{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,13]],"date-time":"2026-10-13T13:16:13Z","timestamp":1791897373504,"version":"4.3.4"},"reference-count":31,"publisher":"Georg Thieme Verlag KG","issue":"02","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Eur J Pediatr Surg"],"published-print":{"date-parts":[[2025,4]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:p>Introduction\u2003Anorectal malformations (ARMs) are complex congenital anomalies of the anorectal region, oftentimes also affecting the genitourinary system. Although successful surgical correction can often be achieved in the neonatal period, many children will experience functional problems in the long term. The European Reference Network for rare and complex urogenital conditions (eUROGEN) assembled a panel of experts to address these challenges and develop comprehensive guidelines for the management of ARM.<\/jats:p>\n                  <jats:p>Methods\u2003The Dutch Quality Standard for ARM served as the foundation for the development of guidelines applicable on a European level. Literature was searched in Medline, Embase, and Cochrane. The ADAPTE method was utilized to incorporate the newest available evidence. A panel of 15 experts from 7 European countries assessed currency, acceptability, and applicability of recommendations. Recommendations from the Dutch Quality Standard were adapted, adopted, or rejected and recommendations were formed considering the current evidence and\/or expert consensus.<\/jats:p>\n                  <jats:p>Results\u2003Lifelong follow-up, integration, and transition of care were assessed. A total of eight new studies were identified. The panel adapted 18 recommendations, adopted 6, and developed 6 de novo. Overall, the level of evidence was considered low.<\/jats:p>\n                  <jats:p>Conclusion\u2003Successful lifelong follow-up and transition of care require a dedicated team of pediatric and adult specialist and an individually tailored patient-centered approach. This guideline summarizes the best available evidence on follow-up of ARM patients and provides guidance for the development of structured transition programs.<\/jats:p>","DOI":"10.1055\/s-0044-1791249","type":"journal-article","created":{"date-parts":[[2024,9,19]],"date-time":"2024-09-19T18:48:12Z","timestamp":1726771692000},"page":"120-127","source":"Crossref","is-referenced-by-count":8,"title":["ERN eUROGEN Guidelines on the Management of Anorectal Malformations Part III: Lifelong Follow-up and Transition of Care"],"prefix":"10.1055","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0009-0007-4785-6462","authenticated-orcid":false,"given":"Ophelia","family":"Aubert","sequence":"additional","affiliation":[{"name":"Department of Pediatric Surgery, University Medical Center Mannheim, University of Heidelberg, Mannheim, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Willemijn F.E.","family":"Irvine","sequence":"additional","affiliation":[{"name":"Department of Evidence Based Medicine and Methodology, Qualicura Healthcare Support Agency, Breda, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dalia","family":"Aminoff","sequence":"additional","affiliation":[{"name":"AIMAR-Associazione Italiana Malformazioni AnoRettali, Rome, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3995-7286","authenticated-orcid":false,"given":"Ivo","family":"de Blaauw","sequence":"additional","affiliation":[{"name":"Department of Pediatric Surgery, Radboudumc Amalia Children's Hospital, Nijmegen, The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Salvatore","family":"Cascio","sequence":"additional","affiliation":[{"name":"Department of Pediatric Surgery, School of Medicine, University College Dublin and Children's Health Ireland, Dublin, Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"C\u00e9lia","family":"Cretolle","sequence":"additional","affiliation":[{"name":"Department of Pediatric Surgery, Urology and Transplantation, H\u00f4pital Necker Enfants Malades, APHP, Universit\u00e9 de Paris Cit\u00e9 - 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