{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,28]],"date-time":"2026-09-28T09:00:10Z","timestamp":1790586010485,"version":"4.1.0"},"reference-count":26,"publisher":"Georg Thieme Verlag KG","license":[{"start":{"date-parts":[[2026,9,14]],"date-time":"2026-09-14T00:00:00Z","timestamp":1789344000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Gesundheitswesen"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:p>The model project \u201cPost-COVID Kids Bavaria\u201d aimed to provide comprehensive\n                        healthcare care for children and young people (CYP) with post-COVID-19\n                        syndrome (PCS). The multi-method evaluation included stakeholder workshops\n                        with CYP and their parents as well as healthcare providers.<\/jats:p>\n                  <jats:p>The objective of this study was to collaboratively evaluate the care provided\n                        in the model project and to identify potential areas for improving care.<\/jats:p>\n                  <jats:p>Three online workshops were conducted, each lasting two hours, with a total\n                        of 26 participants (3 CYP, 10 parents, 13 healthcare providers). The\n                        workshops followed the methodology of \u201cfuture workshops\u201d, including distinct\n                        phases: preparation, critique, fantasy and implementation. Results were\n                        documented using digital padlets and detailed written minutes. The data were\n                        analyzed using qualitative content analysis.<\/jats:p>\n                  <jats:p>CYP with PCS, their parents and healthcare professionals expressed needs for\n                        improvement regarding the scope of the diagnostic process, knowledge of\n                        healthcare professionals, patient information and communication, access to\n                        and continuity of healthcare, effective therapies, social participation and\n                        education as well as financial, legal and structural conditions. CYP and\n                        their parents additionally pointed to the importance of centralized\n                        healthcare coordination. Healthcare professionals addressed potential\n                        improvements through digital solutions and increased cooperation between the\n                        outpatient and inpatient sectors, as well as between stakeholders in\n                        education and medicine. Specific ideas were developed concerning access to\n                        healthcare (e.\u2009g., map of healthcare services), continuity of healthcare\n                        (e.\u2009g. training and certification), quality of healthcare and\n                        patient\/layperson education (information materials, also on complex\n                        topics).<\/jats:p>\n                  <jats:p>The participants reported that the model project had facilitated access to\n                        diagnosis and specialized healthcare for CYP with PCS. However, need for\n                        healthcare improvement was perceived on different levels, among others\n                        regarding access to healthcare. The issues raised by CYP\/ their parents\n                        partly differed from those of healthcare professionals; sometimes they\n                        complemented each other. Some workshops yielded solutions that should be\n                        taken into account when planning future care for CYP affected by PCS.