{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,9]],"date-time":"2025-11-09T03:41:26Z","timestamp":1762659686156,"version":"3.37.3"},"reference-count":27,"publisher":"Springer Science and Business Media LLC","issue":"7","license":[{"start":{"date-parts":[[2018,7,1]],"date-time":"2018-07-01T00:00:00Z","timestamp":1530403200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/www.springer.com\/tdm"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["J Perinatol"],"published-print":{"date-parts":[[2018,7]]},"DOI":"10.1038\/s41372-018-0162-3","type":"journal-article","created":{"date-parts":[[2018,7,2]],"date-time":"2018-07-02T16:06:46Z","timestamp":1530547606000},"page":"781-784","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Dispute between physicians and family on surgical treatment for an infant with ultra short gut syndrome: the perspective of an Ethics Committee"],"prefix":"10.1038","volume":"38","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7701-9354","authenticated-orcid":false,"given":"Brian M.","family":"Cummings","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"John J.","family":"Paris","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jason N.","family":"Batten","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michael P.","family":"Moreland","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2018,7,4]]},"reference":[{"key":"162_CR1","doi-asserted-by":"publisher","first-page":"2393","DOI":"10.1056\/NEJMms1603756","volume":"374","author":"D Jones","year":"2016","unstructured":"Jones D, Grady C, Lederer S. \u201cEthics and clinical research\u201d\u2014the 50th anniversary of Beecher\u2019s bombshell. N Engl J Med. 2016;374:2393\u20138.","journal-title":"N Engl J Med"},{"key":"162_CR2","doi-asserted-by":"publisher","first-page":"2701","DOI":"10.1001\/jama.283.20.2701","volume":"283","author":"E Emanuel","year":"2000","unstructured":"Emanuel E, Wendler D, Grady C. What makes clinical research ethical? JAMA. 2000;283:2701\u201311.","journal-title":"JAMA"},{"key":"162_CR3","doi-asserted-by":"crossref","unstructured":"Jonas H Philosophical reflections on experimenting with human subjects. In Jonas H ed. Philosophical essays. Chicago Press 1980;105\u201331.","DOI":"10.1007\/978-1-4615-6561-1_16"},{"key":"162_CR4","doi-asserted-by":"publisher","first-page":"15","DOI":"10.1002\/hast.772","volume":"5","author":"A Caplan","year":"2017","unstructured":"Caplan A, McBride, Folkers K. Charlie Gard and the limits of parental authority. Hastings Cent Rep. 2017;5:15\u20136.","journal-title":"Hastings Cent Rep"},{"key":"162_CR5","doi-asserted-by":"publisher","first-page":"1436","DOI":"10.1056\/NEJM199711133372006","volume":"337","author":"E Shuster","year":"1997","unstructured":"Shuster E. Fifty years later: the significance of the Nuremberg Code. N Engl J Med. 1997;337:1436\u201340.","journal-title":"N Engl J Med"},{"key":"162_CR6","doi-asserted-by":"publisher","first-page":"1483","DOI":"10.1001\/jama.1989.03420100119036","volume":"26","author":"F Moore","year":"1989","unstructured":"Moore F. The desperate case: CARE (cost, applicability, research, ethics). JAMA. 1989;26:1483\u20134.","journal-title":"JAMA"},{"key":"162_CR7","doi-asserted-by":"publisher","first-page":"20","DOI":"10.1016\/j.jpedsurg.2007.09.014","volume":"43","author":"BP Modi","year":"2008","unstructured":"Modi BP, Langer M, Ching YA, Valim C, Waterford SD, Iglesias J, et al. Improved survival in a multidisciplinary short bowel syndrome program. Pediatr Surg. 2008;43:20.","journal-title":"Pediatr Surg"},{"key":"162_CR8","doi-asserted-by":"publisher","first-page":"663","DOI":"10.1001\/jamasurg.2013.4332","volume":"149","author":"EM Fallon","year":"2014","unstructured":"Fallon EM, Mitchell PD, Nehra D, Potemkin AK, O\u2019Loughlin AA, Gura KM, Puder M. Neonates with short bowel syndrome: an optimistic future for parental nutrition independence. JAMA Surg. 2014;149:663\u201370.","journal-title":"JAMA Surg"},{"key":"162_CR9","doi-asserted-by":"publisher","first-page":"723","DOI":"10.1016\/j.jpeds.2012.03.062","volume":"161","author":"RH Squires","year":"2012","unstructured":"Squires RH, Duggan C, Teitelbaum DH, Wales PW, Balint J, Venick R, et al. Natural history of pediatric intestinal failure: initial report from the Pediatric Intestinal Failure Consortium. J Pediatr. 