{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,17]],"date-time":"2026-08-17T22:14:22Z","timestamp":1787004862502,"version":"build-2736575974"},"reference-count":25,"publisher":"Georg Thieme Verlag KG","issue":"05","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Z Geburtshilfe Neonatol"],"published-print":{"date-parts":[[2024,10]]},"abstract":"<jats:title>Zusammenfassung<\/jats:title>\n                  <jats:p>Hintergrund Verschiedene Studien haben gezeigt, dass die\n                    Zugeh\u00f6rigkeit zu einer Berufsgruppe Einfluss auf ethische Einstellungen\n                    hat. Ziel dieser Untersuchung war es, die Haltung und Vorgehensweise von\n                    Geburtshelfern und Pr\u00e4nataldiagnostikern in perinatologischen\n                    Konfliktsituationen zu erfassen und zu vergleichen.<\/jats:p>\n                  <jats:p>Methoden Explorative\n                    Querschnittsstudie anhand einer online Befragung unter deutschen\n                    Perinatalzentren Level I und Pr\u00e4nataldiagnostikern mit DEGUM-Level\n                    II\/III. Erfragt wurden ethische Grundeinstellungen im perinatologischen\n                    Kontext sowie die Fallvignette eines fetalen hypoplastischen Linksherzsyndromes.<\/jats:p>\n                  <jats:p>Ergebnisse Die Antwortrate betrug 57,1% (310\/543).\n                    55% der Befragten waren sowohl geburtshilflich als auch\n                    pr\u00e4nataldiagnostisch, 24,5% ausschlie\u00dflich\n                    pr\u00e4nataldiagnostisch und 14,2% rein geburtshilflich\n                    t\u00e4tig. 27% stimmten der Aussage zu \u201eEine ungewisse\n                    Prognose rechtfertigt einen Schwangerschaftsabbruch\u201c, wobei\n                    Pr\u00e4nataldiagnostiker diese Ansicht deutlich h\u00e4ufiger teilten als\n                    Geburtshelfer. Eine gemeinsame interdisziplin\u00e4re Beratung bei einer\n                    komplexen fetalen Fehlbildung bef\u00fcrworteten 98,3%. Im Falle\n                    eines hypoplastischen Linksherzsyndroms w\u00fcrden 84,3% aller\n                    Befragten die Option einer postnatal palliativen Behandlung ansprechen,\n                    w\u00e4hrend einen Fetozid 57,7% der Pr\u00e4nataldiagnostiker,\n                    aber nur 34,1% der Geburtshelfer mit den Eltern diskutieren\n                    w\u00fcrden.<\/jats:p>\n                  <jats:p>Zusammenfassung\n                    Eine interdisziplin\u00e4re\n                    pr\u00e4natale Elternberatung bei komplexen fetalen Fehlbildungen wird von\n                    nahezu allen Pr\u00e4nataldiagnostikern und Geburtshelfern in Deutschland\n                    bef\u00fcrwortet. Zwischen den Spezialisten zeigen sich jedoch\n                    unterschiedliche Haltungen bez\u00fcglich der Optionen einer\n                    Schwangerschaftsbeendigung.<\/jats:p>","DOI":"10.1055\/a-2217-9635","type":"journal-article","created":{"date-parts":[[2024,1,22]],"date-time":"2024-01-22T19:14:00Z","timestamp":1705950840000},"page":"419-426","source":"Crossref","is-referenced-by-count":1,"title":["Ethische Haltungen und Umgang in pr\u00e4natalen\n                    Konfliktsituationen \u2013 eine Umfrage unter Geburtshelfern und\n                    Pr\u00e4nataldiagnostikern in Deutschland"],"prefix":"10.1055","volume":"228","author":[{"given":"Katja","family":"Schneider","sequence":"additional","affiliation":[{"name":"Klinik f\u00fcr Neonatologie, Charit\u00e9\n                    Universit\u00e4tsmedizin Berlin, Berlin, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Johanna","family":"M\u00fcller","sequence":"additional","affiliation":[{"name":"Klinik f\u00fcr Geburtsmedizin, Universit\u00e4tsklinikum Jena,\n                    Jena, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tatjana","family":"Tissen-Diabat\u00e9","sequence":"additional","affiliation":[{"name":"Institut f\u00fcr Sozialmedizin, Epidemiologie und\n                    Gesundheits\u00f6konomie, Charit\u00e9 Universit\u00e4tsmedizin Berlin,\n                    Berlin, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ekkehard","family":"Schleu\u00dfner","sequence":"additional","affiliation":[{"name":"Klinik f\u00fcr Geburtsmedizin, Universit\u00e4tsklinikum Jena,\n                    Jena, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"194","published-online":{"date-parts":[[2024,1,22]]},"reference":[{"key":"ref1","doi-asserted-by":"publisher","first-page":"e566","DOI":"10.1542\/peds.2012-1957.","article-title":"Parental