{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,9,11]],"date-time":"2025-09-11T18:57:05Z","timestamp":1757617025991,"version":"3.44.0"},"reference-count":9,"publisher":"Georg Thieme Verlag KG","issue":"05","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Klin Padiatr"],"published-print":{"date-parts":[[2025,9]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>\n               Background Medical devices are important components of medical care.\n                    Therefore, they must be safe and useful for patients. This study aimed to\n                    analyze the situation of children with central venous catheters (CVCs) for\n                    long-term parenteral nutrition from the parents\u2019 perspective with\n                    respect to patient safety and usefulness.<\/jats:p><jats:p>\n               Methods An online cross-sectional survey was conducted using a\n                    quantitative research approach, with a German patient support group for children\n                    with chronic intestinal failure.<\/jats:p><jats:p>\n               Results 61 responses were collected between November 202 and January 2021.\n                    Concerning the usability of the CVCs, the caregivers assessed overall\n                    satisfaction, patient safety, usability, learnability of handling,\n                    \u201cself-explanatory ability, \u201c and mental load. Furthermore,\n                    various suggestions for improvements have been documented.<\/jats:p><jats:p>\n               Conclusion Although CVCs can cause a variety of complications in the\n                    context of long-term use, the usage for parents in everyday life is feasible.\n                    Insufficient fixation and protection outside of the body have been identified as\n                    unmet clinical needs. In addition to the underlying disease of chronic\n                    intestinal failure, the catheter adds an extra mental burden to\n                    families\u2019 lives. Furthermore, parents articulated the need for further\n                    information and training.<\/jats:p>","DOI":"10.1055\/a-2196-8630","type":"journal-article","created":{"date-parts":[[2023,11,16]],"date-time":"2023-11-16T19:37:34Z","timestamp":1700163454000},"page":"285-293","source":"Crossref","is-referenced-by-count":0,"title":["About the Usage and Usability of Central Venous Catheters in Children\n                    with TPN: the Parents\u2019 Viewpoint"],"prefix":"10.1055","volume":"237","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7997-6396","authenticated-orcid":false,"given":"Ludger","family":"T\u00fcshaus","sequence":"additional","affiliation":[{"name":"Department of Pediatric Surgery, University Medical Center Schleswig\n                    Holstein L\u00fcbeck Campus, Lubeck, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kathrin","family":"Kelly","sequence":"additional","affiliation":[{"name":"Department of Pediatric Surgery, University Medical Center Schleswig\n                    Holstein L\u00fcbeck Campus, Lubeck, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Julia","family":"Siebert","sequence":"additional","affiliation":[{"name":"Department of Pediatric Surgery, University Medical Center Schleswig\n                    Holstein L\u00fcbeck Campus, Lubeck, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Martina","family":"Kohl-Sobania","sequence":"additional","affiliation":[{"name":"Department of Pediatrics and Adolescent Medicine, University Medical\n                    Center Schleswig Holstein L\u00fcbeck Campus, Lubeck, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"194","published-online":{"date-parts":[[2023,11,16]]},"reference":[{"key":"ref1","doi-asserted-by":"crossref","first-page":"666","DOI":"10.1056\/NEJMra1602650","article-title":"Pediatric Intestinal Failure","volume":"377","author":"C P Duggan","year":"2017","journal-title":"N Engl J Med"},{"key":"ref2","doi-asserted-by":"crossref","first-page":"1001","DOI":"10.17219\/acem\/37359","article-title":"The use of central venous lines in the treatment of chronically ill\n                    children","volume":"23","author":"E Barczykowska","year":"2014","journal-title":"Adv Clin Exp Med"},{"key":"ref3","first-page":"602","article-title":"A silicone rubber atrial catheter for prolonged parenteral alimentation","volume":"136","author":"J W Broviac","year":"1973","journal-title":"Surg Gynecol Obstet"},{"key":"ref4","first-page":"871","article-title":"A modified right atrial catheter for access to the venous system in marrow\n                    transplant recipients","volume":"148","author":"R O Hickman","year":"1979","journal-title":"Surg Gynecol Obstet"},{"key":"ref6","doi-asserted-by":"crossref","first-page":"e1331","DOI":"10.1542\/peds.2015-1507","article-title":"Complications of Central Venous Access Devices: A Systematic Review","volume":"136","author":"A J Ullman","year":"2015","journal-title":"Pediatrics"},{"key":"ref7","doi-asserted-by":"crossref","first-page":"e34","DOI":"10.2196\/jmir.6.3.e34","article-title":"Improving the quality of Web surveys: the Checklist for Reporting Results of\n                    Internet E-Surveys (CHERRIES)","volume":"6","author":"G Eysenbach","year":"2004","journal-title":"J Med Internet Res"},{"key":"ref8","doi-asserted-by":"crossref","first-page":"S5","DOI":"10.1053\/j.gastro.2005.07.063","article-title":"Etiology and initial management of short bowel syndrome","volume":"130","author":"A L Buchman","year":"2006","journal-title":"Gastroenterology"},{"key":"ref9","doi-asserted-by":"crossref","first-page":"237","DOI":"10.1016\/j.jpeds.2018.01.035","article-title":"Central Line-Associated Bloodstream Infection among Children with Intestinal\n                    Failure Presenting to the Emergency Department with Fever","volume":"196","author":"M Eisenberg","year":"2018","journal-title":"J Pediatr"},{"key":"ref10","doi-asserted-by":"crossref","first-page":"103769","DOI":"10.1016\/j.apergo.2022.103769","article-title":"Usability challenges in the use of medical devices in the home environment: A\n                    systematic review of literature","volume":"103","author":"A Tase","year":"2022","journal-title":"Appl Ergon"}],"container-title":["Klinische P\u00e4diatrie"],"original-title":[],"language":"de","link":[{"URL":"http:\/\/www.thieme-connect.de\/products\/ejournals\/pdf\/10.1055\/a-2196-8630.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,9,5]],"date-time":"2025-09-05T22:37:38Z","timestamp":1757111858000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.thieme-connect.de\/DOI\/DOI?10.1055\/a-2196-8630"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,11,16]]},"references-count":9,"journal-issue":{"issue":"05","published-online":{"date-parts":[[2025,9,5]]},"published-print":{"date-parts":[[2025,9]]}},"URL":"https:\/\/doi.org\/10.1055\/a-2196-8630","archive":["Portico","CLOCKSS"],"relation":{},"ISSN":["0300-8630","1439-3824"],"issn-type":[{"type":"print","value":"0300-8630"},{"type":"electronic","value":"1439-3824"}],"subject":[],"published":{"date-parts":[[2023,11,16]]}}}