{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,13]],"date-time":"2026-06-13T10:43:14Z","timestamp":1781347394436,"version":"3.54.1"},"reference-count":31,"publisher":"Georg Thieme Verlag KG","issue":"04","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Appl Clin Inform"],"published-print":{"date-parts":[[2025,8]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>The goal of national interoperability is to improve care quality and decrease administrative burden and costs. Patients, providers, and other stakeholders are increasingly concerned that indiscriminate sharing of data may have deleterious, permanent consequences, as well as fail to provide granular control over the sharing of individual health data. Data segmentation and consent standards to date have been limited in scope and implementation, which has hindered efforts to scale data sharing preferences. Shift, an independent expert stakeholder task force, has been convened to mature standards, terminologies, and consensus-driven implementation guidance, which are prerequisites for more robust policy drivers needed to support nationwide sensitive data segmentation and consent capabilities. This paper describes Shift's framework and processes as means to advance equitable interoperability.<\/jats:p>","DOI":"10.1055\/a-2591-9129","type":"journal-article","created":{"date-parts":[[2025,8,29]],"date-time":"2025-08-29T23:20:02Z","timestamp":1756509602000},"page":"951-960","source":"Crossref","is-referenced-by-count":1,"title":["Patient-Driven Sharing of Health Information: A National Effort to Advance Equitable Interoperability"],"prefix":"10.1055","volume":"16","author":[{"given":"Hannah K.","family":"Galvin","sequence":"additional","affiliation":[{"name":"Department of Information Technology, Cambridge Health Alliance, Cambridge, Massachusetts, United States"},{"name":"Department of Pediatrics, Harvard Medical School, Boston, Massachusetts, United States"},{"name":"Department of Medicine, Tufts University School of Medicine, Boston, Massachusetts, United States"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jeff","family":"Coughlin","sequence":"additional","affiliation":[{"name":"Federal Affairs, American Medical Association, Washington, District of Columbia, United States"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marianne","family":"Sharko","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Weill Cornell Medicine, New York, New York, United States"},{"name":"Department of Population Health Sciences, Weill Cornell Medicine, New York, New York, United States"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maria A.","family":"Grando","sequence":"additional","affiliation":[{"name":"Biomedical Informatics, College of Health Solutions, Arizona State University, Phoenix, Arizona, United States"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mohammad","family":"Jafari","sequence":"additional","affiliation":[{"name":"Independent Subject Matter 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