2012.149_bb0075"},{"author":"Etchegary","key":"10.1038\/gim.2012.149_bb0080"},{"author":"Taylor","key":"10.1038\/gim.2012.149_bb0085"},{"author":"Elwyn","key":"10.1038\/gim.2012.149_bb0090"},{"author":"Green","key":"10.1038\/gim.2012.149_bb0095"},{"key":"10.1038\/gim.2012.149_bb0100","doi-asserted-by":"crossref","unstructured":"Holtzman N, Watson M. Promoting Safe and Effective Genetic Testing in the United States: Final Report of the Task Force on Genetic Testing. Johns Hopkins University Press: Baltimore, MD, 1998.","DOI":"10.56021\/9780801859526"},{"key":"10.1038\/gim.2012.149_bb0105","doi-asserted-by":"crossref","unstructured":"Edwards J, Greenberg J, Sahhar M. Global awakening in genetic counseling. Nature Precedingshttp:\/\/hdl.handle.net\/10101\/npre.2008.1574.1. 2008.","DOI":"10.1038\/npre.2008.1574.1"},{"key":"10.1038\/gim.2012.149_bb0110","doi-asserted-by":"crossref","unstructured":"Hawkins AK, Creighton S, Hayden MR. When access is an issue: exploring barriers to predictive testing for Huntington disease in British Columbia, Canada. Eur J Hum Genet 2012; e-pub ahead of print 11 July 2012.","DOI":"10.1038\/ejhg.2012.147"},{"author":"O\u2019Connor","key":"10.1038\/gim.2012.149_bb0115"},{"author":"Cook","key":"10.1038\/gim.2012.149_bb0120"},{"author":"Green","key":"10.1038\/gim.2012.149_bb0125"},{"author":"Wang","key":"10.1038\/gim.2012.149_bb0130"},{"author":"Green","key":"10.1038\/gim.2012.149_bb0135"},{"author":"Ziebland","key":"10.1038\/gim.2012.149_bb0140"},{"key":"10.1038\/gim.2012.149_bb0145","unstructured":"Trees AR, Koenig Kellas J, Roche MI. Family narratives. In: Gaff CL, Bylund CL, (eds). Family Communication About Genetics: Theory and Practice. Oxford University Press: New York, 2010."},{"key":"10.1038\/gim.2012.149_bb0150","doi-asserted-by":"crossref","unstructured":"Corbin J, Strauss A. Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory. Sage Publications: Thousand Oaks, CA, 2008.","DOI":"10.4135\/9781452230153"},{"author":"Glaser","key":"10.1038\/gim.2012.149_bb0155"},{"author":"Boeije","key":"10.1038\/gim.2012.149_bb0160"},{"key":"10.1038\/gim.2012.149_bb0165","unstructured":"Creswell J. Research Design: Qualitative, Quantitative, and Mixed Method Approaches, 2nd edn. Sage Publications: Thousand Oaks, CA, 2003."},{"key":"10.1038\/gim.2012.149_bb0170","unstructured":"Cox S. Personal Perspectives on Genetic Testing for Huntington Disease. Huntington Society of Canada: Kitchener, Canada, 1999."},{"author":"Stout","key":"10.1038\/gim.2012.149_bb0175"},{"author":"Lipkus","key":"10.1038\/gim.2012.149_bb0180"},{"author":"Lea","key":"10.1038\/gim.2012.149_bb0185"},{"author":"Rozmovits","key":"10.1038\/gim.2012.149_bb0190"},{"key":"10.1038\/gim.2012.149_bb0195","unstructured":"Butow P, Fowler J, Ziebland S. Section 5: Using personal stories. In: O\u2019Connor A, Llewelyn-Thomas H, Stacey D. (eds). IPDAS International Collaboration Document, International Patient Decision Aids Standards (IPDAS) Collaboration http:\/\/www.ipdas.ohri.ca\/IPDAS_Background.pdf. 2005:24\u201327."},{"author":"Entwistle","key":"10.1038\/gim.2012.149_bb0200"},{"author":"Winterbottom","key":"10.1038\/gim.2012.149_bb0205"}],"container-title":["Genetics in Medicine"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/www.nature.com\/articles\/gim2012149.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/www.nature.com\/articles\/gim2012149","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1098360021027684?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1098360021027684?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/www.nature.com\/articles\/gim2012149.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,22]],"date-time":"2025-10-22T01:43:25Z","timestamp":1761097405000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1098360021027684"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2013,6]]},"references-count":40,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2013,6]]}},"alternative-id":["S1098360021027684"],"URL":"https:\/\/doi.org\/10.1038\/gim.2012.149","relation":{},"ISSN":["1098-3600"],"issn-type":[{"type":"print","value":"1098-3600"}],"subject":[],"published":{"date-parts":[[2013,6]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Developing a comprehensive, effective patient-friendly website to enhance decision making in predictive testing for Huntington disease","name":"articletitle","label":"Article Title"},{"value":"Genetics in Medicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1038\/gim.2012.149","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2013, The Author(s), under exclusive licence to the American College of Medical Genetics and Genomics","name":"copyright","label":"Copyright"}]}}