{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,12]],"date-time":"2025-10-12T10:52:02Z","timestamp":1760266322503},"reference-count":27,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2008,7,7]],"date-time":"2008-07-07T00:00:00Z","timestamp":1215388800000},"content-version":"vor","delay-in-days":2696,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Advanced Nursing"],"published-print":{"date-parts":[[2001,2,18]]},"abstract":"<jats:p> <jats:bold>Validation of a questionnaire to evaluate the quality of life of nonprofessional caregivers of dependent persons<\/jats:bold> <\/jats:p><jats:p> <jats:bold>Aim of the study.<\/jats:bold>\u2002To determine the acceptance, validity and reliability of the questionnaire for assessing the type of informal care that caregivers of dependent people give and the effects this care might have on the health of the carer.<\/jats:p><jats:p> <jats:bold>Background.<\/jats:bold>\u2002In Spain, the formal health care system provides 12% of the total time dedicated to health care, the remaining 88% is carried out by the informal system within the home environment. The act of caring has effects on various areas of the life of the carer and on family functioning. This makes clear the existing risk when the principal carer becomes a secondary nurse.<\/jats:p><jats:p> <jats:bold>Methods.<\/jats:bold>\u2002This research was a cross\u2010sectional design, carried out in municipalities in the province of Barcelona (Spain) from January to December 1997. The subjects of the study were 240 caregivers of dependent people. The questionnaire (ICUB97\u00a9) is based on the Virginia Henderson\u2019s 14 Needs nursing model. The validity of the content was assessed through the consensus of a group of experts, validity of design by means of comparison with the hypotheses.<\/jats:p><jats:p> <jats:bold>Results.<\/jats:bold>\u2002Test\u2013retest reliability was completed for the three parts of the questionnaire and the \u03ba index values was 0\u00b789, 0\u00b780 and 0\u00b775 for each part. The higher the level of dependency of the person cared for, the more care tasks the carer had to perform. A correlation coefficient of 0\u00b758 was obtained for the Barthel Index (<jats:italic>P<\/jats:italic>\u2003&lt;\u20030\u00b7001) and 0\u00b753 on the Philadelphia Index (<jats:italic>P<\/jats:italic>\u2003&lt;\u20030\u00b7001). The care tasks performed by the carer showing greatest correlation with dependency level were; help with elimination (<jats:italic>r<\/jats:italic>=0\u00b773, <jats:italic>P<\/jats:italic>\u2003&lt;\u20030\u00b7001), help with feeding (<jats:italic>r<\/jats:italic>=0\u00b755, <jats:italic>P<\/jats:italic>\u2003&lt;\u20030\u00b7001) and help in personal development (<jats:italic>r<\/jats:italic>=0\u00b755, <jats:italic>P<\/jats:italic>=0\u00b7001).<\/jats:p><jats:p> <jats:bold>Conclusions.<\/jats:bold>\u2002This questionnaire provides a reliable and valid instrument for measuring the care given by caregivers to dependent people, to meet their basic needs as well as for assessing the needs of the carers who experience problems by the act of caring. It is therefore important for nursing practice, to have a validated instrument available for identifying the tasks performed by family carers and the effects on their health.<\/jats:p>","DOI":"10.1046\/j.1365-2648.2001.01679.x","type":"journal-article","created":{"date-parts":[[2003,3,12]],"date-time":"2003-03-12T03:51:33Z","timestamp":1047441093000},"page":"548-554","source":"Crossref","is-referenced-by-count":12,"title":["Validation of a questionnaire to evaluate the quality of life of nonprofessional caregivers of dependent persons"],"prefix":"10.1111","volume":"33","author":[{"given":"Carmen Fuentelsaz","family":"Gallego","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Montserrat Roca","family":"Roger","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Inmaculada \u00dabeda","family":"Bonet","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lourdes Garc\u00eda","family":"Vi\u00f1ets","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Assumpta Pont","family":"Ribas","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rosa L\u00f3pez","family":"Pisa","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rosal\u00eda Pedreny","family":"Oriol","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2008,7,7]]},"reference":[{"key":"e_1_2_7_2_1","first-page":"257","article-title":"Empleo de estrategias de afrontamiento en cuidadores familiares de ancianos con demencia","volume":"32","author":"Abengazar M.C.","year":"1997","journal-title":"Rev Espa\u00f1ola de Geriatr\u00eda Y Gerontolog\u00eda"},{"key":"e_1_2_7_3_1","first-page":"771","article-title":"La versi\u00f3n espa\u00f1ola de SF 36 Health Survey (Cuestionario de salud SF 36): un instrumento para la medida de los resultados cl\u00ednicos","volume":"104","author":"Alonso J.","year":"1995","journal-title":"Med Clin (Barc)"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1007\/BF00435974"},{"key":"e_1_2_7_5_1","doi-asserted-by":"crossref","unstructured":"BazoT.&Dom\u00ednguez\u2010Alc\u00f3nC.(1995)Los cuidados familiares de salud a las personas ancianas y las pol\u00edticas familiares. 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Masson Barcelona."},{"key":"e_1_2_7_9_1","first-page":"21","article-title":"Familia y salud","volume":"203","author":"Cuesta de la C.","year":"1995","journal-title":"Revista ROL de Enfermer\u00eda"},{"key":"e_1_2_7_10_1","first-page":"688","article-title":"Validaci\u00f3n de una escala de apoyo social funcional para uso en la consulta del m\u00e9dico de familia","volume":"8","author":"De la Revilla L.","year":"1991","journal-title":"Atenci\u00f3n Primaria"},{"key":"e_1_2_7_11_1","unstructured":"De la RevillaL.(1994)Conceptos E Instrumentos de la Atenci\u00f3n Familiar. Doyma Barcelona."},{"key":"e_1_2_7_12_1","first-page":"35","article-title":"Cuidados del anciano demente","volume":"187","author":"De la Rica M.","year":"1994","journal-title":"Revista Rol de Enfermer\u00eda"},{"key":"e_1_2_7_13_1","unstructured":"Dur\u00e1nM.A.(1983)Desigualdad Social Y Enfermedad. 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