{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,27]],"date-time":"2026-10-27T07:13:35Z","timestamp":1793085215347,"version":"4.5.0"},"reference-count":44,"publisher":"Springer Science and Business Media LLC","issue":"3","license":[{"start":{"date-parts":[[2019,5,22]],"date-time":"2019-05-22T00:00:00Z","timestamp":1558483200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.springer.com\/tdm"},{"start":{"date-parts":[[2019,5,22]],"date-time":"2019-05-22T00:00:00Z","timestamp":1558483200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/www.springer.com\/tdm"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Eye"],"published-print":{"date-parts":[[2020,3,1]]},"DOI":"10.1038\/s41433-019-0445-8","type":"journal-article","created":{"date-parts":[[2019,5,22]],"date-time":"2019-05-22T06:04:48Z","timestamp":1558505088000},"page":"461-473","update-policy":"https:\/\/doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":44,"title":["\u2018You\u2019ve got dry macular degeneration, end of story\u2019: a qualitative study into the experience of living with non-neovascular age-related macular degeneration"],"prefix":"10.1038","volume":"34","author":[{"given":"Deanna J.","family":"Taylor","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lee","family":"Jones","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alison M.","family":"Binns","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David P.","family":"Crabb","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"297","published-online":{"date-parts":[[2019,5,22]]},"reference":[{"key":"445_CR1","doi-asserted-by":"publisher","first-page":"257","DOI":"10.2147\/OPTH.S92616","volume":"10","author":"M Varano","year":"2016","unstructured":"Varano M, Eter N, Winyard S, Wittrup-Jensen KU, Navarro R, Heraghty J. The emotional and physical impact of wet age-related macular degeneration: findings from the wAMD Patient and Caregiver Survey. Clin Ophthalmol (Auckl, NZ). 2016;10:257\u201367.","journal-title":"Clin Ophthalmol (Auckl, NZ)"},{"key":"445_CR2","doi-asserted-by":"publisher","first-page":"296","DOI":"10.1080\/13548506.2014.936886","volume":"20","author":"J Boyle","year":"2015","unstructured":"Boyle J, Vukicevic M, Koklanis K, Itsiopoulos C. Experiences of patients undergoing anti-VEGF treatment for neovascular age-related macular degeneration: a systematic review. Psychol, Health Med. 2015;20:296\u2013310. 2015\/04\/03","journal-title":"Psychol, Health Med"},{"key":"445_CR3","doi-asserted-by":"publisher","first-page":"e011504","DOI":"10.1136\/bmjopen-2016-011504","volume":"6","author":"DJ Taylor","year":"2016","unstructured":"Taylor DJ, Hobby AE, Binns AM, Crabb DP. How does age-related macular degeneration affect real-world visual ability and quality of life? A systematic review. BMJ open. 2016;6:e011504.","journal-title":"BMJ open"},{"key":"445_CR4","doi-asserted-by":"publisher","first-page":"700","DOI":"10.1136\/bjophthalmol-2016-309955","volume":"101","author":"S Dean","year":"2017","unstructured":"Dean S, Mathers JM, Calvert M, Kyte DG, Conroy D, Folkard A, et al. \u201cThe patient is speaking\u201d: discovering the patient voice in ophthalmology. Br J Ophthalmol. 2017;101:700 https:\/\/doi.org\/10.1136\/bjophthalmol-2016-309955","journal-title":"Br J Ophthalmol"},{"key":"445_CR5","doi-asserted-by":"publisher","first-page":"e003996","DOI":"10.1136\/bmjopen-2013-003996","volume":"4","author":"FC Glen","year":"2014","unstructured":"Glen FC, Baker H, Crabb DP. A qualitative investigation into patients\u2019 views on visual field testing for glaucoma monitoring. BMJ open. 2014;4:e003996.","journal-title":"BMJ open"},{"key":"445_CR6","doi-asserted-by":"publisher","DOI":"10.1186\/s12886-015-0119-7","volume":"15","author":"FC Glen","year":"2015","unstructured":"Glen FC, Crabb DP. Living with glaucoma: a qualitative study of functional implications and patients\u2019 coping behaviours. BMC Ophthalmol. 