{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,1]],"date-time":"2026-10-01T23:54:38Z","timestamp":1790898878397,"version":"4.1.0"},"reference-count":27,"publisher":"Georg Thieme Verlag KG","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Neuropediatrics"],"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:p>Duchenne and Becker muscular dystrophies (DMD\/BMD) are progressive neuromuscular disorders typically presenting in childhood. Caring for children with these conditions imposes a substantial emotional and physical burden on parents. This study aimed to compare sleep quality and daytime sleepiness between caregivers of children with DMD who were followed at a specialized pediatric neuromuscular center and caregivers of healthy peers.<\/jats:p>\n                  <jats:p>The study included mothers of patients diagnosed with DMD who had no known psychiatric or organic disorders. Participants were recruited from a single neuromuscular center between March and May 2025. Sleep quality and daytime sleepiness were assessed using the Pittsburgh Sleep Quality Index (PSQI) and the Epworth Sleepiness Scale (ESS).<\/jats:p>\n                  <jats:p>Statistically significant differences were observed between mothers of children with DMD and the control group regarding ESS scores, subjective sleep quality, daytime functioning, and total PSQI scores. Interestingly, mothers of children with DMD had lower ESS scores (4.35\u2009\u00b1\u20093.903) compared with the control group (p\u2009=\u20090.034). A moderately significant positive correlation was identified between ESS scores and total PSQI scores (r\u2009=\u20090.491, p\u2009&lt;\u20090.001).<\/jats:p>\n                  <jats:p>Our findings revealed that the sleep quality of parents was better than anticipated. This suggests that specialized neuromuscular disease centers may positively impact the mental health and sleep hygiene of families. A multidisciplinary approach appears to support the psychological well-being and, indirectly, the sleep quality of parents managing chronic neuromuscular disorders.<\/jats:p>","DOI":"10.1055\/a-2965-5652","type":"journal-article","created":{"date-parts":[[2026,9,22]],"date-time":"2026-09-22T23:11:35Z","timestamp":1790118695000},"source":"Crossref","is-referenced-by-count":0,"title":["Sleep Quality among Family Caregivers of Children with Duchenne Muscular Dystrophy"],"prefix":"10.1055","author":[{"given":"Muhammed Mustafa","family":"Uzan","sequence":"additional","affiliation":[{"name":"Tepecik Training and Research Hospital, University of Health Sciences, \u0130zmir, T\u00fcrkiye","place":["Konak"],"department":["Department of Family Medicine"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5028-9995","authenticated-orcid":false,"given":"Gamze","family":"Sar\u0131kaya Uzan","sequence":"additional","affiliation":[{"name":"Tepecik Training and Research Hospital, University of Health Sciences, \u0130zmir, T\u00fcrkiye","place":["Konak"],"department":["Department of Pediatrics, Division of Child Neurology"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2913-717X","authenticated-orcid":false,"given":"Gizem","family":"Do\u011fan","sequence":"additional","affiliation":[{"name":"Tepecik Training and Research Hospital, University of Health Sciences, \u0130zmir, T\u00fcrkiye","place":["Konak"],"department":["Department of Pediatrics, Division of Child Neurology"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yasemin","family":"K\u0131l\u0131\u00e7 \u00d6zt\u00fcrk","sequence":"additional","affiliation":[{"name":"Tepecik Training and Research Hospital, University of Health Sciences, \u0130zmir, T\u00fcrkiye","place":["Konak"],"department":["Department of Family Medicine"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"194","published-online":{"date-parts":[[2026,10,1]]},"reference":[{"issue":"03","key":"ref1","first-page":"14","article-title":"Dystrophin and the two related genetic diseases, Duchenne and Becker muscular dystrophies","volume":"15","author":"E Le Rumeur","year":"2015","journal-title":"Bosn J Basic Med Sci"},{"issue":"10","key":"ref3","doi-asserted-by":"crossref","first-page":"987","DOI":"10.1111\/dmcn.13934","article-title":"Duchenne muscular dystrophy and caregiver burden: a systematic review","volume":"60","author":"E Landfeldt","year":"2018","journal-title":"Dev Med Child Neurol"},{"issue":"04","key":"ref4","doi-asserted-by":"crossref","first-page":"553","DOI":"10.3233\/JND-200610","article-title":"Burden of spinal muscular atrophy (SMA) on patients and caregivers in Canada","volume":"8","author":"H J McMillan","year":"2021","journal-title":"J Neuromuscul 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Sasai","year":"2022","journal-title":"Nihon Koshu Eisei Zasshi"}],"container-title":["Neuropediatrics"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/www.thieme-connect.de\/products\/ejournals\/pdf\/10.1055\/a-2965-5652.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,10,1]],"date-time":"2026-10-01T23:09:24Z","timestamp":1790896164000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.thieme-connect.de\/DOI\/DOI?10.1055\/a-2965-5652"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9,22]]},"references-count":27,"URL":"https:\/\/doi.org\/10.1055\/a-2965-5652","archive":["Portico","CLOCKSS"],"relation":{},"ISSN":["0174-304X","1439-1899"],"issn-type":[{"value":"0174-304X","type":"print"},{"value":"1439-1899","type":"electronic"}],"subject":[],"published-other":{"date-parts":[[2026,9,22]]},"published":{"date-parts":[[2026,9,22]]}}}