{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2024,2,29]],"date-time":"2024-02-29T00:40:49Z","timestamp":1709167249124},"reference-count":29,"publisher":"Springer Science and Business Media LLC","issue":"1","license":[{"start":{"date-parts":[[2024,2,28]],"date-time":"2024-02-28T00:00:00Z","timestamp":1709078400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"},{"start":{"date-parts":[[2024,2,28]],"date-time":"2024-02-28T00:00:00Z","timestamp":1709078400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0"}],"content-domain":{"domain":["link.springer.com"],"crossmark-restriction":false},"short-container-title":["Sci Rep"],"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Patient experiences are commonly assessed through patient reported experience measures (PREMs). Ambulatory care models extend traditional care into the patients\u2019 home, meaning that a triangle of health care professionals, patients, and their families need to be considered when assessing the remote care experience. These intertwined responsibilities are described by co-responsibility. Currently, PREMs don\u2019t reflect how elements to remote care impact this remote care experience. Therefore, this study aimed to develop a questionnaire assessing perceived patient-partner co-responsibility as a PREM in remote care. A 30-item questionnaire was assessed among 1000 individuals aged between 18 and 65\u00a0years that tried to lose weight with a partner, friend or family member supporting them. Pairwise item correlations, Exploratory Factor Analysis, and Cronbach\u2019s alpha were used for validation. 29-items were identified to reflect co-responsibility across 6 factors: empowerment and support, relational aspects, lack of sympathy, co-participation, accepting help and awareness. Cronbach\u2019s alpha ranged between 0.66 and 0.93, showing good internal consistency. We present a validated CoReCare Questionnaire to understand the impact of social dynamics on achieving desired health outcomes in a remote care setting. The CoReCare Questionnaire extends current PREMs when aiming to assess and improve the patient experience of a care episode outside of the hospital.<\/jats:p>","DOI":"10.1038\/s41598-024-54147-0","type":"journal-article","created":{"date-parts":[[2024,2,28]],"date-time":"2024-02-28T14:02:12Z","timestamp":1709128932000},"update-policy":"http:\/\/dx.doi.org\/10.1007\/springer_crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Understanding social dynamics and patient experience in out of hospital care: validation of a co-responsibility questionnaire (CoReCare)"],"prefix":"10.1038","volume":"14","author":[{"given":"Melanie","family":"Knufinke-Meyfroyt","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Carlo","family":"Lancia","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Yentl","family":"Lodewijks","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Simon","family":"Nienhuijs","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Eva","family":"Deckers","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"297","published-online":{"date-parts":[[2024,2,28]]},"reference":[{"key":"54147_CR1","volume-title":"High Quality Care for All: NHS Next Stage Review Final Report","author":"J Cave","year":"2008","unstructured":"Cave, J., Cooke, M. & Chantler, C. High Quality Care for All: NHS Next Stage Review Final Report (Department of Health, 2008)."},{"key":"54147_CR2","doi-asserted-by":"publisher","first-page":"522","DOI":"10.1177\/1077558714541480","volume":"71","author":"R Anhang Price","year":"2014","unstructured":"Anhang Price, R. et al. Examining the role of patient experience surveys in measuring health care quality. Med. Care Res. Rev. 71, 522\u2013554 (2014).","journal-title":"Med. Care Res. Rev."},{"key":"54147_CR3","doi-asserted-by":"publisher","first-page":"e001570","DOI":"10.1136\/bmjopen-2012-001570","volume":"3","author":"C Doyle","year":"2013","unstructured":"Doyle, C., Lennox, L. & Bell, D. A systematic review of evidence on the links between patient experience and clinical safety and effectiveness. BMJ Open 3, e001570 (2013).","journal-title":"BMJ Open"},{"key":"54147_CR4","doi-asserted-by":"publisher","first-page":"1148","DOI":"10.1016\/j.jval.2021.11.1355","volume":"25","author":"Y Cossio-Gil","year":"2022","unstructured":"Cossio-Gil, Y. et al. The roadmap for implementing value-based healthcare in European University Hospitals\u2014Consensus report and recommendations. Value Health 25, 1148\u20131156 (2022).","journal-title":"Value Health"},{"key":"54147_CR5","doi-asserted-by":"publisher","unstructured":"Mohanta, B., Das, P. & Patnaik, S. Healthcare 5.0: A paradigm shift in digital healthcare system using artificial intelligence, IOT and 5G communication. In 2019 International Conference on Applied Machine Learning (ICAML) 191\u2013196. https:\/\/doi.org\/10.1109\/ICAML48257.2019.00044 (IEEE, 2019).","DOI":"10.1109\/ICAML48257.2019.00044"},{"key":"54147_CR6","doi-asserted-by":"publisher","first-page":"235","DOI":"10.1007\/s40271-014-0060-5","volume":"7","author":"F Ahmed","year":"2014","unstructured":"Ahmed, F., Burt, J. & Roland, M. Measuring patient experience: Concepts and methods. Patient 7, 235\u2013241 (2014).","journal-title":"Patient"},{"key":"54147_CR7","unstructured":"Department of Health. NHS Patient Experience Framework (2012)."