{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,26]],"date-time":"2026-07-26T06:17:47Z","timestamp":1785046667741,"version":"3.55.0"},"reference-count":27,"publisher":"Springer Science and Business Media LLC","issue":"9","license":[{"start":{"date-parts":[[2025,8,21]],"date-time":"2025-08-21T00:00:00Z","timestamp":1755734400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2025,8,21]],"date-time":"2025-08-21T00:00:00Z","timestamp":1755734400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["J Perinatol"],"published-print":{"date-parts":[[2025,9]]},"abstract":"<jats:title>Abstract<\/jats:title>\n          <jats:sec>\n            <jats:title>Background<\/jats:title>\n            <jats:p>Research on parental understanding following prenatal counseling for congenital heart disease (CHD) is limited. We aimed to evaluate parental knowledge of their fetus\u2019 CHD diagnosis and congruence between physician\u2019s and parent\u2019s assessments of parental understanding.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Methods<\/jats:title>\n            <jats:p>Paired surveys of pediatric cardiologists and parents of fetuses requiring neonatal heart surgery assessed parental knowledge and perceived understanding of diagnosis, treatment and complications. Gwet\u2019s agreement coefficients (GAC) were used to examine congruence.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Results<\/jats:title>\n            <jats:p>There was good congruence between 40 participating parents and cardiologists regarding knowledge of the diagnosis (GAC 0.89), need for neonatal surgery (GAC 0.81), need for further surgeries and lifelong care (GAC 0.66 and 0.65). While cardiologists perceived parents understood risk of mortality and neurodevelopmental outcomes, parental knowledge was poor (GAC \u22120.04 and 0.05, respectively).<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Conclusion<\/jats:title>\n            <jats:p>For many aspects of counseling, parental knowledge is congruent with cardiologist\u2019s perceptions; however, communication gaps exist for knowledge of mortality and other longer-term outcomes.<\/jats:p>\n          <\/jats:sec>","DOI":"10.1038\/s41372-025-02365-3","type":"journal-article","created":{"date-parts":[[2025,8,21]],"date-time":"2025-08-21T05:12:32Z","timestamp":1755753152000},"page":"1207-1212","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Prenatal counseling for heart disease: Perception of understanding and communication gaps"],"prefix":"10.1038","volume":"45","author":[{"ORCID":"https:\/\/orcid.org\/0009-0005-7594-1731","authenticated-orcid":false,"given":"Katherine J.","family":"DeWeert","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Melissa K.","family":"Cousino","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sunkyung","family":"Yu","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Gelehrter","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2025,8,21]]},"reference":[{"key":"2365_CR1","doi-asserted-by":"publisher","first-page":"2183","DOI":"10.1161\/01.cir.0000437597.44550.5d","volume":"129","author":"MT Donofrio","year":"2014","unstructured":"Donofrio MT, Moon-Grady AJ, Hornberger LK, Copel JA, Sklansky MS, Abuhamed A, et al. 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Institutional Review Board of the University of Michigan Medical School (IRBMED) oversees human subjects research conducted at the Medical School and Michigan Medicine. IRBMED is charged with protecting the rights and welfare of participants in clinical trials and other human subjects research studies and is responsible for monitoring compliance with federal and state laws, university policies and ethical principles. All methods were performed in accordance with the relevant guidelines and regulations.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethics approval and consent to participate\u2019s statement"}}]}}