{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,22]],"date-time":"2026-04-22T09:09:38Z","timestamp":1776848978901,"version":"3.51.2"},"reference-count":13,"publisher":"Georg Thieme Verlag KG","issue":"04","funder":[{"DOI":"10.13039\/100015348","name":"Cambia Health Foundation","doi-asserted-by":"crossref","id":[{"id":"10.13039\/100015348","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/100006108","name":"National Center for Advancing Translational Sciences","doi-asserted-by":"crossref","award":["5U24TR001579-03"],"award-info":[{"award-number":["5U24TR001579-03"]}],"id":[{"id":"10.13039\/100006108","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Appl Clin Inform"],"published-print":{"date-parts":[[2021,8]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>\n          Background\u2003In the United States, attention has been focused on \u201copen notes\u201d and \u201copen results\u201d since the Office of the National Coordinator for Health Information Technology implemented the 21st Century Cures Act Final Rule on information blocking. Open notes is an established best practice, but open results remains controversial, especially for diseases associated with stigma, morbidity, and mortality. Coronavirus disease 2019 (COVID-19) is associated with all three of these effects and represents an ideal disease for the study of open results for sensitive test results.<\/jats:p><jats:p>\n          Objectives\u2003This study evaluates patient perspectives related to receiving COVID-19 test results via an online patient portal prior to discussion with a clinician.<\/jats:p><jats:p>\n          Methods\u2003We surveyed adults who underwent COVID-19 testing between March 1, 2020 and October 21, 2020 who agreed to be directly contacted about COVID-19-related research about their perspectives on receiving test results via a patient portal. We evaluated user roles (i.e., patient vs. care partner), demographic information, ease of use, impact of immediate release, notification of results, impact of viewing results on health management, and importance of sharing results with others.<\/jats:p><jats:p>\n          Results\u2003Users were mostly patients themselves. Users found the portal easy to use but expressed mixed preferences about the means of notification of result availability (e.g., email, text, or phone call). Users found immediate access to results useful for managing their health, employment, and family\/childcare. Many users shared their results and encouraged others to get tested. Our cohort consisted mostly of non-Hispanic white, highly educated, English-speaking patients.<\/jats:p><jats:p>\n          Conclusion\u2003Overall, patients found open results useful for COVID-19 testing and few expressed increased worries from receiving their results via the patient portal. The demographics of our cohort highlight the need for further research in patient portal equity in the age of open results.<\/jats:p>","DOI":"10.1055\/s-0041-1736221","type":"journal-article","created":{"date-parts":[[2021,10,14]],"date-time":"2021-10-14T00:30:27Z","timestamp":1634171427000},"page":"954-959","source":"Crossref","is-referenced-by-count":27,"title":["Patient Perceptions of Receiving COVID-19 Test Results via an Online Patient Portal: An Open Results Survey"],"prefix":"10.1055","volume":"12","author":[{"given":"Robert W.","family":"Turer","sequence":"additional","affiliation":[{"name":"Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, Tennessee, United States"}]},{"given":"Catherine M.","family":"DesRoches","sequence":"additional","affiliation":[{"name":"Department of Medicine, Beth Israel Deaconess Medical Center, Boston, Massachusetts, United States"},{"name":"Department of Medicine, Harvard Medical School, Boston, Massachusetts, United States"}]},{"given":"Liz","family":"Salmi","sequence":"additional","affiliation":[{"name":"Department of Medicine, Beth Israel Deaconess Medical Center, Boston, Massachusetts, United States"}]},{"given":"Tara","family":"Helmer","sequence":"additional","affiliation":[{"name":"Vanderbilt Institute for Clinical and Translational Research, Vanderbilt University Medical Center, Nashville, Tennessee, United States"}]},{"given":"S Trent","family":"Rosenbloom","sequence":"additional","affiliation":[{"name":"Department of Biomedical Informatics, Vanderbilt University Medical Center, Nashville, Tennessee, United States"}]}],"member":"194","published-online":{"date-parts":[[2021,10,13]]},"reference":[{"issue":"04","key":"ref3","doi-asserted-by":"crossref","first-page":"479","DOI":"10.1093\/jamiaopen\/ooz039","article-title":"Policies