<\/jats:p>","DOI":"10.1055\/a-2846-4412","type":"journal-article","created":{"date-parts":[[2026,9,28]],"date-time":"2026-09-28T08:41:40Z","timestamp":1790584900000},"source":"Crossref","is-referenced-by-count":0,"title":["Potentials for improving the healthcare for young people with\n                    post-COVID-19 syndrome: Analysis of stakeholder workshops on the model project\n                    Post-COVID Kids Bavaria"],"prefix":"10.1055","author":[{"given":"Mara Linnea","family":"K\u00f6nig","sequence":"additional","affiliation":[{"name":"Klinik und Poliklinik f\u00fcr Kinder- und Jugendmedizin der Universit\u00e4t\n                    Regensburg (KUNO-Kliniken), Regensburg, Deutschland"},{"name":"Wissenschafts- und Entwicklungs-Campus Regensburg, Barmherzige Br\u00fcder\n                    Klinik St Hedwig Regensburg, Regensburg, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maja","family":"Pawellek","sequence":"additional","affiliation":[{"name":"Klinik und Poliklinik f\u00fcr Kinder- und Jugendmedizin der Universit\u00e4t\n                    Regensburg (KUNO-Kliniken), Regensburg, Deutschland"},{"name":"Wissenschafts- und Entwicklungs-Campus Regensburg, Barmherzige Br\u00fcder\n                    Klinik St Hedwig Regensburg, Regensburg, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Chiara","family":"Rathgeb","sequence":"additional","affiliation":[{"name":"Wissenschafts- und Entwicklungs-Campus Regensburg, Barmherzige Br\u00fcder\n                    Klinik St Hedwig Regensburg, Regensburg, Germany"},{"name":"Lehrstuhl f\u00fcr Public Health und Versorgungsforschung, Institut f\u00fcr\n                    Medizinische Informationsverarbeitung, Biometrie und Epidemiologie (IBE),\n                    Medizinische Fakult\u00e4t, LMU M\u00fcnchen, M\u00fcnchen, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Uta","family":"Behrends","sequence":"additional","affiliation":[{"name":"Klinik und Poliklinik f\u00fcr Kinder- und Jugendmedizin, M\u00fcnchner\n                    Chronische Fatigue Zentrum (MCFC) f\u00fcr junge Menschen, Klinikum rechts der Isar\n                    der Technischen Universit\u00e4t M\u00fcnchen, M\u00fcnchen, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael","family":"Kabesch","sequence":"additional","affiliation":[{"name":"Klinik und Poliklinik f\u00fcr Kinder- und Jugendmedizin der Universit\u00e4t\n                    Regensburg (KUNO-Kliniken), Regensburg, Deutschland"},{"name":"Wissenschafts- und Entwicklungs-Campus Regensburg, Barmherzige Br\u00fcder\n                    Klinik St Hedwig Regensburg, Regensburg, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christian","family":"Apfelbacher","sequence":"additional","affiliation":[{"name":"Wissenschafts- und Entwicklungs-Campus Regensburg, Barmherzige Br\u00fcder\n                    Klinik St Hedwig Regensburg, Regensburg, Germany"},{"name":"Institut f\u00fcr Sozialmedizin und Gesundheitssystemforschung, Otto von\n                    Guericke Universit\u00e4t Magdeburg, Magdeburg, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susanne","family":"Brandstetter","sequence":"additional","affiliation":[{"name":"Klinik und Poliklinik f\u00fcr Kinder- und Jugendmedizin der Universit\u00e4t\n                    Regensburg (KUNO-Kliniken), Regensburg, Deutschland"},{"name":"Wissenschafts- und Entwicklungs-Campus Regensburg, Barmherzige Br\u00fcder\n                    Klinik St Hedwig Regensburg, Regensburg, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"194","published-online":{"date-parts":[[2026,9,14]]},"reference":[{"key":"ref3","doi-asserted-by":"publisher","first-page":"894204","DOI":"10.3389\/fped.2022.894204","article-title":"Post COVID-19 Condition in Children and Adolescents: An Emerging Problem","volume":"10","author":"J Izquierdo-Pujol","year":"2022","journal-title":"Front Pediatr"},{"key":"ref4","doi-asserted-by":"publisher","first-page":"271","DOI":"10.1038\/s43856-025-00947-y","article-title":"Quality of life and mental health in children with long COVID","volume":"5","author":"LC E Noij","year":"2025","journal-title":"Commun Med (Lond)"},{"key":"ref5","doi-asserted-by":"publisher","first-page":"102994","DOI":"10.1016\/j.jiph.2025.102994","article-title":"Post COVID-19 condition phenotypes: A prospective cohort study identifying four\n                    symptom clusters and their impact on long-term outcomes","volume":"18","author":"T Grafstr\u00f6m","year":"2025","journal-title":"J Infect Public