2012;161:723\u20138.","journal-title":"J Pediatr"},{"key":"162_CR10","doi-asserted-by":"publisher","first-page":"29","DOI":"10.1016\/j.jpeds.2015.03.040","volume":"167","author":"F Khan","year":"2015","unstructured":"Khan F, Squires R, Litman H, Balint J, Carter BA, Fisher JG, et al. Predictors of enteral autonomy in children with intestinal failure: a multicenter cohort study. J Pediatr. 2015;167:29\u201334.e1.","journal-title":"J Pediatr"},{"key":"162_CR11","doi-asserted-by":"publisher","first-page":"F551","DOI":"10.1136\/archdischild-2016-311765","volume":"102","author":"A Batra","year":"2017","unstructured":"Batra A, Keys SC, Johnson MJ, Wheeler RA, Beattie RM. Epidemiology, management and outcome of ultrashort bowel syndrome in infancy. Arch Dis Child Fetal Neonatal Ed. 2017;102:F551\u20136.","journal-title":"Arch Dis Child Fetal Neonatal Ed"},{"key":"162_CR12","doi-asserted-by":"publisher","first-page":"629S","DOI":"10.3945\/ajcn.114.103986","volume":"103","author":"P Nandivada","year":"2016","unstructured":"Nandivada P, Fell GL, Gura KM, Puder M. Lipid emulsions in the treatment and prevention of parenteral nutrition-associated liver disease in infants and children. Am J Clin Nutr. 2016;103:629S\u2013634S.","journal-title":"Am J Clin Nutr"},{"key":"162_CR13","doi-asserted-by":"publisher","first-page":"438","DOI":"10.1097\/MPG.0000000000000242","volume":"58","author":"A Diamanti","year":"2014","unstructured":"Diamanti A, Conforti A, Panetta F, Torre G, Candusso M, Bagolan P, et al. Long-term outcome of home parenteral nutrition in patients with ultrashort bowel syndrome. J Pediatr Gastroenterol Nutr. 2014;58:438\u201342.","journal-title":"J Pediatr Gastroenterol Nutr"},{"key":"162_CR14","doi-asserted-by":"publisher","first-page":"e180","DOI":"10.1016\/j.clnesp.2015.03.011","volume":"10","author":"A Hughes","year":"2015","unstructured":"Hughes A, Evans V, Forbes-Penfold D, Koeglmeier J, Hill S. Burden of care at night when living with a child on parenteral nutrition at home. Clin Nutr ESPEN. 2015;10:e180.","journal-title":"Clin Nutr ESPEN"},{"key":"162_CR15","doi-asserted-by":"publisher","first-page":"1645","DOI":"10.1001\/jama.1996.03540200031027","volume":"276","author":"J Tyson","year":"1996","unstructured":"Tyson J, Younes N, Verter J, Wright LL. Viability, morbidity, and resource use among newborns of 501-800\u2009g birth weight. JAMA. 1996;276:1645\u201351.","journal-title":"JAMA"},{"key":"162_CR16","first-page":"469","volume":"13","author":"J Paris","year":"1993","unstructured":"Paris J, Bell A. Guarantee my child will be \u201cnormal\u201d or stop all treatment. J Perinatol. 1993;13:469\u201372.","journal-title":"J Perinatol"},{"key":"162_CR17","doi-asserted-by":"crossref","unstructured":"American Academy of Pediatrics, Committee on Fetus and Newborn, Nonintervention or withdrawal of intensive care for high-risk newborns. Pediatrics 2007;119:401\u20133.","DOI":"10.1542\/peds.2006-3180"},{"key":"162_CR18","doi-asserted-by":"publisher","first-page":"172","DOI":"10.1001\/jama.1974.03230400034027","volume":"229","author":"R McCormick","year":"1974","unstructured":"McCormick R. To save or let die: the dilemma of modern medicine. JAMA. 1974;229:172\u20136.","journal-title":"JAMA"},{"key":"162_CR19","doi-asserted-by":"publisher","first-page":"325","DOI":"10.1007\/BF00489892","volume":"12","author":"J Lynn","year":"1991","unstructured":"Lynn J, DeGraiza D. An outcomes model of medical decision making. Theor Med Bioeth. 