{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T12:11:52Z","timestamp":1777464712854,"version":"3.51.4"},"reference-count":20,"publisher":"Georg Thieme Verlag KG","issue":"05","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Eur J Pediatr Surg"],"published-print":{"date-parts":[[2024,10]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>\n          Objective\u2003Survival of neonates with esophageal atresia (EA) is relatively high and stable, resulting in increased attention to optimizing care and longer-term morbidity. This study aimed to reach consensus on a quality indicator set for benchmarking EA care between hospitals, regions, or countries in a European clinical audit.<\/jats:p><jats:p>\n          Methods\u2003Using an online Delphi method, a panel of EA health care professionals and patient representatives rated potential outcome, structure, and process indicators for EA care identified through systematic literature and guideline review on a nine-point Likert scale in three questionnaires. Items were included based on predefined criteria. In rounds 2 and 3, participants were asked to select the five to ten most essential of the included indicators.<\/jats:p><jats:p>\n          Results\u2003An international panel of 14 patient representatives and 71 multidisciplinary health care professionals representing 41 European hospitals completed all questionnaires (response rate: 81%), eventually including 22 baseline characteristics and 32 indicators. After ranking, 10 indicators were prioritized by both stakeholder groups. In addition, each stakeholder group highly prioritized one additional indicator. Following an additional online vote by the other group, these were both added to the final set.<\/jats:p><jats:p>\n          Conclusion\u2003This study established a core indicator set of twenty-two baseline characteristics, eight outcome indicators, one structure indicator, and three process indicators for evaluating (quality of) EA care in Europe. These indicators, covering various aspects of EA care, will be implemented in the European Pediatric Surgical Audit to enable recognition of practice variation and focus EA care improvement initiatives.<\/jats:p>","DOI":"10.1055\/s-0043-1777100","type":"journal-article","created":{"date-parts":[[2023,12,13]],"date-time":"2023-12-13T00:03:13Z","timestamp":1702425793000},"page":"398-409","source":"Crossref","is-referenced-by-count":10,"title":["Selection of Quality Indicators to Evaluate Quality of Care for Patients with Esophageal Atresia Using a Delphi Method"],"prefix":"10.1055","volume":"34","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4474-2930","authenticated-orcid":false,"given":"Nadine M.","family":"Teunissen","sequence":"additional","affiliation":[{"name":"EPSA|ERNICA Registry, European Reference Network for Rare Inherited and Congenital Anomalies, Rotterdam, the Netherlands"},{"name":"Dutch Institute for Clinical Auditing, Leiden, the Netherlands"},{"name":"Department of Pediatric Surgery, Erasmus Medical Center, Rotterdam, the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Julia","family":"Brendel","sequence":"additional","affiliation":[{"name":"EPSA|ERNICA Registry, European Reference Network for Rare Inherited and Congenital Anomalies, Rotterdam, the Netherlands"},{"name":"Department of Pediatric Surgery, Hannover Medical School, Hannover, Niedersachsen, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"L.W. Ernest van","family":"Heurn","sequence":"additional","affiliation":[{"name":"EPSA|ERNICA Registry, European Reference Network for Rare Inherited and Congenital Anomalies, Rotterdam, the Netherlands"},{"name":"Department of Pediatric Surgery, Emma Children's Hospital, Amsterdam UMC, University of Amsterdam & Vrije Universiteit Amsterdam, Amsterdam, the Netherlands"},{"name":"Amsterdam Reproduction and Development Research Institute, Amsterdam, the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Benno","family":"Ure","sequence":"additional","affiliation":[{"name":"Department of Pediatric Surgery, Hannover Medical