{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,21]],"date-time":"2026-09-21T23:48:34Z","timestamp":1790034514770,"version":"4.0.1"},"reference-count":19,"publisher":"Springer Science and Business Media LLC","issue":"9","license":[{"start":{"date-parts":[[2025,6,25]],"date-time":"2025-06-25T00:00:00Z","timestamp":1750809600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2025,6,25]],"date-time":"2025-06-25T00:00:00Z","timestamp":1750809600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"funder":[{"DOI":"10.13039\/501100001322","name":"South African Medical Research Council","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100001322","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Eur J Hum Genet"],"published-print":{"date-parts":[[2025,9]]},"abstract":"<jats:title>Abstract<\/jats:title>\n          <jats:p>Next generation sequencing (NGS) based tests have become first-line investigative modalities in adult neurogenetic clinics. Studies in high-income countries (HICs) show that NGS is cost-effective and reliable in diagnosing adult neurogenetic disorders (NGDs). African populations harbour vast genomic diversity, but there is limited knowledge on the molecular basis of NGDs affecting these populations due to lack of access to the necessary technology. The primary objective of this retrospective study was to describe the clinical utility of NGS panels in an African low-middle income country (LMIC). It included data of 74 adult participants seen at the multidisciplinary neurogenetic clinic at Tygerberg Hospital, South Africa, over a 4 \u2013 year period. Forty-three symptomatic index cases underwent NGS panel testing, while 31 relatives received targeted familial variant testing based on specific indications relevant to each case. Twenty-two different disease group-specific NGS panels were requested, spanning the NGD phenotypic spectrum. The diagnostic yield (DY) in index cases was 39.5% (17\/43). Four relatives were clinically affected, and all tested positive for the familial-specific variant. This study demonstrated the DY achieved with NGS testing in an LMIC adult neurogenetic cohort, was comparable to DYs previously reported in HICs. These results argue for the use of NGS panels as first-tier testing in resource constrained LMICs, to limit lengthy diagnostic odysseys and unnecessary investigations. A definitive molecular diagnosis enables evidence-based management, surveillance, genetic counselling, and familial variant screening for relatives. Lastly, it assists with enrolment into clinical trials focussed on the development of precision medicine.<\/jats:p>","DOI":"10.1038\/s41431-025-01900-2","type":"journal-article","created":{"date-parts":[[2025,6,25]],"date-time":"2025-06-25T15:08:51Z","timestamp":1750864131000},"page":"1144-1152","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["The utility of next generation sequencing targeted multigene panels in the Adult Neurogenetic Clinic at Tygerberg Hospital, South Africa"],"prefix":"10.1038","volume":"33","author":[{"given":"Cumine","family":"Van Tonder","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mardelle","family":"Schoeman","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7677-426X","authenticated-orcid":false,"given":"Jonathan","family":"Carr","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Franclo","family":"Henning","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Claude","family":"Bailly","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4463-3067","authenticated-orcid":false,"given":"Shahida","family":"Moosa","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2025,6,25]]},"reference":[{"key":"1900_CR1","doi-asserted-by":"crossref","unstructured":"Rexach J, Lee H, Martinez-Agosto JA, N\u00e9meth AH, Fogel BL. Clinical application of next-generation sequencing to the practice of neurology. Vol. 18, The Lancet Neurology. Lancet Publishing Group; p. 2019;492\u2013503.","DOI":"10.1016\/S1474-4422(19)30033-X"},{"key":"1900_CR2","doi-asserted-by":"crossref","unstructured":"Good JM, Atallah I, Jimenez MC, Benninger D, Kuntzer T, Superti-Furga A, et al. Ngs-based diagnosis of treatable neurogenetic disorders in adults: Opportunities and challenges. Genes (Basel). 2021;12.","DOI":"10.3390\/genes12050695"},{"key":"1900_CR3","doi-asserted-by":"crossref","unstructured":"Akinyemi RO, Owolabi MO, Oyeniyi T, Ovbiagele B, Arnett DK, Tiwari HK, et al. Neurogenomics in Africa: Perspectives, progress, possibilities and priorities. Vol. 366, Journal of the Neurological Sciences. Elsevier B.V. p. 2016;213\u201323.","DOI":"10.1016\/j.jns.2016.05.006"},{"key":"1900_CR4","doi-asserted-by":"crossref","unstructured":"Vallat JM, Goizet C, Tazir M, Couratier P, Magy L, Mathis S. 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J Neurol. 2019;266:1919\u201326.","journal-title":"J Neurol"}],"container-title":["European Journal of Human Genetics"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.nature.com\/articles\/s41431-025-01900-2.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/www.nature.com\/articles\/s41431-025-01900-2","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/www.nature.com\/articles\/s41431-025-01900-2.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,9,6]],"date-time":"2025-09-06T22:50:47Z","timestamp":1757199047000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.nature.com\/articles\/s41431-025-01900-2"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,6,25]]},"references-count":19,"journal-issue":{"issue":"9","published-print":{"date-parts":[[2025,9]]}},"alternative-id":["1900"],"URL":"https:\/\/doi.org\/10.1038\/s41431-025-01900-2","relation":{},"ISSN":["1018-4813","1476-5438"],"issn-type":[{"value":"1018-4813","type":"print"},{"value":"1476-5438","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,6,25]]},"assertion":[{"value":"10 February 2025","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"14 April 2025","order":2,"name":"revised","label":"Revised","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"10 June 2025","order":3,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"25 June 2025","order":4,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"The authors declare no competing interests. We confirm that we have read the Journal\u2019s position on issues involved in ethical publication and affirm that this report is consistent with those guidelines.","order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}},{"value":"Ethical approval for this study was obtained from the Health Research Ethics Committee of Stellenbosch University (Reference Number: S23\/07\/172), with a waiver of informed consent granted. All data were anonymized to protect participants\u2019 privacy and confidentiality, and each participant was assigned a unique identifier. The study adhered to the South African Good Clinical Practice Guidelines, the Medical Research Council Ethical Guidelines for Research, and the ethical principles outlined in the International Declaration of Helsinki. Data usage complied with the Protection of Personal Information Act and the Health Act of South Africa.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Ethical approval"}}]}}