{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,26]],"date-time":"2025-10-26T21:28:41Z","timestamp":1761514121013},"reference-count":0,"publisher":"Georg Thieme Verlag KG","issue":"01","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Klin Padiatr"],"published-print":{"date-parts":[[2018,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>\nBackground A developmental disorder of a child has a major impact on the affected families\u2019 lives. However, data about the parents\u2019 perception of the revealing of the diagnosis is scarce.<\/jats:p><jats:p>\nPatients and Methods Parents of children with developmental disorder treated as outpatients in a university hospital were interviewed about the initial medical consultation concerning the diagnosis of their child.<\/jats:p><jats:p>\nResults Parents of 210 children agreed to take part in the study. 35\/210 (17%) had to be excluded from the study as they were not able to remember the initial medical consultation, or claimed there was either no initial medical consultation or they did not attend it. The diagnosis of developmental disorder was made in median 4 months (Q25\/Q75: 0\/12; min\/max: 0\/63) after the parents had noticed the first symptoms. According to the parents, options to support the development of the child were the most frequently addressed topic in the initial medical consultation (119\/175, 68%). Some parents wished more empathy (19\/175, 11%), and less medical terminology (12\/175, 7%). 114\/175 (65%) of parents rated the initial medical consultation as \u201cvery good\u201d or \u201cgood\u201d. After their initial medical consultation, 66\/175 (38%) of the parents had open questions mainly concerning the prognosis of the disease. Sources of information that were used after the consultation were most often the treating physician (150\/175, 86%) and the internet (133\/175, 76%).<\/jats:p><jats:p>\nConclusion Generally, parents perceive the initial medical consultation on the developmental disorder of their child well. Nevertheless, many parents state that they had unanswered questions after the consultation. The internet is one of the main sources parents use to answer those questions.<\/jats:p>","DOI":"10.1055\/s-0043-117960","type":"journal-article","created":{"date-parts":[[2017,12,19]],"date-time":"2017-12-19T23:50:46Z","timestamp":1513727446000},"page":"44-49","source":"Crossref","is-referenced-by-count":6,"title":["How do Parents Perceive the Initial Medical Consultation on their Child\u2019s Developmental Disorder?"],"prefix":"10.1055","volume":"230","author":[{"given":"Lena","family":"Hotopp","sequence":"additional","affiliation":[{"name":"Klinik und Poliklinik f\u00fcr Kinder und Jugendliche, Zentrum f\u00fcr p\u00e4diatrische Forschung, Universit\u00e4tsklinikum Leipzig"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ulrike","family":"Spindler","sequence":"additional","affiliation":[{"name":"Klinik und Poliklinik f\u00fcr Kinder und Jugendliche, Zentrum f\u00fcr p\u00e4diatrische Forschung, Universit\u00e4tsklinikum Leipzig"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Vivien","family":"Bach","sequence":"additional","affiliation":[{"name":"Klinik und Poliklinik f\u00fcr Kinder und Jugendliche, Zentrum f\u00fcr p\u00e4diatrische Forschung, Universit\u00e4tsklinikum Leipzig"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Frauke","family":"Hornemann","sequence":"additional","affiliation":[{"name":"Klinik und Poliklinik f\u00fcr Kinder und Jugendliche, Zentrum f\u00fcr p\u00e4diatrische Forschung, Universit\u00e4tsklinikum Leipzig"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Steffen","family":"Syrbe","sequence":"additional","affiliation":[{"name":"Klinik und Poliklinik f\u00fcr Kinder und Jugendliche, Zentrum f\u00fcr p\u00e4diatrische Forschung, Universit\u00e4tsklinikum Leipzig"},{"name":"Klinik f\u00fcr Allgemeinp\u00e4diatrie, Sektion f\u00fcr Neurop\u00e4diatrie und Stoffwechselmedizin, Zentrum f\u00fcr Kinder- und Jugendmedizin, Universit\u00e4tsklinkum Heidelberg"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anna","family":"Andreas","sequence":"additional","affiliation":[{"name":"Klinik und Poliklinik f\u00fcr Kinder und Jugendliche, Zentrum f\u00fcr p\u00e4diatrische Forschung, Universit\u00e4tsklinikum Leipzig"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Andreas","family":"Merkenschlager","sequence":"additional","affiliation":[{"name":"Klinik und Poliklinik f\u00fcr Kinder und Jugendliche, Zentrum f\u00fcr p\u00e4diatrische Forschung, Universit\u00e4tsklinikum Leipzig"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Wieland","family":"Kiess","sequence":"additional","affiliation":[{"name":"Klinik und Poliklinik f\u00fcr Kinder und Jugendliche, Zentrum f\u00fcr p\u00e4diatrische Forschung, Universit\u00e4tsklinikum Leipzig"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Matthias","family":"Bernhard","sequence":"additional","affiliation":[{"name":"Klinik und Poliklinik f\u00fcr Kinder und Jugendliche, Zentrum f\u00fcr p\u00e4diatrische Forschung, Universit\u00e4tsklinikum Leipzig"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Thilo","family":"Bertsche","sequence":"additional","affiliation":[{"name":"Zentrum f\u00fcr Arzneimittelsicherheit und Klinische Pharmazie, Universit\u00e4t Leipzig"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Martina","family":"Neininger","sequence":"additional","affiliation":[{"name":"Zentrum f\u00fcr Arzneimittelsicherheit und Klinische Pharmazie, Universit\u00e4t Leipzig"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Astrid","family":"Bertsche","sequence":"additional","affiliation":[{"name":"Klinik und Poliklinik f\u00fcr Kinder und Jugendliche, Zentrum f\u00fcr p\u00e4diatrische Forschung, Universit\u00e4tsklinikum Leipzig"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"194","published-online":{"date-parts":[[2017,12,19]]},"container-title":["Klinische P\u00e4diatrie"],"original-title":[],"language":"de","link":[{"URL":"http:\/\/www.thieme-connect.de\/products\/ejournals\/pdf\/10.1055\/s-0043-117960.pdf","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2018,1,18]],"date-time":"2018-01-18T23:37:05Z","timestamp":1516318625000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.thieme-connect.de\/DOI\/DOI?10.1055\/s-0043-117960"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,12,19]]},"references-count":0,"journal-issue":{"issue":"01","published-online":{"date-parts":[[2018,1,18]]},"published-print":{"date-parts":[[2018,1]]}},"URL":"https:\/\/doi.org\/10.1055\/s-0043-117960","relation":{},"ISSN":["0300-8630","1439-3824"],"issn-type":[{"value":"0300-8630","type":"print"},{"value":"1439-3824","type":"electronic"}],"subject":[],"published":{"date-parts":[[2017,12,19]]}}}