Health"},{"key":"ref6","doi-asserted-by":"publisher","first-page":"e012633","DOI":"10.1136\/bmjopen-2016-012633","article-title":"Children's experiences of chronic fatigue\n                    syndrome\/myalgic encephalomyelitis (CFS\/ME): a systematic review and\n                    meta-ethnography of qualitative studies","volume":"7","author":"R M Parslow","year":"2017","journal-title":"BMJ\n                    Open"},{"key":"ref7","doi-asserted-by":"publisher","first-page":"754","DOI":"10.1186\/s12887-025-06173-8","article-title":"Experiences of living with long COVID during childhood and adolescence: a\n                    qualitative study from the child's perspective","volume":"25","author":"E Lillieberg","year":"2025","journal-title":"BMC Pediatr"},{"key":"ref8","doi-asserted-by":"publisher","first-page":"1543","DOI":"10.1007\/s00431-023-05360-y","article-title":"Long COVID in pediatrics-epidemiology, diagnosis, and management","volume":"183","author":"N Toepfner","year":"2024","journal-title":"Eur J Pediatr"},{"key":"ref9","doi-asserted-by":"publisher","first-page":"517","DOI":"10.1093\/eurpub\/ckae033","article-title":"Pediatric post COVID-19 condition: an umbrella review of the most common\n                    symptoms and associated factors","volume":"34","author":"A Heidar Alizadeh","year":"2024","journal-title":"Eur J Public Health"},{"key":"ref10","volume-title":"COVID-19 rapid guideline: managing the long-term effects of COVID-19","author":"National Institute for Health and Care Excellence (Great\n                            Britain)","year":"2021"},{"key":"ref13","doi-asserted-by":"publisher","first-page":"539","DOI":"10.1007\/s00112-021-01408-1","article-title":"Standardised basic care for children and adolescents with long COVID: Statement\n                    from a multidisciplinary working group of the DGKJ convention societies (as of\n                    February 2022) [Einheitliche Basisversorgung von Kindern und Jugendlichen mit\n                    Long COVID: Stellungnahme einer multidisziplin\u00e4ren Arbeitsgruppe der\n                    DGKJ-Konvent-Gesellschaften (Stand: Februar 2022)]","volume":"170","author":"N T\u00f6pfner","year":"2022","journal-title":"Monatsschr Kinderheilkd"},{"key":"ref14","doi-asserted-by":"publisher","DOI":"10.3390\/ children11030335","article-title":"Understanding Experiences of Youth with Long COVID: A Qualitative Approach","volume":"11","author":"C Torres","year":"2024","journal-title":"Children (Basel)"},{"key":"ref15","doi-asserted-by":"publisher","first-page":"116770","DOI":"10.1016\/j.socscimed.2024.116770","article-title":"The double invisibility of Long Covid in children","volume":"347","author":"C Wild","year":"2024","journal-title":"Soc Sci Med"},{"key":"ref16","doi-asserted-by":"publisher","first-page":"349","DOI":"10.1093\/intqhc\/mzm042","article-title":"Consolidated criteria for reporting qualitative research (COREQ): a 32-item\n                    checklist for interviews and focus groups","volume":"19","author":"A Tong","year":"2007","journal-title":"Int J Qual Health Care"},{"key":"ref18","volume-title":"Qualitative Inhaltsanalyse Methoden, Praxis, Computerunterst\u00fctzung. Methoden,\n                    Praxis, Computerunterst\u00fctzung : Grundlagentexte Methoden","author":"U Kuckartz","year":"2022"},{"key":"ref21","doi-asserted-by":"publisher","first-page":"65","DOI":"10.1353\/foc.2012.0008","article-title":"The economic costs of childhood disability","volume":"22","author":"M Stabile","year":"2012","journal-title":"Future Child"},{"key":"ref22","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-658-29015-3","volume-title":"Intersektorale Versorgung","author":"U Hahn","year":"2020"},{"key":"ref23","doi-asserted-by":"publisher","first-page":"375","DOI":"10.3109\/15412555.2011.605402","article-title":"Patient knowledge in chronic obstructive pulmonary disease: back to basics","volume":"8","author":"A S Scott","year":"2011","journal-title":"COPD"},{"key":"ref24","doi-asserted-by":"publisher","first-page":"45","DOI":"10.1016\/j.zefq.2024.11.010","article-title":"Inhalt und Qualit\u00e4t