{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,15]],"date-time":"2025-12-15T13:42:14Z","timestamp":1765806134926,"version":"build-2065373602"},"reference-count":43,"publisher":"Georg Thieme Verlag KG","issue":"11","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Psychother Psychosom Med Psychol"],"published-print":{"date-parts":[[2025,11]]},"abstract":"<jats:title>Zusammenfassung<\/jats:title>\n                  <jats:p>ALS ist eine infauste Erkrankung, die Angeh\u00f6rige durch hohen Pflegeaufwand\n                        stark belastet. Zur konkreten Ausgestaltung psychologischer\n                        Unterst\u00fctzungsangebote f\u00fcr pflegende Angeh\u00f6rige von ALS-Patient*innen liegt\n                        bislang wenig Forschung vor. Ziel der vorliegenden Studie ist es, neben der\n                        Erfassung der allgemeinen psychosozialen Bed\u00fcrfnisse von pflegenden\n                        Angeh\u00f6rigen konkrete inhaltliche Themen und Rahmenbedingungen eines\n                        Unterst\u00fctzungsangebotes zu erfassen.<\/jats:p>\n                  <jats:p>Die Untersuchung basiert auf einem Teildatensatz qualitativer Daten einer\n                        partizipativen, Mixed-Methods-Beobachtungsstudie, in deren Rahmen wir\n                        einst\u00fcndige, semi-strukturierte Interviews mit Angeh\u00f6rigen von\n                        ALS-Patient*innen durchf\u00fchrten. Die Interviews wurden online oder in Pr\u00e4senz\n                        durchgef\u00fchrt und nach der qualitativen Inhaltsanalyse von Mayring\n                        analysiert.<\/jats:p>\n                  <jats:p>Es wurden vier pflegende Angeh\u00f6rige interviewt. Die Angeh\u00f6rigen gaben ein\n                        hohes Bed\u00fcrfnis an psychologischer Unterst\u00fctzung an, insbesondere\n                        unmittelbar nach Diagnosestellung. Emotionale Entlastung durch den Austausch\n                        mit Psycholog*innen, Strategien zur Emotionsregulation und die F\u00f6rderung der\n                        Selbstf\u00fcrsorge wurden h\u00e4ufig als wichtige und w\u00fcnschenswerte Themen genannt.\n                        Praktische Bed\u00fcrfnisse umfassten klare Leitf\u00e4den zur Organisation der\n                        Pflege, Unterst\u00fctzung im Umgang mit medizinischen Ger\u00e4ten sowie die\n                        Entwicklung von Begleitangeboten, die in herausfordernden Lebenssituationen\n                        Hilfe bei der Lebensgestaltung und Zukunftsplanung bieten. Es wurde\n                        deutlich, dass Unterst\u00fctzungsangebote flexibel, niedrigschwellig und\n                        individuell gestaltet werden sollten. Die Angeh\u00f6rigen pr\u00e4ferierten\n                        Einzelsitzungen mit den Wahloptionen in Pr\u00e4senz oder online. Eine\n                        kontinuierliche Begleitung \u00fcber den gesamten Krankheitsverlauf, insbesondere\n                        in kritischen Phasen, wurde von den Angeh\u00f6rigen als essenziell\n                        beschrieben.<\/jats:p>\n                  <jats:p>Die Ergebnisse unserer Studie verdeutlichen die psychosozialen\n                        Herausforderungen f\u00fcr Angeh\u00f6rige von ALS-Patient*innen. Die Befunde\n                        unterstreichen den Bedarf an umfassenden Unterst\u00fctzungssystemen, die sowohl\n                        die emotionalen als auch die praktischen Bed\u00fcrfnisse pflegender Angeh\u00f6riger\n                        ber\u00fccksichtigen.<\/jats:p>","DOI":"10.1055\/a-2679-1065","type":"journal-article","created":{"date-parts":[[2025,9,5]],"date-time":"2025-09-05T22:46:17Z","timestamp":1757112377000},"page":"447-456","source":"Crossref","is-referenced-by-count":1,"title":["Psychosoziale Unterst\u00fctzungsbed\u00fcrfnisse und Anforderungen an\n                    Unterst\u00fctzungsprogramme f\u00fcr pflegende Angeh\u00f6rige von ALS-Patient*innen \u2013 Eine\n                    qualitative Analyse aus dem Projekt \u201epotentiALS\u201c"],"prefix":"10.1055","volume":"75","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7980-484X","authenticated-orcid":false,"given":"Svenja","family":"Heyne","sequence":"additional","affiliation":[{"name":"Abteilung f\u00fcr Medizinische Psychologie und Medizinische Soziologie,\n                    Universit\u00e4tsklinikum Leipzig"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Adelina","family":"Kuzmanova","sequence":"additional","affiliation":[{"name":"Abteilung f\u00fcr Medizinische Psychologie und Medizinische Soziologie,\n                    Universit\u00e4tsklinikum Leipzig"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Peter","family":"Esser","sequence":"additional","affiliation":[{"name":"Klinik f\u00fcr Psychosomatik, Klinik Angerm\u00fchle GmbH,\n                    Deggendorf"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6872-9805","authenticated-orcid":false,"given":"Anja","family":"Mehnert-Theuerkauf","sequence":"additional","affiliation":[{"name":"Abteilung f\u00fcr Medizinische Psychologie und Medizinische Soziologie,\n                    Universit\u00e4tsklinikum Leipzig"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Moritz","family":"Metelmann","sequence":"additional","affiliation":[{"name":"Klinik und Poliklinik f\u00fcr Neurologie, Universit\u00e4tsklinikum\n                    Leipzig"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"194","published-online":{"date-parts":[[2025,9,5]]},"reference":[{"key":"ref1","doi-asserted-by":"publisher","first-page":"749","DOI":"10.1007\/s00415-017-8413-3","article-title":"Epidemiology of amyotrophic lateral sclerosis in Southern Germany","volume":"264","author":"A Rosenbohm","year":"2017","journal-title":"J Neurol"},{"key":"ref2","doi-asserted-by":"publisher","first-page":"2084","DOI":"10.1016\/S0140-6736(17)31287-4","article-title":"Amyotrophic lateral sclerosis","volume":"390","author":"M A van Es","year":"2017","journal-title":"Lancet"},{"key":"ref3","doi-asserted-by":"publisher","first-page":"1688","DOI":"10.1056\/NEJM200105313442207","article-title":"Amyotrophic 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