{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,8]],"date-time":"2025-05-08T10:43:58Z","timestamp":1746701038769},"reference-count":28,"publisher":"Georg Thieme Verlag KG","issue":"04","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Rehabilitation (Stuttg)"],"published-print":{"date-parts":[[2020,8]]},"abstract":"Zusammenfassung<\/jats:title>\n Ziel Im Rahmen eines global angelegten Projekts (InSCI) zum Vergleich der\n Lebens- und Versorgungssituation querschnittgel\u00e4hmter Menschen in 21\n L\u00e4ndern, wurde in Deutschland eine umfassende schriftliche Datenerhebung\n (GerSCI) initiiert und durchgef\u00fchrt. Ziel war die Erhebung belastbarer\n Daten als Legitimationsgrundlage gesundheitspolitischer Entscheidungen im Sinne\n des Learning Health Systems.<\/jats:p>\n Methodik Die nationale Erhebung war als prospektive Querschnittstudie\n angelegt. Zum Einsatz kam ein teilstandardisierter Fragebogen der sowohl\n schriftlich als auch online ausgef\u00fcllt werden konnte, Die Rekrutierung\n der Teilnehmenden erfolgte \u00fcber die Krankenhausinformationssysteme von\n acht Spezialzentren f\u00fcr querschnittgel\u00e4hmte Menschen.<\/jats:p>\n Ergebnisse Die Studienpopulation (N=1479) war im Durchschnitt\n 55,3 Jahre alt (SD: 14,6) und zu 72,9% m\u00e4nnlichen Geschlechts.\n Die Zeit seit L\u00e4hmungseintritt betrug im Mittel 13,9 Jahre. Die Ursache\n der Querschnittl\u00e4hmung war zu zwei Dritteln traumatisch. Das\n L\u00e4hmungsmuster war in 51,2% eine Paraplegie. Das am\n h\u00e4ufigsten genannte querschnittl\u00e4hmungsspezifische\n gesundheitliche Problem war die St\u00f6rung der Sexualit\u00e4t.\n Medizinische Behandlungen zu dieser Problematik wurden nur selten in Anspruch\n genommen. Schwerwiegende Umweltbarrieren waren die unzureichende\n Zug\u00e4nglichkeit von Privathaushalten und \u00f6ffentlichen Orten. Von\n den befragten Personen im erwerbsf\u00e4higen Alter waren 42,5%\n berufst\u00e4tig und damit ca. 10% weniger als bspw. in der Schweiz.\n Als die 2 belastendsten Situationen im Alltag wurden das F\u00fchren intimer\n Beziehungen und die Nutzung \u00f6ffentlicher Verkehrsmittel angegeben.<\/jats:p>\n Diskussion Die gesundheitlichen Probleme der betroffenen Personen sowie\n deren medizinische Versorgung, die Umweltbarrieren als auch die\n Erwerbst\u00e4tigkeit und Schwierigkeiten bei Aktivit\u00e4ten des\n t\u00e4glichen Lebens werden an politische Entscheidungstr\u00e4ger und\n weitere Akteure herangetragen, um L\u00f6sungen zu erarbeiten.<\/jats:p>","DOI":"10.1055\/a-1071-5935","type":"journal-article","created":{"date-parts":[[2020,1,21]],"date-time":"2020-01-21T23:56:26Z","timestamp":1579650986000},"page":"205-213","source":"Crossref","is-referenced-by-count":8,"title":["Querschnittl\u00e4hmung in Deutschland \u2013 eine Befragung\n zur Lebens- und Versorgungssituation von Menschen mit\n Querschnittl\u00e4hmung"],"prefix":"10.1055","volume":"59","author":[{"given":"Andrea","family":"B\u00f6kel","sequence":"additional","affiliation":[{"name":"Klinik f\u00fcr Rehabilitationsmedizin, Medizinische\n Hochschule"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christoph","family":"Egen","sequence":"additional","affiliation":[{"name":"Klinik f\u00fcr Rehabilitationsmedizin, Medizinische\n Hochschule"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christoph","family":"Gutenbrunner","sequence":"additional","affiliation":[{"name":"Klinik f\u00fcr Rehabilitationsmedizin, Medizinische\n Hochschule"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Norbert","family":"Weidner","sequence":"additional","affiliation":[{"name":"Zentrum f\u00fcr Paraplegiologie Universit\u00e4tsklinikum\n Heidelberg"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J\u00fcrgen","family":"Moosburger","sequence":"additional","affiliation":[{"name":"Medizinisches Rehabilitationszentrum f\u00fcr\n Querschnittgel\u00e4hmte Heinrich-Sommer-Klinik Bad Wildbad"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Frank-Rainer","family":"Abel","sequence":"additional","affiliation":[{"name":"Zentrum f\u00fcr Querschnittgel\u00e4hmte Klinik Hohe Warte\n Bayreuth"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"R\u00fcdiger","family":"Rupp","sequence":"additional","affiliation":[{"name":"Klinik f\u00fcr Paraplegiologie Universit\u00e4tsklinikum\n Heidelberg"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"York-Bernhard","family":"Kalke","sequence":"additional","affiliation":[{"name":"Querschnittgel\u00e4hmtenzentrum der Universit\u00e4ts- und\n Rehabilitationskliniken Ulm"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Thomas","family":"Liebscher","sequence":"additional","affiliation":[{"name":"Behandlungszentrum f\u00fcr R\u00fcckenmarkverletzte des\n Unfallkrankenhauses Berlin"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ines","family":"Kurze","sequence":"additional","affiliation":[{"name":"Querschnittgel\u00e4hmten-Zentrum\/Klinik f\u00fcr\n Paraplegiologie und Neuro-Urologie Zentralklinikum Bad Berka"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marion","family":"Sauer","sequence":"additional","affiliation":[{"name":"Zentrum f\u00fcr Tetra- und Paraplegie der Orthop\u00e4dischen\n Klinik Hessisch Lichtenau"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Veronika","family":"Geng","sequence":"additional","affiliation":[{"name":"Manfred-Sauer-Stiftung, Lobbach"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christian","family":"Sturm","sequence":"additional","affiliation":[{"name":"Klinik f\u00fcr Rehabilitationsmedizin, Medizinische\n Hochschule"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"194","published-online":{"date-parts":[[2020,1,21]]},"reference":[{"key":"ref1","volume-title":"Querschnittl\u00e4hmung. 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