{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2024,11,19]],"date-time":"2024-11-19T05:18:52Z","timestamp":1731993532472,"version":"3.28.0"},"reference-count":16,"publisher":"EDP Sciences","license":[{"start":{"date-parts":[[2024,11,18]],"date-time":"2024-11-18T00:00:00Z","timestamp":1731888000000},"content-version":"vor","delay-in-days":17,"URL":"https:\/\/www.edpsciences.org\/en\/authors\/copyright-and-licensing"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Med Sci (Paris)"],"published-print":{"date-parts":[[2024,11]]},"abstract":"<jats:p>Les bienfaits de l\u2019activit\u00e9 physique, sur le plan organique et psychologique, sont d\u00e9montr\u00e9s. Chez les patients atteints d\u2019une maladie neuromusculaire, l\u2019activit\u00e9 physique adapt\u00e9e et le parasport sont aussi des moyens de lutter contre la s\u00e9dentarit\u00e9 qui s\u2019ajoute \u00e0 celle impos\u00e9e par la maladie.<\/jats:p>\n<jats:p>Quelles que soient les capacit\u00e9s motrices du sujet, qu\u2019il soit marchant ou non, qu\u2019il ait une bonne force des membres sup\u00e9rieurs ou seulement une minime fonction distale pr\u00e9serv\u00e9e, un parasport peut \u00eatre pratiqu\u00e9. En effet, certaines disciplines sont possibles pour des patients aux fonctions motrices tr\u00e8s faibles.<\/jats:p>\n<jats:p>Une des missions des intervenants dans le parcours de vie de la personne atteinte d\u2019une maladie neuromusculaire est d\u2019aborder ce sujet. Il est capital de faire prendre conscience de ce champ des possibles et de son importance au patient, d\u00e8s son plus jeune \u00e2ge, et \u00e0 ses aidants, tout en respectant d\u2019\u00e9ventuelles contre-indications ou inaptitudes partielles. Accompagner vers une pratique parasportive, c\u2019est devoir \u00ab\u00a0sortir de l\u2019h\u00f4pital\u00a0\u00bb et interagir avec des collaborateurs de proximit\u00e9 pour faciliter l\u2019orientation, organiser l\u2019initiation et la mise en place de l\u2019activit\u00e9 dans le quotidien du patient.<\/jats:p>\n<jats:p>Le temps accord\u00e9 au patient et \u00e0 ses aidants pour aborder ce sujet et les guider permet d\u2019illustrer la prise en charge globale aupr\u00e8s de ce patient et le souci port\u00e9 \u00e0 son inclusion et \u00e0 sa sant\u00e9 physique et mentale.<\/jats:p>","DOI":"10.1051\/medsci\/2024163","type":"journal-article","created":{"date-parts":[[2024,11,18]],"date-time":"2024-11-18T08:51:13Z","timestamp":1731919873000},"page":"12-16","source":"Crossref","is-referenced-by-count":0,"special_numbering":"Hors s\u00e9rie n\u00b0 1","title":["Parasport et maladies neuromusculaires"],"prefix":"10.1051","volume":"40","author":[{"given":"Orianne","family":"Lopez","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"250","published-online":{"date-parts":[[2024,11,18]]},"reference":[{"key":"R1","unstructured":"L\u2019exercice physique recommand\u00e9 au quotidien et la lutte contre la s\u00e9dentarit\u00e9. ameli.fr, ao\u00fbt 2024"},{"key":"R2","unstructured":"Article D1172-1 du code de la sant\u00e9 publique, https:\/\/legifrance.gouv.fr\/codes\/article_lc\/LEGIARTI000033826292"},{"key":"R3","unstructured":"Conseil de l\u2019Europe. 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