{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,8]],"date-time":"2025-12-08T22:37:46Z","timestamp":1765233466713},"reference-count":30,"publisher":"EDP Sciences","issue":"1","license":[{"start":{"date-parts":[[2023,1,24]],"date-time":"2023-01-24T00:00:00Z","timestamp":1674518400000},"content-version":"vor","delay-in-days":23,"URL":"https:\/\/www.edpsciences.org\/en\/authors\/copyright-and-licensing"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Med Sci (Paris)"],"published-print":{"date-parts":[[2023,1]]},"abstract":"<jats:p>Du fait de l\u2019augmentation de l\u2019esp\u00e9rance de vie des individus atteints de mucoviscidose, la transition de la p\u00e9diatrie vers les services de m\u00e9decine pour adultes est devenue une \u00e9tape essentielle pour les patients, les aidants et les soignants. Cette transition doit \u00eatre progressive et longuement pr\u00e9par\u00e9e. Avoir un processus \u00e9tabli et formalis\u00e9, aborder t\u00f4t le th\u00e8me de la transition avec le patient et sa famille, autonomiser le patient avant le transfert et \u00e9tablir des liens \u00e9troits entre les structures m\u00e9dicales p\u00e9diatriques et pour adultes sont des \u00e9l\u00e9ments importants pour la r\u00e9ussite de cette \u00e9tape. L\u2019\u00e9ducation th\u00e9rapeutique ainsi que l\u2019utilisation de questionnaires valid\u00e9s, d\u2019un plan d\u2019action personnalis\u00e9 ou d\u2019outils connect\u00e9s peuvent aider. Le transfert se fera au moment le mieux adapt\u00e9 pour le patient, id\u00e9alement en p\u00e9riode de stabilit\u00e9 de la maladie, de mani\u00e8re progressive, avec des consultations conjointes ou altern\u00e9es entre les \u00e9quipes de p\u00e9diatrie et de m\u00e9decine pour adultes. D\u2019autres maladies respiratoires chroniques d\u00e9butant dans l\u2019enfance ou \u00e0 l\u2019adolescence pourront b\u00e9n\u00e9ficier d\u2019un processus de transition similaire.<\/jats:p>","DOI":"10.1051\/medsci\/2022200","type":"journal-article","created":{"date-parts":[[2023,1,24]],"date-time":"2023-01-24T09:01:32Z","timestamp":1674550892000},"page":"58-63","source":"Crossref","is-referenced-by-count":1,"title":["Transition des patients atteints d\u2019une maladie respiratoire chronique depuis la p\u00e9diatrie vers les services pour adultes"],"prefix":"10.1051","volume":"39","author":[{"given":"Marie","family":"Mittaine","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"L\u00e9a","family":"Roditis","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marion","family":"Dupuis","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"250","published-online":{"date-parts":[[2023,1,24]]},"reference":[{"key":"R1","unstructured":"Registre fran\u00e7ais de la mucoviscidose : bilan des donn\u00e9es 2020. https:\/\/www.vaincrelamuco.org\/sites\/default\/files\/rapporrt_annuel_2020_v3_0.pdf."},{"key":"R2","doi-asserted-by":"crossref","first-page":"125","DOI":"10.1183\/09031936.00166412","volume":"43","author":"Kerem","year":"2014","journal-title":"Eur Respir J"},{"key":"R3","doi-asserted-by":"crossref","first-page":"142","DOI":"10.1378\/chest.13-1926","volume":"146","author":"Quittner","year":"2014","journal-title":"Chest"},{"key":"R4","doi-asserted-by":"crossref","first-page":"1809","DOI":"10.1056\/NEJMoa1908639","volume":"381","author":"Middleton","year":"2019","journal-title":"N Engl J Med"},{"key":"R5","unstructured":"Protocole national de diagnostic et de soins pour la mucoviscidose (juillet 2017) https:\/\/www.has-sante.fr\/upload\/docs\/application\/pdf\/2017-09\/pnds_2017_vf1.pdf."},{"key":"R6","doi-asserted-by":"crossref","first-page":"70","DOI":"10.1051\/medsci\/2021245","volume":"38","author":"Dumas","year":"2022","journal-title":"Med Sci (Paris)"},{"key":"R7","doi-asserted-by":"crossref","first-page":"786","DOI":"10.1051\/medsci\/2021113","volume":"37","author":"Gerardin","year":"2021","journal-title":"Med Sci (Paris)"},{"key":"R8","doi-asserted-by":"crossref","first-page":"873","DOI":"10.1002\/ppul.22946","volume":"49","author":"Welsh","year":"2014","journal-title":"Pediatr Pulmonol"},{"issue":"Suppl 1","key":"R9","doi-asserted-by":"crossref","first-page":"i64","DOI":"10.1136\/bmjqs-2013-002364","volume":"23","author":"Okumura","year":"2014","journal-title":"BMJ Qual Saf"},{"key":"R10","doi-asserted-by":"crossref","first-page":"2000","DOI":"10.1002\/ppul.25364","volume":"56","author":"Bourgeois","year":"2021","journal-title":"Pediatr Pulmonol"},{"key":"R11","doi-asserted-by":"crossref","first-page":"887","DOI":"10.1016\/j.pcl.2016.06.010","volume":"63","author":"West","year":"2016","journal-title":"Pediatr Clin North Am"},{"key":"R12","first-page":"13","volume":"27","author":"Connett","year":"2018","journal-title":"Paediatr Respir Rev"},{"key":"R13","doi-asserted-by":"crossref","first-page":"658","DOI":"10.1002\/ppul.22647","volume":"48","author":"Chaudhry","year":"2013","journal-title":"Pediatr Pulmonol"},{"key":"R14","doi-asserted-by":"crossref","first-page":"24","DOI":"10.1097\/01823246-201324010-00004","volume":"24","author":"Packel","year":"2013","journal-title":"Cardiopulm Phys Ther J"},{"key":"R15","doi-asserted-by":"crossref","first-page":"e1639","DOI":"10.1542\/peds.2013-2830","volume":"133","author":"Huang","year":"2014","journal-title":"Pediatrics"},{"key":"R16","doi-asserted-by":"crossref","first-page":"61","DOI":"10.1007\/s00431-019-03450-4","volume":"179","author":"Mellerio","year":"2020","journal-title":"Eur J Pediatr"},{"key":"R17","doi-asserted-by":"crossref","first-page":"420","DOI":"10.1183\/13993003.00592-2015","volume":"47","author":"Elborn","year":"2016","journal-title":"Eur Respir J"},{"key":"R18","unstructured":"August 3 ET, 2019. 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