{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,6,27]],"date-time":"2025-06-27T02:08:50Z","timestamp":1750990130009},"reference-count":9,"publisher":"Georg Thieme Verlag KG","issue":"03","license":[{"start":{"date-parts":[[2022,6,29]],"date-time":"2022-06-29T00:00:00Z","timestamp":1656460800000},"content-version":"vor","delay-in-days":59,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"name":"U.S. Department of Health and Human Services, Agency for Healthcare Research and Quality","award":["75FCMC18D0047"],"award-info":[{"award-number":["75FCMC18D0047"]}]},{"name":"U.S. Department of Health and Human Services, Agency for Healthcare Research and Quality","award":["75Q80119F80005"],"award-info":[{"award-number":["75Q80119F80005"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Appl Clin Inform"],"published-print":{"date-parts":[[2022,5]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>\n          Background\u2003Partnerships among patients, families, caregivers, and clinicians are critical to helping patients lead their best lives given their specific genetics, conditions, circumstances, and the environments in which they live, work, and play. These partnerships extend to the development of health information technology, including clinical decision support (CDS). Design of these technologies, however, often occurs without a profound understanding of the true needs, wants, and concerns of patients and family members. Patient perspective is important not only for patient-facing applications but for provider-facing applications, especially those intended to support shared decision-making.<\/jats:p><jats:p>\n          Objectives\u2003Our objective is to describe models for effectively engaging patients and caregivers during CDS development and implementation and to inspire CDS developers to partner with patients and caregivers to improve the potential impact of CDS.<\/jats:p><jats:p>\n          Methods\u2003This article serves as a case study of how two patient activists successfully implemented models for engaging patients and caregivers in a federal program designed to increase the uptake of research evidence into clinical practice through CDS. Models included virtual focus groups, social media, agile software development, and attention to privacy and cybersecurity.<\/jats:p><jats:p>\n          Results\u2003Impact on the federal program has been substantial and has resulted in improved CDS training materials, new prototype CDS applications, prioritization of new functionality and features, and increased engagement of patient and caregiver communities in ongoing projects. Among these opportunities is a group of developers and patient activists dedicated and committed to exploring strategic and operational opportunities to codesign CDS applications.<\/jats:p><jats:p>\n          Conclusion\u2003Codesign and implementation of CDS can occur as a partnership among developers, implementers, patients, cybersecurity and privacy activists, and caregivers. Several approaches are viable, and an iterative process is most promising. Additional work is needed to investigate scalability of the approaches explored by this case study and to identify measures of meaningful inclusion of patients\/caregivers in CDS projects.<\/jats:p>","DOI":"10.1055\/s-0042-1750355","type":"journal-article","created":{"date-parts":[[2022,6,29]],"date-time":"2022-06-29T22:56:59Z","timestamp":1656543419000},"page":"641-646","source":"Crossref","is-referenced-by-count":15,"title":["Nothing for Me or About Me, Without Me: Codesign of Clinical Decision Support"],"prefix":"10.1055","volume":"13","author":[{"given":"Danny","family":"van Leeuwen","sequence":"additional","affiliation":[{"name":"Health Hats, Arlington, Massachusetts, United States"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michael","family":"Mittelman","sequence":"additional","affiliation":[{"name":"American Living Organ Donor Fund, Philadelphia, Pennsylvania, United States"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lacy","family":"Fabian","sequence":"additional","affiliation":[{"name":"The MITRE Corporation, McLean, Virginia, United States"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Edwin A.","family":"Lomotan","sequence":"additional","affiliation":[{"name":"Agency for Healthcare Research and Quality, Rockville, Maryland, United States"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"194","published-online":{"date-parts":[[2022,6,29]]},"reference":[{"issue":"17","key":"ref1","doi-asserted-by":"crossref","first-page":"1784","DOI":"10.1001\/jama.2021.4385","article-title":"Immunogenicity of a single dose of SARS-CoV-2 Messenger RNA vaccine in solid organ transplant recipients","volume":"325","author":"B J Boyarsky","year":"2021","journal-title":"JAMA"},{"issue":"10","key":"ref4","first-page":"42","article-title":"The five rights of clinical decision support: CDS tools helpful for meeting meaningful use","volume":"84","author":"R Campbell","year":"2016","journal-title":"J AHIMA"},{"issue":"01","key":"ref5","doi-asserted-by":"publisher","DOI":"10.35844\/001c.13244","article-title":"Participatory research methods\u2014choice points in the research process","volume":"1","author":"L M Vaughn","year":"2020","journal-title":"J Particip Res Meth"},{"issue":"01","key":"ref6","doi-asserted-by":"crossref","first-page":"112","DOI":"10.1055\/s-0040-1701253","article-title":"To Share is Human! Advancing evidence into practice through a national repository of interoperable clinical decision support","volume":"11","author":"E A Lomotan","year":"2020","journal-title":"Appl Clin Inform"},{"issue":"02","key":"ref13","doi-asserted-by":"crossref","first-page":"e0212463","DOI":"10.1371\/journal.pone.0212463","article-title":"Data model harmonization for the All Of Us Research Program: transforming i2b2 data into the OMOP common data model","volume":"14","author":"J G Klann","year":"2019","journal-title":"PLoS One"},{"issue":"01","key":"ref14","doi-asserted-by":"crossref","first-page":"179","DOI":"10.1186\/s12911-020-01200-3","article-title":"Using creative co-design to develop a decision support tool for people with malignant pleural effusion","volume":"20","author":"C Grindell","year":"2020","journal-title":"BMC Med Inform Decis Mak"},{"key":"ref15","doi-asserted-by":"crossref","first-page":"17","DOI":"10.1038\/s41746-020-0221-y","article-title":"An overview of clinical decision support systems: benefits, risks, and strategies for success","volume":"3","author":"R T Sutton","year":"2020","journal-title":"NPJ Digit Med"},{"issue":"04","key":"ref17","doi-asserted-by":"crossref","first-page":"635","DOI":"10.1055\/s-0040-1715895","article-title":"Clinical decision support for worker health: a five-site qualitative needs assessment in primary care settings","volume":"11","author":"J S Ash","year":"2020","journal-title":"Appl Clin Inform"},{"issue":"05","key":"ref18","doi-asserted-by":"crossref","first-page":"810","DOI":"10.1055\/s-0039-1697905","article-title":"Towards a maturity model for clinical decision support operations","volume":"10","author":"E W Orenstein","year":"2019","journal-title":"Appl Clin Inform"}],"container-title":["Applied Clinical Informatics"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/www.thieme-connect.de\/products\/ejournals\/pdf\/10.1055\/s-0042-1750355.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2022,7,6]],"date-time":"2022-07-06T23:09:35Z","timestamp":1657148975000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.thieme-connect.de\/DOI\/DOI?10.1055\/s-0042-1750355"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,5]]},"references-count":9,"journal-issue":{"issue":"03","published-online":{"date-parts":[[2022,5,25]]},"published-print":{"date-parts":[[2022,5]]}},"URL":"https:\/\/doi.org\/10.1055\/s-0042-1750355","archive":["Portico","CLOCKSS"],"relation":{},"ISSN":["1869-0327"],"issn-type":[{"value":"1869-0327","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,5]]}}}