},{"key":"54147_CR8","doi-asserted-by":"publisher","first-page":"314","DOI":"10.1093\/intqhc\/mzx027","volume":"29","author":"L Male","year":"2017","unstructured":"Male, L., Noble, A., Atkinson, J. & Marson, T. Measuring patient experience: A systematic review to evaluate psychometric properties of patient reported experience measures (PREMs) for emergency care service provision. Int. J. Qual. Health Care 29, 314\u2013326 (2017).","journal-title":"Int. J. Qual. Health Care"},{"key":"54147_CR9","doi-asserted-by":"publisher","first-page":"205520761989898","DOI":"10.1177\/2055207619898987","volume":"6","author":"SE Messiah","year":"2020","unstructured":"Messiah, S. E. et al. Application and effectiveness of eHealth strategies for metabolic and bariatric surgery patients: A systematic review. Digit. Health 6, 205520761989898 (2020).","journal-title":"Digit. Health"},{"key":"54147_CR10","doi-asserted-by":"publisher","first-page":"615","DOI":"10.12688\/f1000research.18787.2","volume":"8","author":"L Kaouk","year":"2020","unstructured":"Kaouk, L., Hsu, A. T., Tanuseputro, P. & Jessri, M. Modifiable factors associated with weight regain after bariatric surgery: A scoping review. F1000Research 8, 615 (2020).","journal-title":"F1000Research"},{"key":"54147_CR11","first-page":"S2273","volume":"20","author":"I Neutelings","year":"2017","unstructured":"Neutelings, I., Levy, P., Djajadiningrat, T. & Hummels, C. Enhancing co-responsibility for patient engagement. Des. J. 20, S2273\u2013S2283 (2017).","journal-title":"Des. J."},{"key":"54147_CR12","doi-asserted-by":"publisher","first-page":"142","DOI":"10.1111\/j.1467-789X.2010.00720.x","volume":"12","author":"M Livhits","year":"2011","unstructured":"Livhits, M. et al. Is social support associated with greater weight loss after bariatric surgery?: A systematic review: Social support and bariatric surgery. Obes. Rev. 12, 142\u2013148 (2011).","journal-title":"Obes. Rev."},{"key":"54147_CR13","doi-asserted-by":"publisher","first-page":"139","DOI":"10.1007\/s10728-011-0175-y","volume":"20","author":"I Devisch","year":"2012","unstructured":"Devisch, I. Co-responsibility: A new horizon for today\u2019s health care? Health Care Anal. 20, 139\u2013151 (2012).","journal-title":"Health Care Anal."},{"key":"54147_CR14","doi-asserted-by":"publisher","first-page":"e27389","DOI":"10.2196\/27389","volume":"6","author":"D Versteegden","year":"2022","unstructured":"Versteegden, D. et al. The value of tracking data on the behavior of patients who have undergone bariatric surgery: Explorative study. JMIR Form. Res. 6, e27389 (2022).","journal-title":"JMIR Form. Res."},{"key":"54147_CR15","doi-asserted-by":"publisher","first-page":"92","DOI":"10.1089\/bari.2022.0032","volume":"18","author":"M Knufinke-Meyfroyt","year":"2022","unstructured":"Knufinke-Meyfroyt, M. et al. Co-responsibility: Exploring the impact of patient-partner dynamics on health outcomes after bariatric surgery. Bariatr. Surg. Pract. Patient Care 18, 92 (2022).","journal-title":"Bariatr. Surg. Pract. Patient Care"},{"key":"54147_CR16","doi-asserted-by":"publisher","first-page":"118","DOI":"10.1016\/j.jpsychires.2019.06.006","volume":"116","author":"DJC Hanssen","year":"2019","unstructured":"Hanssen, D. J. C. et al. Measuring social support in psychiatric patients and controls: Validation and reliability of the shortened close persons questionnaire. J. Psychiatr. Res. 116, 118\u2013125 (2019).","journal-title":"J. Psychiatr. Res."},{"key":"54147_CR17","doi-asserted-by":"publisher","first-page":"141","DOI":"10.1177\/001316446002000116","volume":"20","author":"HF Kaiser","year":"1960","unstructured":"Kaiser, H. F. The application of electronic computers to factor analysis. Educ. Psychol. Meas. 20, 141\u2013151 (1960).","journal-title":"Educ. Psychol. Meas."},{"key":"54147_CR18","doi-asserted-by":"publisher","first-page":"245","DOI":"10.1207\/s15327906mbr0102_10","volume":"1","author":"RB Cattell","year":"1966","unstructured":"Cattell, R. B. The scree test for the number of factors. Multivar. Behav. Res. 1, 245\u2013276 (1966).","journal-title":"Multivar. Behav. Res."