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It is essential they have access to evidence-based resources that can enhance their adjustment. During the development of the Spinal Cord Injury Health Maintenance Tool preliminary lived experience feedback highlighted the need to include an additional module on mental health.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Study design<\/jats:title>\n                    <jats:p>Qualitative study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>To co-design a new Mental Health module with people with spinal cord injury during the digitisation of the Spinal Cord Injury Health Maintenance Tool.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting<\/jats:title>\n                    <jats:p>Community in Sydney, Australia.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Two focus groups involving participants with lived experience of spinal cord injury (n=5 and n=4) were combined with a one-off expert review process.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Five key informants engaged in the collaboration. Four key themes summarised how this second round of lived experience progressed the mental health resource: 1)\n                      <jats:italic>Mental health is front and centre<\/jats:italic>\n                      highlighted the necessity of including mental health in any self-management plan for spinal cord injury; 2)\n                      <jats:italic>Striking the right balance<\/jats:italic>\n                      acknowledged the serious impact of mental health issues but without undue negativity; 3)\n                      <jats:italic>The glass is half full<\/jats:italic>\n                      emphasised the need for a greater focus on a strengths-based approach; and 4)\n                      <jats:italic>Variety\u2019s the spice of life<\/jats:italic>\n                      required the Mental Health module to respond to individual circumstances.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Lived experience feedback ensured that the tone, scope and content of this module were revised to place greater emphasis on a\u00a0strengths-based orientation, while still acknowledging the serious and severe outcomes associated with compromised mental health.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1038\/s41393-026-01171-8","type":"journal-article","created":{"date-parts":[[2026,2,3]],"date-time":"2026-02-03T11:03:55Z","timestamp":1770116635000},"page":"346-351","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["\u201cIt has to work for us\u201d: A qualitative study exploring how lived experience engagement reframed development of a mental health module within a Spinal Cord Injury Self-Maintenance Tool"],"prefix":"10.1038","volume":"64","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1113-7462","authenticated-orcid":false,"given":"John","family":"Bourke","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7647-7604","authenticated-orcid":false,"given":"Ashley","family":"Craig","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Danielle","family":"Sandalic","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1024-3682","authenticated-orcid":false,"given":"Mohit","family":"Arora","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"K. 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Revisions also included corrections to Table 1 (GRIPP2 Short Form), specifically updating page number references to reflect the correct pagination. In addition, targeted adjustments were made in the reference list: References 14 and 30 required correction of the author name formatting.","order":8,"name":"change_details","label":"Change Details","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"13 March 2026","order":9,"name":"change_date","label":"Change Date","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"Correction","order":10,"name":"change_type","label":"Change Type","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"A Correction to this paper has been published:","order":11,"name":"change_details","label":"Change Details","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"https:\/\/doi.org\/10.1038\/s41393-026-01188-z","URL":"https:\/\/doi.org\/10.1038\/s41393-026-01188-z","order":12,"name":"change_details","label":"Change Details","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"The authors declare no competing interests.","order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}},{"value":"This project received ethical approval from the Northern Sydney Local Health District Human Research Ethics Committee, reference 2019\/ETH13961.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical approval"}}]}}