{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,12]],"date-time":"2026-10-12T22:54:01Z","timestamp":1791845641516,"version":"4.3.4"},"reference-count":26,"publisher":"Georg Thieme Verlag KG","issue":"05","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Z Geburtshilfe Neonatol"],"published-print":{"date-parts":[[2026,10]]},"abstract":"<jats:title>Zusammenfassung<\/jats:title>\n                  <jats:p>Die perinatale Palliativmedizin stellt eine interdisziplin\u00e4re und multiprofessionelle Schnittstelle im Betreuungskontext der Perinatologie dar. Die drei wesentlichen Betreuungsgruppen sind: Extremfr\u00fchgeborene an der Grenze der Lebensf\u00e4higkeit, pr\u00e4natal diagnostizierte lebenslimitierende Erkrankungen und akut schwer erkrankte Neugeborene. Es wird das Vorgehen bei pr\u00e4natal diagnostizierten lebenslimitierenden Erkrankungen eines universit\u00e4ren Perinatalzentrum Level 1 dargestellt und in den Kontext der existierenden Literatur gesetzt. Die zentralen Herausforderungen sind: 1. die Unsicherheit der Prognosestellung, 2. die Integration in die existierenden Versorgungsstrukturen, 3. die personellen und zeitlichen Ressourcen, 4. die Kommunikation mit den werdenden Eltern und die daraus resultierende, gemeinsame Therapiezielfindung (shared-decision-making). Zusammenfassung: Ein m\u00f6glichst fr\u00fchzeitiger, integrativer und\/oder kollaborativer Betreuungsansatz, der fraktioniert f\u00fcr die\n          Zeitabschnitte vor, w\u00e4hrend und nach der Geburt das Vorgehen erarbeitet und schriftlich formuliert, geht mit einer hohen elterlichen Zufriedenheit einher. Die Unsicherheit der Prognose muss in vielen F\u00e4llen kontinuierlich mitber\u00fccksichtigt werden.<\/jats:p>","DOI":"10.1055\/a-2894-0510","type":"journal-article","created":{"date-parts":[[2026,6,25]],"date-time":"2026-06-25T23:17:03Z","timestamp":1782429423000},"page":"387-394","source":"Crossref","is-referenced-by-count":0,"title":["Schnittstellenmanagement in der perinatalen Palliativmedizin \u2013 Die multiprofessionelle perinatale Palliativberatung und Begleitung: Implementierungsh\u00fcrden und L\u00f6sungsstrategien"],"prefix":"10.1055","volume":"230","author":[{"ORCID":"https:\/\/orcid.org\/0009-0003-7646-0353","authenticated-orcid":false,"given":"Mario","family":"Lange","sequence":"additional","affiliation":[{"name":"Universit\u00e4tsklinikum Hamburg-Eppendorf, Germany","place":["Hamburg"],"department":["Zentrum f\u00fcr Geburtshilfe, Kinder- und Jugendmedizin, Klinik f\u00fcr Kinder- und Jugendmedizin, Sektion Neonatologie und P\u00e4diatrische Intensivmedizin"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Evelyn","family":"Huhn","sequence":"additional","affiliation":[{"name":"Universit\u00e4tsklinikum Hamburg-Eppendorf, HH, Germany","place":["Hamburg"],"department":["Zentrum f\u00fcr Geburtshilfe, Kinder- und Jugendmedizin, Klinik und Poliklinik f\u00fcr Geburtshilfe und Pr\u00e4natalmedizin"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Annika","family":"Bronsema","sequence":"additional","affiliation":[{"name":"Universit\u00e4tsklinikum Hamburg-Eppendorf, HH, Germany","place":["Hamburg"],"department":["Zentrum f\u00fcr Geburtshilfe, Kinder- und Jugendmedizin, Klinik und Poliklinik f\u00fcr p\u00e4diatrische H\u00e4matologie und Onkologie"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"194","published-online":{"date-parts":[[2026,6,25]]},"reference":[{"key":"ref1","first-page":"35","article-title":"The NICU culture versus th hospice culture: can they mix?","author":"N C Bulter","year":"1986","journal-title":"Neonatal Network"},{"key":"ref2","doi-asserted-by":"crossref","first-page":"133","DOI":"10.1053\/j.semperi.2016.11.005","article-title":"Pirmary palliative care in neonatal intensive care","author":"K Marc-Aurele","year":"2017","journal-title":"Seminars in Perinatology"},{"key":"ref3","doi-asserted-by":"crossref","first-page":"733","DOI":"10.1056\/NEJMoa1000678","article-title":"Early palliative care for patients with metastatic non-small-cell lung cancer","author":"J Temel","year":"2010","journal-title":"The New England journal of medicine"},{"key":"ref4","first-page":"1","article-title":"A systematic review of perinatal palliative care models: challenges and opportunities for the future","volume":"678","author":"A Zanin","year":"2025","journal-title":"European journal of pediatrics"},{"key":"ref6","doi-asserted-by":"crossref","first-page":"540","DOI":"10.1136\/archdischild-2022-325157","article-title":"Data-driven approach to understanding neonatal palliative care needs in England and Wales: a population-based study 2015-2020","author":"F Harnden","year":"2023","journal-title":"Archives of disease in childhood. 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