},{"key":"54147_CR19","doi-asserted-by":"publisher","first-page":"297","DOI":"10.1007\/BF02310555","volume":"16","author":"LJ Cronbach","year":"1951","unstructured":"Cronbach, L. J. Coefficient alpha and the internal structure of tests. Psychometrika 16, 297\u2013334 (1951).","journal-title":"Psychometrika"},{"key":"54147_CR20","volume-title":"The Python Language Reference","author":"G van Rossum","year":"2010","unstructured":"van Rossum, G. & Drake, F. L. The Python Language Reference (Python Software Foundation, 2010)."},{"key":"54147_CR21","doi-asserted-by":"publisher","first-page":"357","DOI":"10.1038\/s41586-020-2649-2","volume":"585","author":"CR Harris","year":"2020","unstructured":"Harris, C. R. et al. Array programming with NumPy. Nature 585, 357\u2013362 (2020).","journal-title":"Nature"},{"key":"54147_CR22","doi-asserted-by":"publisher","first-page":"261","DOI":"10.1038\/s41592-019-0686-2","volume":"17","author":"P Virtanen","year":"2020","unstructured":"Virtanen, P. et al. SciPy 1.0: Fundamental algorithms for scientific computing in Python. Nat. Methods 17, 261\u2013272 (2020).","journal-title":"Nat. Methods"},{"key":"54147_CR23","doi-asserted-by":"crossref","unstructured":"Seabold, S. & Perktold, J. statsmodels: Econometric and statistical modeling with python. In 9th Python in Science Conference (2010).","DOI":"10.25080\/Majora-92bf1922-011"},{"key":"54147_CR24","doi-asserted-by":"publisher","first-page":"1026","DOI":"10.21105\/joss.01026","volume":"3","author":"R Vallat","year":"2018","unstructured":"Vallat, R. Pingouin: Statistics in python. J. Open Source Softw. 3, 1026 (2018).","journal-title":"J. Open Source Softw."},{"key":"54147_CR25","first-page":"2825","volume":"12","author":"F Pedregosa","year":"2011","unstructured":"Pedregosa, F. et al. Scikit-learn: Machine learning in python. J. Mach. Learn. Res. 12, 2825\u20132830 (2011).","journal-title":"J. Mach. Learn. Res."},{"key":"54147_CR26","doi-asserted-by":"publisher","first-page":"90","DOI":"10.1109\/MCSE.2007.55","volume":"9","author":"JD Hunter","year":"2007","unstructured":"Hunter, J. D. Matplotlib: A 2D graphics environment. Comput. Sci. Eng. 9, 90\u201395 (2007).","journal-title":"Comput. Sci. Eng."},{"key":"54147_CR27","doi-asserted-by":"publisher","first-page":"3021","DOI":"10.21105\/joss.03021","volume":"6","author":"M Waskom","year":"2021","unstructured":"Waskom, M. seaborn: Statistical data visualization. J. Open Source Softw. 6, 3021 (2021).","journal-title":"J. Open Source Softw."},{"key":"54147_CR28","doi-asserted-by":"publisher","first-page":"80","DOI":"10.4103\/sja.SJA_203_17","volume":"11","author":"S Tsang","year":"2017","unstructured":"Tsang, S., Royse, C. & Terkawi, A. Guidelines for developing, translating, and validating a questionnaire in perioperative and pain medicine. Saudi J. Anaesth. 11, 80 (2017).","journal-title":"Saudi J. Anaesth."},{"key":"54147_CR29","doi-asserted-by":"publisher","first-page":"3410","DOI":"10.1007\/s11695-022-06237-z","volume":"32","author":"AJ Budin","year":"2022","unstructured":"Budin, A. J., Sumithran, P., MacCormick, A. D., Caterson, I. & Brown, W. A. Surgeon engagement with patient-reported measures in Australian and aotearoa New Zealand bariatric practices. Obes. Surg. 32, 3410\u20133418 (2022).","journal-title":"Obes. Surg."}],"container-title":["Scientific Reports"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.nature.com\/articles\/s41598-024-54147-0.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/www.nature.com\/articles\/s41598-024-54147-0","content-type":"text\/html","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/www.nature.com\/articles\/s41598-024-54147-0.pdf","content-type":"application\/pdf","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,2,28]],"date-time":"2024-02-28T14:09:47Z","timestamp":1709129387000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.nature.com\/articles\/s41598-024-54147-0"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,2,28]]},"references-count":29,"journal-issue":{"issue":"1","published-online":{"date-parts":[[2024,12]]}},"alternative-id":["54147"],"URL":"https:\/\/doi.org\/10.1038\/s41598-024-54147-0","relation":{},"ISSN":["2045-2322"],"issn-type":[{"value":"2045-2322","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,2,28]]},"assertion":[{"value":"19 July 2023","order":1,"name":"received","label":"Received","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"8 February 2024","order":2,"name":"accepted","label":"Accepted","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"28 February 2024","order":3,"name":"first_online","label":"First Online","group":{"name":"ArticleHistory","label":"Article History"}},{"value":"The authors declare no competing interests.","order":1,"name":"Ethics","group":{"name":"EthicsHeading","label":"Competing interests"}}],"article-number":"4894"}}