{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,2,21]],"date-time":"2025-02-21T08:33:22Z","timestamp":1740126802850,"version":"3.37.3"},"reference-count":0,"publisher":"Georg Thieme Verlag KG","issue":"09","funder":[{"name":"Clinical and Translational Science Institute Grant","award":["UL1TR001881"],"award-info":[{"award-number":["UL1TR001881"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Am J Perinatol"],"published-print":{"date-parts":[[2020,7]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>\n          Objective\u2003This study aims to evaluate the utility of social media to distribute a patient survey on differences in management and outcomes of monochorionic\u2013diamniotic (MCDA) pregnancies.<\/jats:p><jats:p>\n          Study Design\u2003A cross-sectional survey was posted to an English-language MCDA twins patient-centered support group within the social media site, Facebook from April 2, 2018 to June 26, 2018. Subjects were recruited through a technique called \u201csnowballing,\u201d whereby individuals shared the survey to assist with recruiting. Patient reported data were analyzed using Chi-square and Kruskal\u2013Wallis's tests to explore characteristics associated with surveillance and outcomes as related to region and provider type.<\/jats:p><jats:p>\n          Results\u2003Over 3 months, the post \u201creached\u201d 14,288 Facebook users, among which 5,653 (40%) clicked on the post. A total of 2,357 respondents with MCDA pregnancies completed the survey. Total 1,928 (82%) were from the United States (US) and 419 (18%) from other countries. Total 85% of patients had co-management with maternal\u2013fetal medicine (MFM), more in the US compared with the rest of the world (87 vs. 74%, p\u2009&lt;\u20090.01). MFM involvement led to increased adherence to biweekly ultrasounds (91 vs. 65%, p\u2009&lt;\u20090.01), diagnosis of monochorionicity by 12 weeks (74 vs. 69%, p\u2009&lt;\u20090.01) and better education about twin\u2013twin transfusion syndrome (90 vs. 66%, p\u2009&lt;\u20090.01). Pregnancies with MFM involvement had a higher take-home baby rate for both babies (92 vs. 89%, p\u2009&lt;\u20090.01) or for at least one baby (98 vs. 93%, p\u2009&lt;\u20090.01) compared with those without MFM involvement.<\/jats:p><jats:p>\n          Conclusion\u2003A survey distributed via social media can be effective in evaluating real-life management and outcomes of an uncommon obstetrical diagnosis. This survey elucidates wide international variation in adherence to guidelines, management, and outcomes.<\/jats:p>","DOI":"10.1055\/s-0039-1701027","type":"journal-article","created":{"date-parts":[[2020,1,30]],"date-time":"2020-01-30T23:45:01Z","timestamp":1580427901000},"page":"890-897","source":"Crossref","is-referenced-by-count":5,"title":["Novel Use of a Social-Media-Based Survey to Detect Regional Differences in Management of Monochorionic\u2013Diamniotic Twins"],"prefix":"10.1055","volume":"37","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4891-3354","authenticated-orcid":false,"given":"Ilina D.","family":"Pluym","sequence":"additional","affiliation":[{"name":"Division of Maternal Fetal Medicine, Department of Obstetrics and Gynecology, University of California Los Angeles, California"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Bettina","family":"Paek","sequence":"additional","affiliation":[{"name":"Eastside Maternal Fetal Medicine, Evergreen Health Hospital Fetal Therapy Program, Kirkland, Washington"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Martin","family":"Walker","sequence":"additional","affiliation":[{"name":"Eastside Maternal Fetal Medicine, Evergreen Health Hospital Fetal Therapy Program, Kirkland, Washington"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hui","family":"Liu","sequence":"additional","affiliation":[{"name":"Division of General Academic Pediatrics, Department of Pediatrics, University of Pittsburgh, Pittsburgh, Pennsylvania"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lorna","family":"Kwan","sequence":"additional","affiliation":[{"name":"Department of Urology, University of California, Los Angeles, California"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rashmi","family":"Rao","sequence":"additional","affiliation":[{"name":"Division of Maternal Fetal Medicine, Department of Obstetrics and Gynecology, University of California Los Angeles, California"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Emily","family":"Scibetta","sequence":"additional","affiliation":[{"name":"Division of Maternal Fetal Medicine, Department of Obstetrics and Gynecology, University of California Los Angeles, California"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Yalda","family":"Afshar","sequence":"additional","affiliation":[{"name":"Division of Maternal Fetal Medicine, Department of Obstetrics and Gynecology, University of California Los Angeles, California"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kerry","family":"Holliman","sequence":"additional","affiliation":[{"name":"Division of Maternal Fetal Medicine, Department of Obstetrics and Gynecology, University of California Los Angeles, California"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Thalia","family":"Wong","sequence":"additional","affiliation":[{"name":"Division of Maternal Fetal Medicine, Department of Obstetrics and Gynecology, University of California Los Angeles, California"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lawrence D.","family":"Platt","sequence":"additional","affiliation":[{"name":"Division of Maternal Fetal Medicine, Department of Obstetrics and Gynecology, University of California Los Angeles, California"},{"name":"Center for Fetal Medicine and Women's Ultrasound, Los Angeles, California"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christina S.","family":"Han","sequence":"additional","affiliation":[{"name":"Division of Maternal Fetal Medicine, Department of Obstetrics and Gynecology, University of California Los Angeles, California"},{"name":"Center for Fetal Medicine and Women's Ultrasound, Los Angeles, California"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"194","published-online":{"date-parts":[[2020,1,30]]},"container-title":["American Journal of Perinatology"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/www.thieme-connect.de\/products\/ejournals\/pdf\/10.1055\/s-0039-1701027.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2020,6,25]],"date-time":"2020-06-25T00:10:25Z","timestamp":1593043825000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.thieme-connect.de\/DOI\/DOI?10.1055\/s-0039-1701027"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,1,30]]},"references-count":0,"journal-issue":{"issue":"09","published-online":{"date-parts":[[2020,6,24]]},"published-print":{"date-parts":[[2020,7]]}},"URL":"https:\/\/doi.org\/10.1055\/s-0039-1701027","relation":{},"ISSN":["0735-1631","1098-8785"],"issn-type":[{"type":"print","value":"0735-1631"},{"type":"electronic","value":"1098-8785"}],"subject":[],"published":{"date-parts":[[2020,1,30]]}}}