{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,3,19]],"date-time":"2025-03-19T10:02:52Z","timestamp":1742378572678,"version":"3.37.3"},"reference-count":30,"publisher":"Georg Thieme Verlag KG","issue":"04","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Z Gastroenterol"],"published-print":{"date-parts":[[2024,4]]},"abstract":"<jats:title>Zusammenfassung<\/jats:title><jats:p>\n            Hintergrund Das Vorhandensein eines Stomas kann einen erheblichen Einfluss auf die Lebensqualit\u00e4t (QoL) haben.  Das Ziel dieser Arbeit war die Erfassung der QoL von Menschen mit einem Stoma in Deutschland<\/jats:p><jats:p>\n            Methode Eine offene Internetbefragung mit Hilfe des validierten Gastrointestinalen Quality of Life Index (GIQLI) nach Eypasch wurde durchgef\u00fchrt. Eingeschlossen wurden vollst\u00e4ndig ausgef\u00fcllte Frageb\u00f6gen von Teilnehmenden \u226518 Jahren, deren Stomaoperation \u22653 Monate zur\u00fccklag.<\/jats:p><jats:p>\n            Ergebnisse Die 521 eingeschlossenen Teilnehmenden (79,3% weiblich) waren im Median 50 Jahre alt (Spanne: 19\u201383) und hatten seit 3 Jahren im Median ein Stoma (3 Monate\u201358 Jahre). Die h\u00e4ufigsten Indikationen f\u00fcr das Stoma waren Morbus Crohn (MC: 36,5%), Darmkrebs (19,8%) und Colitis Ulcerosa (CU: 18,2%). Der QoL-Score betrug durchschnittlich 94,8 \u00b1 24,6, wobei h\u00f6here Werte einer h\u00f6heren Lebensqualit\u00e4t entsprechen, bei einer Spannweite von 0 bis 144 und gesunde Menschen einen Referenzwert von 125,8 haben. Einschr\u00e4nkungen traten besonders bei dem Durchschlafen, der M\u00fcdigkeit, dem Kr\u00e4ftezustand, der Ausdauer, der Fitness und dem Sexualleben auf. Unter allen Stomatr\u00e4gern hatten Teilnehmende mit CU (103,0 \u00b1 24,5), Darmkrebs (99,2 \u00b1 21,7) und MC (95,0 \u00b1 22,8) die h\u00f6chsten GIQLI-Werte im Durchschnitt.<\/jats:p><jats:p>\n            Diskussion Die Ergebnisse dieser Studie best\u00e4tigen, dass die QoL bei Menschen mit einem Stoma schlechter ist verglichen mit Gesunden. Die Untergruppen der Stomatr\u00e4ger mit CU, MC und nach Darmkrebsoperation haben eine h\u00f6here QoL als Stomatr\u00e4ger mit anderer Ursache.<\/jats:p>","DOI":"10.1055\/a-2163-5299","type":"journal-article","created":{"date-parts":[[2023,9,26]],"date-time":"2023-09-26T22:55:18Z","timestamp":1695768918000},"page":"473-478","source":"Crossref","is-referenced-by-count":2,"title":["Lebensqualit\u00e4t von Menschen mit einem k\u00fcnstlichen Darmausgang in Deutschland"],"prefix":"10.1055","volume":"62","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6614-3480","authenticated-orcid":false,"given":"Peter C.","family":"Ambe","sequence":"additional","affiliation":[{"name":"Chair of Surgery II, Witten\/Herdecke University, Witten, Germany"},{"name":"Klinik f\u00fcr Allgemein-, Viszeralchirurgie und Koloproktologie, GFO Kliniken Rhein Berg, Vinzenz Pallotti Hospital Bensberg, Bergisch Gladbach, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jessica","family":"Breuing","sequence":"additional","affiliation":[{"name":"Institut f\u00fcr Forschung in der Operativen Medizin, Universit\u00e4t Witten\/Herdecke, Witten, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Erich","family":"Grohnmann","sequence":"additional","affiliation":[{"name":"ILCO Deutschland e.V., Bonn, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nicole","family":"Engel","sequence":"additional","affiliation":[{"name":"Beuteltiernetzwerk e.V., Kehl-Kork, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dawid","family":"Pieper","sequence":"additional","affiliation":[{"name":"Institut f\u00fcr Forschung in der Operativen Medizin, Universit\u00e4t Witten\/Herdecke, Witten, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hubert","family":"Zirngibl","sequence":"additional","affiliation":[{"name":"Chair of Surgery II, Witten\/Herdecke University, Witten, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Charlotte","family":"Kugler","sequence":"additional","affiliation":[{"name":"Institut f\u00fcr Forschung in der Operativen Medizin, Universit\u00e4t Witten\/Herdecke, Witten, Germany"},{"name":"Institut f\u00fcr Versorgungs- und Gesundheitssystemforschung, Fakult\u00e4t f\u00fcr Gesundheitswissenschaften Brandenburg, Medizinische Hochschule Brandenburg, Brandenburg, Germany"},{"name":"Zentrum f\u00fcr Versorgungsforschung Brandenburg, Medizinische Hochschule Brandenburg CAMPUS GmbH, Neuruppin, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"194","published-online":{"date-parts":[[2023,9,26]]},"reference":[{"issue":"11","key":"ref1","doi-asserted-by":"publisher","first-page":"182","DOI":"10.3238\/arztebl.2018.0182","article-title":"Intestinal Ostomy","volume":"115","author":"PC Ambe","year":"2018","journal-title":"Dtsch Arztebl Int"},{"issue":"03","key":"ref2","doi-asserted-by":"publisher","first-page":"171","DOI":"10.1055\/s-0038-1677004","article-title":"Complications and Dilemmas in Colorectal Surgery: Diverting Ostomy: For Whom, When, What, Where, and Why","volume":"32","author":"A Plasencia","year":"2019","journal-title":"Clinics in colon and rectal surgery"},{"issue":"04","key":"ref3","doi-asserted-by":"crossref","first-page":"481","DOI":"10.1586\/era.12.3","article-title":"Multimodal treatment strategies for locally advanced rectal cancer","volume":"12","author":"GF Weber","year":"2012","journal-title":"Expert review of anticancer therapy"},{"issue":"11","key":"ref4","doi-asserted-by":"crossref","first-page":"961","DOI":"10.1177\/000313480206801106","article-title":"Stoma complications: A multivariate analysis\/discussion","volume":"68","author":"JC Duchesne","year":"2002","journal-title":"The American Surgeon"},{"issue":"03","key":"ref5","first-page":"385","article-title":"Strategien zur Vermeidung stomaassoziierter Komplikationen","volume":"87","author":"AC Peter","year":"2020","journal-title":"Chirurgische Praxis"},{"key":"ref6","doi-asserted-by":"crossref","first-page":"33","DOI":"10.1007\/978-3-662-59123-9_4","volume-title":"Stomakomplikationen. 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