2015;15:128.","journal-title":"BMC Ophthalmol"},{"key":"445_CR7","first-page":"924","volume":"23","author":"J Lacey","year":"2008","unstructured":"Lacey J, Cate H, Broadway DC. Barriers to adherence with glaucoma medications: a qualitative research study. Eye [Clin Study]. 2008;23:924.","journal-title":"Eye [Clin Study]"},{"key":"445_CR8","doi-asserted-by":"publisher","unstructured":"Kotecha A, Bonstein K, Cable R, Cammack J, Clipston J, Foster P Qualitative investigation of patients\u2019 experience of a glaucoma virtual clinic in a specialist ophthalmic hospital in London, UK. BMJ Open. 2015;5. https:\/\/doi.org\/10.1136\/bmjopen-2015-009463.","DOI":"10.1136\/bmjopen-2015-009463"},{"key":"445_CR9","doi-asserted-by":"publisher","first-page":"1117","DOI":"10.1038\/eye.2017.49","volume":"31","author":"RK Jones","year":"2017","unstructured":"Jones RK, Jefferis JM. Is qualitative research under-represented in ophthalmology journals? Eye [Comment]. 2017;31:1117.","journal-title":"Eye [Comment]"},{"key":"445_CR10","doi-asserted-by":"publisher","first-page":"966","DOI":"10.1097\/OPX.0000000000000320","volume":"91","author":"C McCloud","year":"2014","unstructured":"McCloud C, Khadka J, Gilhotra JS, Pesudovs K. Divergence in the lived experience of people with macular degeneration. Optom Vis Sci. 2014;91:966\u201374.","journal-title":"Optom Vis Sci"},{"key":"445_CR11","doi-asserted-by":"publisher","first-page":"1285","DOI":"10.1177\/1359105313511134","volume":"20","author":"AE Burton","year":"2015","unstructured":"Burton AE, Shaw RL, Gibson JM. Living together with age-related macular degeneration: an interpretative phenomenological analysis of sense-making within a dyadic relationship. J health Psychol. 2015;20:1285\u201395.","journal-title":"J health Psychol"},{"key":"445_CR12","doi-asserted-by":"publisher","first-page":"571","DOI":"10.1177\/01939450022044601","volume":"22","author":"LW Moore","year":"2000","unstructured":"Moore LW, Constantino RE, Allen M. Severe visual impairment in older women. West J Nurs Res. 2000;22:571\u201395.","journal-title":"West J Nurs Res"},{"key":"445_CR13","doi-asserted-by":"publisher","first-page":"110","DOI":"10.1016\/j.apnr.2004.06.014","volume":"18","author":"LW Moore","year":"2005","unstructured":"Moore LW, Miller M. Driving strategies used by older adults with macular degeneration: assessing the risks. Appl Nurs Res. 2005;18:110\u20136.","journal-title":"Appl Nurs Res"},{"key":"445_CR14","doi-asserted-by":"publisher","first-page":"10","DOI":"10.1046\/j.1365-2648.2003.02668.x","volume":"43","author":"L Weaver Moore","year":"2003","unstructured":"Weaver Moore L, Miller M. Older men\u2019s experiences of living with severe visual impairment. J Adv Nurs. 2003;43:10\u20138.","journal-title":"J Adv Nurs"},{"key":"445_CR15","doi-asserted-by":"publisher","first-page":"23","DOI":"10.1037\/0090-5550.51.1.23","volume":"51","author":"C Owsley","year":"2006","unstructured":"Owsley C, McGwin G Jr, Scilley K, Dreer LE, Bray CR, Mason JO III. Focus groups with persons who have age-related macular degeneration: emotional issues. Rehabil Psychol. 2006;51:23.","journal-title":"Rehabil Psychol"},{"key":"445_CR16","doi-asserted-by":"publisher","first-page":"748","DOI":"10.1177\/0269215511429162","volume":"26","author":"VR Cimarolli","year":"2012","unstructured":"Cimarolli VR, Boerner K, Brennan-Ing M, Reinhardt JP, Horowitz A. Challenges faced by older adults with vision loss: a qualitative study with implications for rehabilitation. Clin Rehabil. 2012;26:748\u201357.","journal-title":"Clin Rehabil"},{"key":"445_CR17","doi-asserted-by":"publisher","first-page":"129","DOI":"10.1177\/0264619609102216","volume":"27","author":"P Stanford","year":"2009","unstructured":"Stanford P, Waterman H, Russell WB, Harper RA. Psychosocial adjustment in age related macular degeneration. Br J Vis Impair. 2009;27:129\u201346.","journal-title":"Br J Vis Impair"},{"key":"445_CR18","doi-asserted-by":"crossref","unstructured":"Kleinschmidt JJ. Older adults\u2019 perspectives on their successful adjustment to vision loss. J Vis Impair Blind. 