explicit heuristics in decision-making for children with\n                    life-threatening illnesses","volume":"131","author":"C B Renjilian","year":"2013","journal-title":"Pediatrics"},{"key":"ref4","doi-asserted-by":"publisher","first-page":"1224","DOI":"10.1111\/hex.13103.","article-title":"The impact of prenatal counselling on mothers of surviving children with\n                    hypoplastic left heart syndrome: A qualitative interview study","volume":"23","author":"S Bertaud","year":"2020","journal-title":"Health Expect"},{"key":"ref5","doi-asserted-by":"publisher","first-page":"1107","DOI":"10.1007\/s00431-017-2952-6","article-title":"Professionals' preferences in prenatal counseling at the limits of\n                    viability: a nationwide qualitative Dutch study","volume":"176","author":"R Geurtzen","year":"2017","journal-title":"Eur J Pediatr"},{"key":"ref6","doi-asserted-by":"publisher","first-page":"1789","DOI":"10.1038\/s41372-020-00796-8.","article-title":"Joint periviability counseling between neonatology and obstetrics is a rare\n                    occurrence","volume":"40","author":"R Reed","year":"2020","journal-title":"J Perinatol"},{"key":"ref7","doi-asserted-by":"publisher","first-page":"e1534","DOI":"10.1542\/peds.2012-1352.","article-title":"Differing attitudes toward fetal care by pediatric and maternal-fetal medicine\n                    specialists","volume":"130","author":"S D Brown","year":"2012","journal-title":"Pediatrics"},{"key":"ref8","doi-asserted-by":"publisher","first-page":"344","DOI":"10.1038\/jp.2014.213.","article-title":"Comparing obstetricians\u0313 and neonatologists\u0313 approaches to periviable\n                    counseling","volume":"35","author":"B Tucker Edmonds","year":"2015","journal-title":"J Perinatol"},{"key":"ref9","doi-asserted-by":"publisher","first-page":"81","DOI":"10.1186\/s12887-018-1040-z","article-title":"Swiss Neonatal End-of-Life Study Group. Decision-making at the limit of\n                    viability: differing perceptions and opinions between neonatal physicians and\n                    nurses","volume":"18","author":"H U Bucher","year":"2018","journal-title":"BMC Pediatr"},{"key":"ref10","doi-asserted-by":"publisher","first-page":"2074","DOI":"10.1111\/apa.15828.","article-title":"Swiss neonatal caregivers express diverging views on parental involvement in\n                    shared decision-making for extremely premature infants","volume":"110","author":"J C Fauch\u00e8re","year":"2021","journal-title":"Acta Paediatr"},{"key":"ref11","doi-asserted-by":"publisher","first-page":"e86","DOI":"10.1093\/pch\/17.8.e86.","article-title":"Health care professionals' attitudes about pregnancy termination for\n                    different fetal anomalies","volume":"17","author":"A Janvier","year":"2012","journal-title":"Paediatr Child Health"},{"key":"ref12","doi-asserted-by":"publisher","first-page":"74","DOI":"10.1111\/aogs.13967.","article-title":"Healthcare professionals\u0313 attitudes towards termination of pregnancy at viable\n                    stage","volume":"100","author":"E Roets","year":"2021","journal-title":"Acta Obstet Gynecol Scand"},{"key":"ref13","doi-asserted-by":"publisher","first-page":"e020815","DOI":"10.1136\/bmjopen-2017-020815","article-title":"Negotiating acceptable termination of pregnancy for non-lethal fetal anomaly: a\n                    qualitative study of professional perspectives","volume":"8","author":"L Crowe","year":"2018","journal-title":"BMJ Open"},{"key":"ref14","doi-asserted-by":"publisher","first-page":"1815","DOI":"10.1016\/s0140-6736(09)62050-x.","article-title":"Disability and the training of health professionals","volume":"374","author":"T Shakespeare","year":"2009","journal-title":"Lancet"},{"key":"ref15","doi-asserted-by":"publisher","first-page":"56","DOI":"10.1186\/s12910-019-0393-7.","article-title":"Parental decision-making following a prenatal diagnosis that is lethal,\n                    life-limiting, or has long term implications for the future child and family: a\n                    meta-synthesis of qualitative literature","volume":"20","author":"C Blakeley","year":"2019","journal-title":"BMC Med Ethics"},{"key":"ref16","doi-asserted-by":"publisher","first-page":"593","DOI":"10.1056\/NEJMsa065316.","article-title":"Religion, conscience, and controversial clinical practices","volume":"356","author":"F A Curlin","year":"2007","journal-title":"N Engl J Med"},{"key":"ref18","doi-asserted-by":"publisher","first-page":"946","DOI":"10.1007\/s00246-017-1601-1.","article-title":"Counseling