{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,6]],"date-time":"2026-11-06T22:04:33Z","timestamp":1794002673006,"version":"4.8.0"},"reference-count":33,"publisher":"American Speech Language Hearing Association","issue":"4","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Am J Speech Lang Pathol"],"published-print":{"date-parts":[[2025,7,10]]},"abstract":"<jats:sec>\n            <jats:title>Purpose:<\/jats:title>\n            <jats:p>Providing care for family members with neurodegenerative diseases entails significant physical and psychosocial costs, increasing caregiver burden. Limited research exists on the factors contributing to dysphagia-related burden, particularly across disease trajectories. This study aimed to (a) determine if dysphagia-related burden predicts general caregiver burden, (b) identify predictors of dysphagia-related burden, and (c) examine relationships between dysphagia severity, disease severity, and dysphagia-related burden.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Method:<\/jats:title>\n            <jats:p>\n              Care partners (\n              <jats:italic toggle=\"yes\">N<\/jats:italic>\n              = 211; 80% female;\n              <jats:italic toggle=\"yes\">M<\/jats:italic>\n              <jats:sub>age<\/jats:sub>\n              = 60 \u00b1 14 years) from clinics in Canada, New Zealand, and the United States participated. Care recipients included those with amyotrophic lateral sclerosis (ALS;\n              <jats:italic toggle=\"yes\">n<\/jats:italic>\n              = 48), dementia (\n              <jats:italic toggle=\"yes\">n<\/jats:italic>\n              = 110), and Parkinson's disease (PD;\n              <jats:italic toggle=\"yes\">n<\/jats:italic>\n              = 53). General burden was measured using the Zarit Burden Interview, while dysphagia-related burden was assessed via the Caregiver Assessment of Reported Experiences with Swallowing Difficulties. Multiple regression analyses examined predictors of general and dysphagia-related burden and their relationships to dysphagia and disease severity.\n            <\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Results:<\/jats:title>\n            <jats:p>\n              Higher general burden was associated with female caregivers (\u03b2 = \u2212.19,\n              <jats:italic toggle=\"yes\">p<\/jats:italic>\n              = .05), higher education (\u03b2 = .16,\n              <jats:italic toggle=\"yes\">p<\/jats:italic>\n              = .03), caring for someone with dementia (\u03b2 = .36,\n              <jats:italic toggle=\"yes\">p<\/jats:italic>\n              = .01), and greater dysphagia-related burden (\u03b2 = .33,\n              <jats:italic toggle=\"yes\">p<\/jats:italic>\n              = .01). Predictors of dysphagia-related burden included working caregivers (\u03b2 = .15,\n              <jats:italic toggle=\"yes\">p<\/jats:italic>\n              = .01), increased dysphagia symptoms (\u03b2 = .77,\n              <jats:italic toggle=\"yes\">p<\/jats:italic>\n              &lt; .01), and caring for individuals with ALS or dementia (vs. PD; \u03b2 = \u2212.16,\n              <jats:italic toggle=\"yes\">p<\/jats:italic>\n              = .02). Dysphagia burden varied by disease severity and diet tolerance (\n              <jats:italic toggle=\"yes\">p<\/jats:italic>\n              &lt; .01).\n            <\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Conclusions:<\/jats:title>\n            <jats:p>Managing dysphagia independently contributes to caregiver burden, potentially increasing burnout and nonadherence to clinical recommendations. Early, proactive inquiry about dysphagia-related care partner burden and provision of support to minimize burden should be considered early in disease management.<\/jats:p>\n          <\/jats:sec>\n          <jats:sec>\n            <jats:title>Supplemental Material:<\/jats:title>\n            <jats:p>\n              <jats:ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" ext-link-type=\"uri\" xlink:href=\"https:\/\/doi.org\/10.23641\/asha.28843055\">https:\/\/doi.org\/10.23641\/asha.28843055<\/jats:ext-link>\n            <\/jats:p>\n          <\/jats:sec>","DOI":"10.1044\/2025_ajslp-24-00529","type":"journal-article","created":{"date-parts":[[2025,5,5]],"date-time":"2025-05-05T16:18:35Z","timestamp":1746461915000},"page":"2053-2061","source":"Crossref","is-referenced-by-count":7,"title":["Dysphagia Symptoms Contribute to Greater Care Partner Burden in Neurodegenerative Disease"],"prefix":"10.1044","volume":"34","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0792-2003","authenticated-orcid":false,"given":"Lauren","family":"Tabor Gray","sequence":"first","affiliation":[{"name":"Nova Southeastern University, Fort Lauderdale, FL"},{"name":"David and Cathy Husman Neuroscience Institute, Fort Lauderdale, FL"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3335-8212","authenticated-orcid":false,"given":"Samantha","family":"Shune","sequence":"additional","affiliation":[{"name":"University of Oregon, Eugene"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8586-8612","authenticated-orcid":false,"given":"Sarah","family":"Perry","sequence":"additional","affiliation":[{"name":"New Zealand Brain Research Institute, Christchurch"},{"name":"University of Otago, Christchurch, New Zealand"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Derek","family":"Kosty","sequence":"additional","affiliation":[{"name":"University of Oregon, Eugene"},{"name":"Oregon Research Institute, Springfield"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9473-8844","authenticated-orcid":false,"given":"Ashwini","family":"Namasivayam-MacDonald","sequence":"additional","affiliation":[{"name":"McMaster University, Hamilton, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"1310","reference":[{"key":"e_1_3_2_2_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2014.304"},{"key":"e_1_3_2_3_1","doi-asserted-by":"publisher","DOI":"10.1177\/000348940811701210"},{"key":"e_1_3_2_4_1","doi-asserted-by":"publisher","DOI":"10.1007\/s40120-023-00558-6"},{"key":"e_1_3_2_5_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11920-017-0818-2"},{"key":"e_1_3_2_6_1","volume-title":"Statistical power analysis for the behavioral sciences","author":"Cohen J.","year":"1988","unstructured":"Cohen, J. 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