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Cependant, peu des collaborations chercheurs-malades sont \u00e0 l\u2019initiative des personnes concern\u00e9es, les patients et leurs familles. Nous avons adopt\u00e9 et test\u00e9 cette d\u00e9marche \u00e0 la demande et en coop\u00e9ration avec l\u2019association Fibromyalgie France.<\/jats:p>","DOI":"10.1051\/medsci\/2020269","type":"journal-article","created":{"date-parts":[[2021,1,25]],"date-time":"2021-01-25T09:10:58Z","timestamp":1611565858000},"page":"81-88","source":"Crossref","is-referenced-by-count":1,"title":["Production de savoirs \u00e0 partir de donn\u00e9es collect\u00e9es par les associations de malades"],"prefix":"10.1051","volume":"37","author":[{"given":"Carole","family":"Robert","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0478-9593","authenticated-orcid":false,"given":"Jean","family":"Imbert","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mohamed","family":"Lajnef","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Camille","family":"No\u00fbs","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Gilbert","family":"Cabiran","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Serge","family":"Robert","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Fran\u00e7oise","family":"Cabiran","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3386-0299","authenticated-orcid":false,"given":"Flavie","family":"Mathieu","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"250","published-online":{"date-parts":[[2021,1,25]]},"reference":[{"key":"R1","doi-asserted-by":"crossref","first-page":"223","DOI":"10.3390\/biomedicines8070223","volume":"8","author":"Littlejohn","year":"2020","journal-title":"Biomedicines"},{"issue":"suppl 123","key":"R2","first-page":"3","volume":"38","author":"Bazzichi","year":"2020","journal-title":"Clin Exp Rheumatol"},{"key":"R3","doi-asserted-by":"crossref","first-page":"1219","DOI":"10.3390\/jcm9041219","volume":"9","author":"Galvez-S\u00e1nchez","year":"2020","journal-title":"J Clin Med"},{"key":"R4","unstructured":"https:\/\/www.inserm.fr\/information-en-sante\/expertises-collectives\/fibromyalgie."},{"issue":"suppl","key":"R5","doi-asserted-by":"crossref","first-page":"41","DOI":"10.3917\/spub.150.0041","volume":"1","author":"Pomey","year":"2015","journal-title":"Sant\u00e9 Publique"},{"key":"R6","doi-asserted-by":"crossref","first-page":"e16","DOI":"10.2196\/jopm.8933","volume":"9","author":"Las Vergnas","year":"2017","journal-title":"J Participat Med"},{"key":"R7","doi-asserted-by":"crossref","first-page":"99","DOI":"10.3917\/vsoc.174.0099","volume":"20","author":"Godrie","year":"2017","journal-title":"Vie sociale"},{"key":"R8","doi-asserted-by":"crossref","first-page":"558","DOI":"10.1007\/s11606-017-4269-6","volume":"33","author":"Witteman","year":"2018","journal-title":"J Gen Intern Med"},{"key":"R9","doi-asserted-by":"crossref","first-page":"752","DOI":"10.12688\/f1000research.15162.1","volume":"7","author":"Hoddinott","year":"2018","journal-title":"F1000Res"},{"key":"R10","doi-asserted-by":"crossref","first-page":"5","DOI":"10.1186\/s12961-018-0282-4","volume":"16","author":"Manafo","year":"2018","journal-title":"Health Res Policy Syst"},{"key":"R11","unstructured":"HAS. 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