{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,23]],"date-time":"2026-10-23T19:52:34Z","timestamp":1792785154530,"version":"4.5.0"},"reference-count":24,"publisher":"Georg Thieme Verlag KG","license":[{"start":{"date-parts":[[2026,9,7]],"date-time":"2026-09-07T00:00:00Z","timestamp":1788739200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Bundesministerium f\u00fcr Forschung,\n                        Technologie und Raumfahrt","award":["16SV9229"],"award-info":[{"award-number":["16SV9229"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Gesundheitswesen"],"abstract":"<jats:title>Zusammenfassung<\/jats:title>\n                  <jats:p>Pflegende Eltern und Angeh\u00f6rige (pA) von Kindern\/Jugendlichen mit erh\u00f6htem\n                        Unterst\u00fctzungs- oder Pflegebedarf aufgrund von Behinderung oder chronischer\n                        Erkrankung sind stark belastet und haben erh\u00f6hte Gesundheitsrisiken. PA\n                        organisieren und unterst\u00fctzen sich gegenseitig in Selbsthilfegruppen.\n                        Forschungsbedarf besteht im Nachweis von Effekten der Selbsthilfe auf die\n                        selbsteingesch\u00e4tzte Gesundheit (SG) und die Lebensqualit\u00e4t (LQ).<\/jats:p>\n                  <jats:p>In einer prospektiven, interdisziplin\u00e4ren Interventionsstudie wurde in\n                        Sorgegemeinschaften deutschlandweit (Multi-Center-Ansatz) im L\u00e4ngsschnitt\n                        untersucht, inwiefern die durch ko-kreative Methoden unterst\u00fctzte\n                        Selbsthilfe Effekte auf die SG und die LQ der pA hat.<\/jats:p>\n                  <jats:p>In der Langzeitbeobachtung konnte eine verbesserte SG, insbesondere bei\n                        alleinerziehenden Eltern, und eine verbesserte LQ bei\n                        Teilzeit-erwerbst\u00e4tigen pA in der Interventionsgruppe statistisch\n                        nachgewiesen werden.<\/jats:p>\n                  <jats:p>Die St\u00e4rkung der Selbsthilfe von pA hat hohe sozialmedizinische und\n                        volkswirtschaftliche Bedeutung. Die Gesundheits-Selbsteinsch\u00e4tzung ist ein\n                        Pr\u00e4diktor f\u00fcr Morbidit\u00e4t und Mortalit\u00e4t und h\u00e4ngt eng mit der Gesundheit und\n                        gesunden Entwicklung des Kindes zusammen. Ko-kreative Methoden haben in der\n                        Selbsthilfe ein hohes Potential f\u00fcr die St\u00e4rkung der pA im Sinne der\n                        Gesundheitsf\u00f6rderung und der Verbesserung der LQ. Angesichts des geringen\n                        Umfangs der verbundenen Stichprobe sind die Ergebnisse vorsichtig zu\n                        interpretieren und sollten durch Folgestudien in gr\u00f6\u00dferen Populationen, die\n                        \u00fcber einen l\u00e4ngeren Zeitraum beobachtet werden, weiter \u00fcberpr\u00fcft und ggf.\n                        erh\u00e4rtet werden.<\/jats:p>","DOI":"10.1055\/a-2935-5299","type":"journal-article","created":{"date-parts":[[2026,9,28]],"date-time":"2026-09-28T08:41:50Z","timestamp":1790584910000},"source":"Crossref","is-referenced-by-count":0,"title":["Empowerment der Selbsthilfe mit ko-kreativem Ansatz und die Effekte\n                    auf die Gesundheit und Lebensqualit\u00e4t pflegender Eltern: eine prospektive,\n                    longitudinale, sozialmedizinische Multi-Center-Studie"],"prefix":"10.1055","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8221-3266","authenticated-orcid":false,"given":"Astrid","family":"Herold-Majumdar","sequence":"additional","affiliation":[{"name":"Hochschule f\u00fcr angewandte Wissenschaften\n                    M\u00fcnchen, BY, Deutschland","place":["M\u00fcnchen"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael","family":"Bromba","sequence":"additional","affiliation":[{"name":"FU Berlin, BE, Deutschland","place":["Berlin"],"department":["ZEDAD"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"194","published-online":{"date-parts":[[2026,9,7]]},"reference":[{"key":"ref2","doi-asserted-by":"publisher","first-page":"192","DOI":"10.1017\/ipm.2020.4","article-title":"Families under pressure: stress and quality of life in parents of children with\n                    an intellectual disability","volume":"40","author":"E Staunton","year":"2023","journal-title":"Ir J 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