{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,13]],"date-time":"2026-04-13T19:25:53Z","timestamp":1776108353560,"version":"3.50.1"},"reference-count":20,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2001,12,20]],"date-time":"2001-12-20T00:00:00Z","timestamp":1008806400000},"content-version":"vor","delay-in-days":178,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2001,6,25]]},"abstract":"<jats:p>Traditionally genetic counselling has promoted a non\u2010directive approach to patients\u2019 decision\u2010making but the feasibility of this has been questioned. Unlike most branches of medicine, which are shifting away from a paternalistic model, genetic counselling is approaching shared decision\u2010making from a different perspective. There are certain features of genetic counselling and genetic testing which may complicate the drive towards shared decision\u2010making and informed choice: 1. Genetic test results can have broader implications than non\u2010genetic test results. 2. Genetic test results may be perceived by the patient differently to non\u2010genetic test results. 3. Carrier status for autosomal recessive conditions may be difficult for patients to conceptualize. 4. Decisions in genetic counselling are often multiple and sequential. 5. Most information in genetic counselling is based on probabilities and uncertainties. Each of these features is discussed in relation to achieving shared decision\u2010making in genetic testing and the implications for genetic counsellors are described. The points raised, however, have broader implications for medicine as several of the features, although central to genetic testing, are not entirely unique. Lessons learnt from genetic testing and genetic counselling in achieving shared decision\u2010making could help develop methods of promoting informed choice in other medical arenas such as cancer screening.<\/jats:p>","DOI":"10.1046\/j.1369-6513.2001.00124.x","type":"journal-article","created":{"date-parts":[[2003,3,11]],"date-time":"2003-03-11T23:58:31Z","timestamp":1047427111000},"page":"81-86","source":"Crossref","is-referenced-by-count":32,"title":["Is informed choice in genetic testing a different breed of informed decision\u2010making? A discussion paper"],"prefix":"10.1111","volume":"4","author":[{"given":"Jon","family":"Emery","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2001,12,20]]},"reference":[{"key":"e_1_2_8_2_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.319.7212.719"},{"key":"e_1_2_8_3_2","first-page":"636","article-title":"Genetic counseling","volume":"26","author":"Fraser FC","year":"1974","journal-title":"American Journal of Human Genetics"},{"key":"e_1_2_8_4_2","doi-asserted-by":"publisher","DOI":"10.1016\/0140-6736(91)91849-P"},{"key":"e_1_2_8_5_2","doi-asserted-by":"publisher","DOI":"10.1136\/jmg.34.3.237"},{"key":"e_1_2_8_6_2","first-page":"40","article-title":"Nondirectiveness in genetic counseling: an empirical study","volume":"60","author":"Michie S","year":"1997","journal-title":"American Journal of Human Genetics"},{"key":"e_1_2_8_7_2","doi-asserted-by":"publisher","DOI":"10.1136\/jmg.37.2.135"},{"key":"e_1_2_8_8_2","doi-asserted-by":"crossref","unstructured":"CoulterA.Shared decision\u2010making: a summary and future issues. 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