and procedures governing patient portal use at an academic medical center","volume":"2","author":"B D Steitz","year":"2019","journal-title":"JAMIA Open"},{"issue":"07","key":"ref4","doi-asserted-by":"crossref","first-page":"782","DOI":"10.1016\/S1473-3099(20)30498-9","article-title":"Stigma during the COVID-19 pandemic","volume":"20","author":"S Bagcchi","year":"2020","journal-title":"Lancet Infect Dis"},{"issue":"28","key":"ref5","doi-asserted-by":"crossref","first-page":"923","DOI":"10.15585\/mmwr.mm6928e1","article-title":"Characteristics of persons who died with COVID-19 - United States, February 12-May 18, 2020","volume":"69","author":"J M Wortham","year":"2020","journal-title":"Morb Mortal Wkly Rep"},{"issue":"05","key":"ref6","doi-asserted-by":"crossref","first-page":"e13876","DOI":"10.2196\/13876","article-title":"OpenNotes after 7 years: patient experiences with ongoing access to their clinicians' outpatient visit notes","volume":"21","author":"J Walker","year":"2019","journal-title":"J Med Internet Res"},{"issue":"03","key":"ref7","doi-asserted-by":"crossref","first-page":"e201753","DOI":"10.1001\/jamanetworkopen.2020.1753","article-title":"The views and experiences of clinicians sharing medical record notes with patients","volume":"3","author":"C M DesRoches","year":"2020","journal-title":"JAMA Netw Open"},{"issue":"01","key":"ref8","doi-asserted-by":"crossref","first-page":"76","DOI":"10.1055\/s-0040-1721781","article-title":"The value of OpenNotes for pediatric patients, their families and impact on the patient-physician relationship","volume":"12","author":"C Sarabu","year":"2021","journal-title":"Appl Clin Inform"},{"issue":"06","key":"ref9","doi-asserted-by":"crossref","first-page":"e29314","DOI":"10.2196\/29314","article-title":"COVID-19 and Open Notes: a new method to enhance patient safety and trust","volume":"8","author":"C Blease","year":"2021","journal-title":"JMIR Ment Health"},{"issue":"04","key":"ref10","doi-asserted-by":"crossref","first-page":"440","DOI":"10.1093\/jamia\/ocx140","article-title":"Patient perceptions of receiving test results via online portals: a mixed-methods study","volume":"25","author":"T D Giardina","year":"2018","journal-title":"J Am Med Inform Assoc"},{"issue":"03","key":"ref11","doi-asserted-by":"crossref","first-page":"433","DOI":"10.1055\/s-0040-1713412","article-title":"Analysis of employee patient portal use and electronic health record access at an academic medical center","volume":"11","author":"L Sulieman","year":"2020","journal-title":"Appl Clin Inform"},{"key":"ref12","doi-asserted-by":"crossref","first-page":"103765","DOI":"10.1016\/j.jbi.2021.103765","article-title":"Creating and implementing a COVID-19 recruitment Data Mart","volume":"117","author":"T T Helmer","year":"2021","journal-title":"J Biomed Inform"},{"key":"ref13","doi-asserted-by":"crossref","first-page":"103208","DOI":"10.1016\/j.jbi.2019.103208","article-title":"The REDCap consortium: building an international community of software platform partners","volume":"95","author":"P A Harris","year":"2019","journal-title":"J Biomed Inform"},{"issue":"10","key":"ref14","doi-asserted-by":"crossref","first-page":"e034517","DOI":"10.1136\/bmjopen-2019-034517","article-title":"Validation of a brief scale to assess ambulatory patients' perceptions of reading visit notes: a scale development study","volume":"10","author":"J A Wright","year":"2020","journal-title":"BMJ Open"},{"issue":"06","key":"ref15","doi-asserted-by":"crossref","first-page":"786","DOI":"10.7326\/M20-6979","article-title":"Racial disparities in COVID-19 testing and outcomes : retrospective cohort study in an integrated health system","volume":"174","author":"G J Escobar","year":"2021","journal-title":"Ann Intern Med"}],"container-title":["Applied Clinical Informatics"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/www.thieme-connect.de\/products\/ejournals\/pdf\/10.1055\/s-0041-1736221.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2021,10,14]],"date-time":"2021-10-14T00:30:37Z","timestamp":1634171437000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.thieme-connect.de\/DOI\/DOI?10.1055\/s-0041-1736221"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,8]]},"references-count":13,"journal-issue":{"issue":"04","published-online":{"date-parts":[[2021,8,4]]},"published-print":{"date-parts":[[2021,8]]}},"URL":"https:\/\/doi.org\/10.1055\/s-0041-1736221","archive":["Portico","CLOCKSS"],"relation":{},"ISSN":["1869-0327"],"issn-type":[{"value":"1869-0327","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,8]]}}}