1999;93:69\u201381.","DOI":"10.1177\/0145482X9909300202"},{"key":"445_CR19","doi-asserted-by":"publisher","first-page":"725","DOI":"10.1177\/0145482X0810201106","volume":"102","author":"TM Smith","year":"2008","unstructured":"Smith TM. Adaptation to low vision caused by age-related macular degeneration: a case study. J Vis Impair Blind. 2008;102:725.","journal-title":"J Vis Impair Blind"},{"key":"445_CR20","doi-asserted-by":"publisher","first-page":"629","DOI":"10.1177\/0145482X0409801007","volume":"98","author":"EY Wong","year":"2004","unstructured":"Wong EY, Guymer RH, Hassell JB, Keeffe JE. The experience of age-related macular degeneration. J Vis Impair Blind. 2004;98:629\u201340.","journal-title":"J Vis Impair Blind"},{"key":"445_CR21","doi-asserted-by":"publisher","first-page":"831","DOI":"10.1001\/archopht.1993.01090060119035","volume":"111","author":"LT Chylack","year":"1993","unstructured":"Chylack LT, Wolfe JK, Singer DM, Leske MC, Bullimore MA, Bailey IL, et al. The lens opacities classification system III. Arch Ophthalmol. 1993;111:831\u20136.","journal-title":"Arch Ophthalmol"},{"key":"445_CR22","doi-asserted-by":"publisher","first-page":"123","DOI":"10.1023\/A:1021171000838","volume":"24","author":"MM Brown","year":"2001","unstructured":"Brown MM, Brown GC, Sharma S, Smith AF, Landy J. A utility analysis correlation with visual acuity: methodologies and vision in the better and poorer eyes. Int Ophthalmol. 2001;24:123\u20137.","journal-title":"Int Ophthalmol"},{"key":"445_CR23","doi-asserted-by":"publisher","first-page":"1703","DOI":"10.2147\/OPTH.S64200","volume":"8","author":"C Hirneiss","year":"2014","unstructured":"Hirneiss C. The impact of a better-seeing eye and a worse-seeing eye on vision-related quality of life. Clin Ophthalmol (Auckl, NZ). 2014;8:1703\u20139.","journal-title":"Clin Ophthalmol (Auckl, NZ)"},{"key":"445_CR24","first-page":"3327","volume":"41","author":"GS Rubin","year":"2000","unstructured":"Rubin GS, Mun\u0303oz B, Bandeen\u2013Roche K, West SK. Monocular versus binocular visual acuity as measures of vision impairment and predictors of visual disability. Invest Ophthalmol Vis Sci. 2000;41:3327\u201334.","journal-title":"Invest Ophthalmol Vis Sci"},{"key":"445_CR25","doi-asserted-by":"publisher","first-page":"189","DOI":"10.1016\/0022-3956(75)90026-6","volume":"12","author":"MF Folstein","year":"1975","unstructured":"Folstein MF, Folstein SE, McHugh PR. Mini-mental state\u201d: a practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res. 1975;12:189\u201398.","journal-title":"J Psychiatr Res"},{"key":"445_CR26","doi-asserted-by":"publisher","first-page":"246","DOI":"10.1186\/1745-6215-15-246","volume":"15","author":"C McKeague","year":"2014","unstructured":"McKeague C, Margrain TH, Bailey C, Binns AM. Low-level night-time light therapy for age-related macular degeneration (ALight): study protocol for a randomized controlled trial. Trials [J Artic]. 2014;15:246.","journal-title":"Trials [J Artic]"},{"key":"445_CR27","doi-asserted-by":"publisher","DOI":"10.1186\/1471-244X-12-57","volume":"12","author":"TH Margrain","year":"2012","unstructured":"Margrain TH, Nollett C, Shearn J, Stanford M, Edwards RT, Ryan B, et al. The Depression in Visual Impairment Trial (DEPVIT): trial design and protocol. BMC psychiatry. 2012;12:1.","journal-title":"BMC psychiatry"},{"key":"445_CR28","doi-asserted-by":"crossref","first-page":"349","DOI":"10.1093\/intqhc\/mzm042","volume":"19","author":"A Tong","year":"2007","unstructured":"Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19:349\u201357.","journal-title":"Int J Qual Health Care"},{"key":"445_CR29","doi-asserted-by":"publisher","first-page":"114","DOI":"10.1136\/bmj.320.7227.114","volume":"320","author":"C Pope","year":"2000","unstructured":"Pope C, Ziebland S, Mays N. Analysing qualitative data. BMJ: Br Med J. 2000;320:114\u20136.","journal-title":"BMJ: Br Med J"},{"key":"445_CR30","doi-asserted-by":"publisher","first-page":"844","DOI":"10.1016\/j.ophtha.2012.10.036","volume":"120","author":"FL Ferris","year":"2013","unstructured":"Ferris FL, Wilkinson C, Bird A, Chakravarthy U, Chew E, Csaky K, et al. Clinical classification of age-related macular degeneration. Ophthalmology. 