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The purpose of this phenomenological study was to understand the lived experience of family members whose nearest and dearest suffered from familial amyloidotic polyneuropathy. In\u2010depth interviews were conducted with six family members. The analysis of the data was inspired by Colaizzi\u2019s method. Two major theme categories, difficult to accept and forced to accept, emerged from the interviews. Implications for nursing practice, such as genetic counselling and support, are discussed.<\/jats:p>","DOI":"10.1046\/j.1365-2648.2000.01291.x","type":"journal-article","created":{"date-parts":[[2003,3,12]],"date-time":"2003-03-12T03:45:03Z","timestamp":1047440703000},"page":"347-353","source":"Crossref","is-referenced-by-count":8,"title":["Family members\u2019 experience of familial amyloidotic polyneuropathy disease \u2014 an infernal struggle and a fact of life"],"prefix":"10.1111","volume":"31","author":[{"given":"Elisabeth","family":"Jons\u00e9n","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Elsy","family":"Athlin","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ole B.","family":"Suhr","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2008,10,9]]},"reference":[{"key":"e_1_2_4_2_2","first-page":"1","article-title":"Familial amyloidosis with polyneuropathy: a clinical study based on patients living in Northern Sweden","volume":"198","author":"Andersson R.","year":"1976","journal-title":"Acta Medica Scandinavica"},{"key":"e_1_2_4_3_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1547-5069.1992.tb00700.x"},{"key":"e_1_2_4_4_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.1992.tb01859.x"},{"key":"e_1_2_4_5_2","doi-asserted-by":"crossref","unstructured":"BennerP.(1994)The tradition and skill of interpretive phenomenology in studying health illness and caring practices. 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