School, Hannover, Niedersachsen, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rene","family":"Wijnen","sequence":"additional","affiliation":[{"name":"EPSA|ERNICA Registry, European Reference Network for Rare Inherited and Congenital Anomalies, Rotterdam, the Netherlands"},{"name":"Department of Pediatric Surgery, Erasmus Medical Center, Rotterdam, the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0892-9204","authenticated-orcid":false,"given":"Simon","family":"Eaton","sequence":"additional","affiliation":[{"name":"EPSA|ERNICA Registry, European Reference Network for Rare Inherited and Congenital Anomalies, Rotterdam, the Netherlands"},{"name":"Department of Pediatric Surgery, Erasmus Medical Center, Rotterdam, the Netherlands"},{"name":"Developmental Biology and Cancer Research and Teaching Programme, UCL Great Ormond Street Institute of Child Health, London, United Kingdom of Great Britain and Northern Ireland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"name":"on behalf of the EPSA|ERNICA Registry Group","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"name":"the EA Quality of Care Initiative","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"194","published-online":{"date-parts":[[2023,12,12]]},"reference":[{"issue":"11","key":"ref1","doi-asserted-by":"crossref","first-page":"893","DOI":"10.1002\/bdra.23067","article-title":"Prevalence of esophageal atresia among 18 international birth defects surveillance programs","volume":"94","author":"N Nassar","year":"2012","journal-title":"Birth Defects Res A Clin Mol Teratol"},{"issue":"12","key":"ref2","doi-asserted-by":"crossref","first-page":"945","DOI":"10.1002\/bdr2.1891","article-title":"Survival of infants born with esophageal atresia among 24 international birth defects surveillance programs","volume":"113","author":"J C Bell","year":"2021","journal-title":"Birth Defects Res"},{"issue":"04","key":"ref3","doi-asserted-by":"crossref","first-page":"627","DOI":"10.1097\/SLA.0000000000003665","article-title":"The Dutch Institute for Clinical Auditing: achieving Codman's dream on a nationwide basis","volume":"271","author":"N Beck","year":"2020","journal-title":"Ann Surg"},{"issue":"09","key":"ref4","doi-asserted-by":"crossref","first-page":"1963","DOI":"10.1007\/s00198-018-4558-x","article-title":"Quality indicators for hip fracture care, a systematic review","volume":"29","author":"S C Voeten","year":"2018","journal-title":"Osteoporos Int"},{"issue":"11","key":"ref5","doi-asserted-by":"crossref","first-page":"1035","DOI":"10.1016\/j.ejso.2010.08.131","article-title":"Quality-of-care indicators for oesophageal cancer surgery: a review","volume":"36","author":"E FW Courrech Staal","year":"2010","journal-title":"Eur J Surg Oncol"},{"issue":"06","key":"ref6","doi-asserted-by":"crossref","first-page":"526","DOI":"10.1055\/s-0034-1396416","article-title":"Quality measurement in neonatal surgical disorders: development of clinical indicators","volume":"25","author":"E van Heurn","year":"2015","journal-title":"Eur J Pediatr Surg"},{"issue":"01","key":"ref7","doi-asserted-by":"crossref","first-page":"e1000393","DOI":"10.1371\/journal.pmed.1000393","article-title":"Using the Delphi technique to determine which outcomes to measure in clinical trials: recommendations for the future based on a systematic review of existing studies","volume":"8","author":"I P Sinha","year":"2011","journal-title":"PLoS Med"},{"issue":"06","key":"ref8","doi-asserted-by":"crossref","first-page":"e20476","DOI":"10.1371\/journal.pone.0020476","article-title":"Using and reporting the Delphi method for selecting healthcare quality indicators: a systematic review","volume":"6","author":"R Boulkedid","year":"2011","journal-title":"PLoS One"},{"issue":"05","key":"ref9","doi-asserted-by":"publisher","first-page":"408","DOI":"10.1016\/S0016-3287(69)80025-X","article-title":"An experimental study of group opinion","volume":"1","author":"N Dalkey","year":"1969","journal-title":"Futures"},{"key":"ref10","first-page":"1","article-title":"The Delphi technique: making sense of consensus","volume":"12","author":"C C Hsu","year":"2007","journal-title":"Pract. 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