2013;120:844\u201351.","journal-title":"Ophthalmology"},{"key":"445_CR31","first-page":"1","volume":"3","author":"V Cross","year":"2009","unstructured":"Cross V, Shah P, Glynn M, Chidrawar S. ReGAE 5: Can we improve the surgical journey for African-Caribbean patients undergoing glaucoma filtration surgery? Some preliminary findings. Clin Ophthalmol (Auckl, NZ). 2009;3:1\u201312.","journal-title":"Clin Ophthalmol (Auckl, NZ)"},{"key":"445_CR32","first-page":"1561","volume":"29","author":"C McCloud","year":"2015","unstructured":"McCloud C, Lake S. Understanding the patient\u2019s lived experience of neovascular age-related macular degeneration: a qualitative study. Eye [Clin Study]. 2015;29:1561.","journal-title":"Eye [Clin Study]"},{"key":"445_CR33","doi-asserted-by":"publisher","first-page":"238","DOI":"10.1016\/j.ajo.2007.04.048","volume":"144","author":"HD Jampel","year":"2007","unstructured":"Jampel HD, Frick KD, Janz NK, Wren PA, Musch DC, Rimal R, et al. Depression and mood indicators in newly diagnosed glaucoma patients. Am J Ophthalmol. 2007;144:238\u201344. e1","journal-title":"Am J Ophthalmol"},{"key":"445_CR34","doi-asserted-by":"publisher","first-page":"887","DOI":"10.1016\/S0161-6420(00)00624-2","volume":"108","author":"NK Janz","year":"2001","unstructured":"Janz NK, Wren PA, Lichter PR, Musch DC, Gillespie BW, Guire KE. Quality of life in newly diagnosed glaucoma patients: The Collaborative Initial Glaucoma Treatment Study. Ophthalmology. 2001;108:887\u201397.","journal-title":"Ophthalmology"},{"key":"445_CR35","doi-asserted-by":"publisher","unstructured":"Boxell EM, Amoaku WM, Bradley C. Healthcare experiences of patients with age-related macular degeneration: have things improved? Cross-sectional survey responses of Macular Society members in 2013 compared with 1999. BMJ Open. 2017;7. https:\/\/doi.org\/10.1136\/bmjopen-2016-012790.","DOI":"10.1136\/bmjopen-2016-012790"},{"key":"445_CR36","doi-asserted-by":"publisher","unstructured":"Burton AE, Shaw RL, Gibson JM. \u2018I\u2019d like to know what causes it, you know, anything I\u2019ve done?\u2019 Are we meeting the information and support needs of patients with macular degeneration? A qualitative study. BMJ Open. 2013;3 https:\/\/doi.org\/10.1136\/bmjopen-2013-003306.","DOI":"10.1136\/bmjopen-2013-003306"},{"key":"445_CR37","doi-asserted-by":"publisher","first-page":"98","DOI":"10.1111\/opo.12419","volume":"38","author":"DJ Taylor","year":"2017","unstructured":"Taylor DJ, Edwards LA, Binns AM, Crabb DP. Seeing it differently: self-reported description of vision loss in dry age-related macular degeneration. Ophthalmic Physiol Opt. 2017;38:98\u2013105.","journal-title":"Ophthalmic Physiol Opt"},{"key":"445_CR38","doi-asserted-by":"publisher","first-page":"417","DOI":"10.1016\/j.jsurg.2017.08.011","volume":"75","author":"A Mishra","year":"2018","unstructured":"Mishra A, Browning D, Haviland MJ, Jackson ML, Luff D, Meyer EC, et al. Communication skills training in ophthalmology: results of a needs assessment and pilot training program. J Surg Educ. 2018;75:417\u201326.","journal-title":"J Surg Educ"},{"key":"445_CR39","doi-asserted-by":"publisher","first-page":"1248","DOI":"10.1016\/j.pec.2015.07.031","volume":"98","author":"EB Martin","year":"2015","unstructured":"Martin EB, Mazzola NM, Brandano J, Luff D, Zurakowski D, Meyer EC. Clinicians\u2019 recognition and management of emotions during difficult healthcare conversations. Patient Educ Couns. 