1991;12:325\u201343.","journal-title":"Theor Med Bioeth"},{"key":"162_CR20","doi-asserted-by":"crossref","first-page":"1182","DOI":"10.1542\/peds.98.6.1182","volume":"98","author":"W Silverman","year":"1996","unstructured":"Silverman W. Medical decisions: an appeal for reasonableness. Pediatrics. 1996;98:1182\u20134.","journal-title":"Pediatrics"},{"key":"162_CR21","doi-asserted-by":"publisher","first-page":"678","DOI":"10.1097\/SLA.0000000000000714","volume":"261","author":"J Kruser","year":"2015","unstructured":"Kruser J, Pecanac K, Brasel K, Cooper Z, Steffens NM, McKneally MF, et al. And I think we an \u201cfix it\u201d: mental models used in high-risk surgical decision making. Ann Surg. 2015;261:678.","journal-title":"Ann Surg"},{"key":"162_CR22","doi-asserted-by":"publisher","first-page":"677","DOI":"10.1056\/NEJM198803173181105","volume":"318","author":"L Kopleman","year":"1988","unstructured":"Kopleman L, Irons T, Kopleman A. Neonatologists judge the Baby Doe regulations. N Eng J Med. 1988;318:677\u201383.","journal-title":"N Eng J Med"},{"key":"162_CR23","unstructured":"Beauchamp T, Childress J. Principles of Biomedical Ethics 7th ed. Oxford: Oxford University Press, 2013."},{"key":"162_CR24","doi-asserted-by":"crossref","first-page":"134","DOI":"10.1086\/JCE201122205","volume":"22","author":"T Pope","year":"2011","unstructured":"Pope T. The best interest standard: both guide and limit to medical decision making on behalf of incapacitated patients. J Clin Ethics. 2011;22:134\u20138.","journal-title":"J Clin Ethics"},{"key":"162_CR25","doi-asserted-by":"publisher","first-page":"1268","DOI":"10.1038\/jp.2017.138","volume":"37","author":"J Paris","year":"2017","unstructured":"Paris J, Ahluwalia J, Cummings BM, Moreland MP, Wilkinson DJ. The Charlies Gard case: British and American approaches to court resolution of disputes over medical decisions. J Perinatol. 2017;37:1268\u201371.","journal-title":"J Perinatol"},{"key":"162_CR26","doi-asserted-by":"publisher","first-page":"573","DOI":"10.1016\/S0095-5108(18)30229-X","volume":"23","author":"J Paris","year":"1996","unstructured":"Paris J, Schreiber M. Parental discretion in refusal of treatment for newborns. Clin Perinatol. 1996;23:573\u201381.","journal-title":"Clin Perinatol"},{"key":"162_CR27","doi-asserted-by":"crossref","unstructured":"Cranford R, Doudera E. Institutional Ethics Committees and Health Care Decision Making. New Orleans: Health Administration Press, 1984.","DOI":"10.1111\/j.1748-720X.1984.tb01755.x"}],"container-title":["Journal of Perinatology"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/www.nature.com\/articles\/s41372-018-0162-3","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/www.nature.com\/articles\/s41372-018-0162-3.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/www.nature.com\/articles\/s41372-018-0162-3.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,3]],"date-time":"2023-09-03T13:31:38Z","timestamp":1693747898000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.nature.com\/articles\/s41372-018-0162-3"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2018,7]]},"references-count":27,"journal-issue":{"issue":"7","published-print":{"date-parts":[[2018,7]]}},"alternative-id":["162"],"URL":"https:\/\/doi.org\/10.1038\/s41372-018-0162-3","relation":{},"ISSN":["0743-8346","1476-5543"],"issn-type":[{"type":"print","value":"0743-8346"},{"type":"electronic","value":"1476-5543"}],"subject":[],"published":{"date-parts":[[2018,7]]},"assertion":[{"value":"3 May 2018","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"31 May 2018","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"4 July 2018","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Compliance with ethical standards"}},{"value":"The authors declare that they have no conflict of interest.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflict of interest"}}]}}