Practices for Fetal Hypoplastic Left Heart Syndrome","volume":"38","author":"M J Walsh","year":"2017","journal-title":"Pediatr Cardiol"},{"key":"ref19","doi-asserted-by":"publisher","first-page":"948","DOI":"10.1186\/s12884-022-05255-0","article-title":"Parental information about the option to apply for pregnancy termination after\n                    the detection of a congenital abnormality and factors influencing parental\n                    decision-making: a cohort study","volume":"22","author":"K Hjort-Pedersen","year":"2022","journal-title":"BMC Pregnancy Childbirth"},{"key":"ref20","doi-asserted-by":"publisher","first-page":"1402","DOI":"10.1007\/s00246-012-0366-9","article-title":"Prenatal diagnosis of hypoplastic left heart syndrome: impact of counseling\n                    patterns on parental perceptions and decisions regarding termination of\n                    pregnancy","volume":"33","author":"D Hilton-Kamm","year":"2012","journal-title":"Pediatr Cardiol"},{"key":"ref21","doi-asserted-by":"publisher","first-page":"239","DOI":"10.1007\/s00246-013-0765-6","article-title":"How not to tell parents about their child's new diagnosis of congenital\n                    heart disease: an Internet survey of 841 parents","volume":"35","author":"D Hilton-Kamm","year":"2014","journal-title":"Pediatr Cardiol"},{"key":"ref22","volume-title":"Klinische Angebote zum Schwangerschaftsabbruch im zweiten und dritten Trimenon\n                    (KAST). Abschlussbericht des Forschungsprojekts im Zeitraum 1. August bis 31.\n                    Dezember 2021. In: Pro Familia Hintergrund","author":"M B\u00f6hm","year":"2022"},{"key":"ref23","doi-asserted-by":"crossref","first-page":"309","DOI":"10.1007\/s00481-023-00759-5","article-title":"Kommentar II zum Fall: \u201eSeelische Notlage und sp\u00e4ter\n                    Schwangerschaftsabbruch\u201c","volume":"35","author":"D Schmitz","year":"2023","journal-title":"Ethik Med"},{"key":"ref25","doi-asserted-by":"publisher","first-page":"321","DOI":"10.1111\/j.1440-1754.2007.01265.x.","article-title":"Outcomes of management decisions by parents for their infants with hypoplastic\n                    left heart syndrome born with and without a prenatal diagnosis","volume":"44","author":"J Tibballs","year":"2008","journal-title":"J Paediatr Child Health"},{"key":"ref26","doi-asserted-by":"publisher","first-page":"829","DOI":"10.1001\/jamacardio.2018.2009.","article-title":"Live-Born Major Congenital Heart Disease in Denmark: Incidence, Detection Rate,\n                    and Termination of Pregnancy Rate From 1996 to 2013","volume":"3","author":"R Lytzen","year":"2018","journal-title":"JAMA Cardiol"},{"key":"ref27","doi-asserted-by":"publisher","first-page":"e010893","DOI":"10.1161\/JAHA.118.010893.","article-title":"Changing Epidemiology of Hypoplastic Left Heart Syndrome: Results of a National\n                    Swedish Cohort Study","volume":"8","author":"A \u00d6hman","year":"2019","journal-title":"J Am Heart Assoc"},{"key":"ref28","doi-asserted-by":"publisher","first-page":"67","DOI":"10.1080\/15265161.2017.1314051.","article-title":"Growing Discomfort With Comfort Care for Hypoplastic Left Heart Syndrome: Why We\n                    Should Still Defer to Parental Wishes","volume":"17","author":"E A Paul","year":"2017","journal-title":"Am J Bioeth"},{"key":"ref29","doi-asserted-by":"publisher","first-page":"1446","DOI":"10.1007\/s00246-016-1455-y.","article-title":"Hypoplastic Left Heart Syndrome: Exploring a Paradigm Shift in Favor of\n                    Surgery","volume":"37","author":"E A Paul","year":"2016","journal-title":"Pediatr Cardiol"}],"container-title":["Zeitschrift f\u00fcr Geburtshilfe und Neonatologie"],"original-title":[],"language":"de","link":[{"URL":"http:\/\/www.thieme-connect.de\/products\/ejournals\/pdf\/10.1055\/a-2217-9635.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,11,5]],"date-time":"2024-11-05T09:54:46Z","timestamp":1730800486000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.thieme-connect.de\/DOI\/DOI?10.1055\/a-2217-9635"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,1,22]]},"references-count":25,"journal-issue":{"issue":"05","published-online":{"date-parts":[[2024,10,4]]},"published-print":{"date-parts":[[2024,10]]}},"URL":"https:\/\/doi.org\/10.1055\/a-2217-9635","archive":["Portico","CLOCKSS"],"relation":{},"ISSN":["0948-2393","1439-1651"],"issn-type":[{"value":"0948-2393","type":"print"},{"value":"1439-1651","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,1,22]]}}}