2015;98:1248\u201354.","journal-title":"Patient Educ Couns"},{"key":"445_CR40","first-page":"1302","volume":"26","author":"H Gillespie-Gallery","year":"2012","unstructured":"Gillespie-Gallery H, Conway ML, Subramanian A. Are rehabilitation services for patients in UK eye clinics adequate? A survey of eye care professionals. Eye [Clin Study]. 2012;26:1302.","journal-title":"Eye [Clin Study]"},{"key":"445_CR41","doi-asserted-by":"publisher","first-page":"200","DOI":"10.1177\/0264619615596198","volume":"33","author":"S Hodge","year":"2015","unstructured":"Hodge S, Thetford C, Knox P, Robinson J. Finding your own way around: Experiences of health and social care provision for people with a visual impairment in the United Kingdom. Br J Vis Impair. 2015;33:200\u201311.","journal-title":"Br J Vis Impair"},{"key":"445_CR42","unstructured":"Subramanian A, Gallery HG, Conway ML. The role of the Eye Cinic Liaison Officer (ECLO)-A diary study. Investigative Ophthalmology & Visual Science. 2012;53:4407."},{"key":"445_CR43","doi-asserted-by":"publisher","first-page":"226","DOI":"10.1016\/j.ics.2005.05.199","volume":"1282","author":"C Norwell","year":"2005","unstructured":"Norwell C, Hiles C. Why every hospital should have an eye clinic liaison officer. Int Congr Ser. 2005;1282:226\u20139.","journal-title":"Int Congr Ser"},{"key":"445_CR44","doi-asserted-by":"publisher","first-page":"249","DOI":"10.1016\/j.preteyeres.2005.11.002","volume":"25","author":"RE Hogg","year":"2006","unstructured":"Hogg RE, Chakravarthy U. Visual function and dysfunction in early and late age-related maculopathy. Prog Retin Eye Res [Rev]. 2006;25:249\u201376.","journal-title":"Prog Retin Eye Res [Rev]"}],"updated-by":[{"DOI":"10.1038\/s41433-019-0559-z","type":"correction","label":"Correction","source":"publisher","updated":{"date-parts":[[2019,9,5]],"date-time":"2019-09-05T00:00:00Z","timestamp":1567641600000}}],"container-title":["Eye"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/www.nature.com\/articles\/s41433-019-0445-8.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/www.nature.com\/articles\/s41433-019-0445-8","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/www.nature.com\/articles\/s41433-019-0445-8.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,5,20]],"date-time":"2023-05-20T17:07:11Z","timestamp":1684602431000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.nature.com\/articles\/s41433-019-0445-8"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,5,22]]},"references-count":44,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2020,3,1]]}},"alternative-id":["445"],"URL":"https:\/\/doi.org\/10.1038\/s41433-019-0445-8","relation":{},"ISSN":["0950-222X","1476-5454"],"issn-type":[{"value":"0950-222X","type":"print"},{"value":"1476-5454","type":"electronic"}],"subject":[],"published":{"date-parts":[[2019,5,22]]},"assertion":[{"value":"16 November 2018","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"25 March 2019","order":2,"name":"revised","label":"Revised","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"4 April 2019","order":3,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"22 May 2019","order":4,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"5 September 2019","order":5,"name":"change_date","label":"Change Date","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"Correction","order":6,"name":"change_type","label":"Change Type","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"A Correction to this paper has been published:","order":7,"name":"change_details","label":"Change Details","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"https:\/\/doi.org\/10.1038\/s41433-019-0559-z","URL":"https:\/\/doi.org\/10.1038\/s41433-019-0559-z","order":8,"name":"change_details","label":"Change Details","group":{"name":"ArticleHistory","label":"Article History"}},{"order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Compliance with ethical standards"}},{"value":"The authors declare that they have no conflict of interest.","order":2,"name":"Ethics","group":{"name":"EthicsHeading","label":"Conflict of interest"}}]}}