webbasierter Gesundheitsinformationen zur Pr\u00e4vention und\n                    Pr\u00e4diktion von Nahrungsmittelallergien bei Kindern: eine systematische\n                    Evaluation","volume":"193","author":"M H\u00f6rold","year":"2025","journal-title":"Z Evid Fortbild Qual Gesundhwes"},{"key":"ref25","doi-asserted-by":"publisher","first-page":"141","DOI":"10.1016\/j.yapd.2010.08.009","article-title":"Chronic pediatric pain","volume":"57","author":"R Slover","year":"2010","journal-title":"Adv Pediatr"},{"key":"ref26","doi-asserted-by":"publisher","first-page":"914","DOI":"10.1177\/13674935231168683","article-title":"Changing bodies: A scoping review and thematic analysis of family experience\n                    during serious childhood illness","volume":"28","author":"E Maynard","year":"2024","journal-title":"J Child Health Care"},{"key":"ref27","doi-asserted-by":"publisher","first-page":"e12414","DOI":"10.1111\/jspn.12414","article-title":"Transition of care in adolescents with chronic disease: A concept analysis","volume":"28","author":"A Seydel","year":"2023","journal-title":"J Spec Pediatr Nurs"},{"key":"ref28","doi-asserted-by":"publisher","first-page":"108","DOI":"10.1016\/j.zefq.2024.08.008","article-title":"Kinder und Jugendliche mit Post-COVID-Syndrom: eine qualitative Studie zu\n                    Erfahrungen und Zufriedenheit mit der Versorgung in einem Modellprojekt in\n                    Bayern (Post-COVID Kids Bavaria)","volume":"190-191","author":"S Brandstetter","year":"2024","journal-title":"Z Evid Fortbild Qual Gesundhwes"},{"key":"ref29","doi-asserted-by":"publisher","DOI":"10.1016\/j.zefq.2025.10.005","article-title":"Telemedizinische Post-COVID-Beratungen einer universit\u00e4ren Spezialambulanz im\n                    Projekt ViCoReK: Projektevaluation auf Grundlage von Fragebogenerhebungen","author":"L Heyl","year":"2025","journal-title":"Z Evid Fortbild Qual Gesundhwes"},{"key":"ref30","doi-asserted-by":"publisher","DOI":"10.1055\/a-2661-8280","article-title":"Telemedizinische Post-COVID-Beratungen einer universit\u00e4ren Spezialambulanz:\n                    Fokusgruppenergebnisse zu Einflussfaktoren auf die Teilnahme von\n                    Haus\u00e4rzt*innen","author":"L Heyl","year":"2025","journal-title":"Gesundheitswesen"},{"key":"ref31","doi-asserted-by":"publisher","first-page":"821","DOI":"10.1007\/s11845-017-1555-6","article-title":"Parent's use of the Internet in the search for healthcare information and\n                    subsequent impact on the doctor-patient relationship","volume":"186","author":"S Harvey","year":"2017","journal-title":"Ir J Med Sci"},{"key":"ref32","doi-asserted-by":"publisher","first-page":"1246","DOI":"10.1111\/jpc.14068","article-title":"Determining parents\u2019 patterns of behaviour when searching for online information\n                    on their child's health","volume":"54","author":"S Yardi","year":"2018","journal-title":"J Paediatr Child Health"},{"key":"ref34","doi-asserted-by":"publisher","first-page":"e41010","DOI":"10.2196\/41010","article-title":"The Evaluation of Health Care Services for Children and Adolescents With\n                    Post-COVID-19 Condition: Protocol for a Prospective Longitudinal Study","volume":"12","author":"C Rathgeb","year":"2023","journal-title":"JMIR Res Protoc"}],"container-title":["Das Gesundheitswesen"],"original-title":[],"language":"de","link":[{"URL":"http:\/\/www.thieme-connect.de\/products\/ejournals\/pdf\/10.1055\/a-2846-4412.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,28]],"date-time":"2026-09-28T08:41:44Z","timestamp":1790584904000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.thieme-connect.de\/DOI\/DOI?10.1055\/a-2846-4412"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9,14]]},"references-count":26,"URL":"https:\/\/doi.org\/10.1055\/a-2846-4412","archive":["Portico","CLOCKSS"],"relation":{},"ISSN":["0941-3790","1439-4421"],"issn-type":[{"value":"0941-3790","type":"print"},{"value":"1439-4421","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,9,14]]}}}