{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,25]],"date-time":"2026-09-25T18:02:28Z","timestamp":1790359348024,"version":"4.1.0"},"reference-count":22,"publisher":"Massachusetts Medical Society","issue":"10","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["NEJM Catalyst"],"published-print":{"date-parts":[[2026,9,16]]},"DOI":"10.1056\/cat.25.0476","type":"journal-article","created":{"date-parts":[[2026,9,16]],"date-time":"2026-09-16T12:45:11Z","timestamp":1789562711000},"source":"Crossref","is-referenced-by-count":0,"title":["The Heart of the Matter \u2014 Transforming Congenital Heart Disease Care through Patient-Reported Outcomes"],"prefix":"10.1056","volume":"7","author":[{"given":"Susan F.","family":"Saleeb","sequence":"first","affiliation":[{"name":"Director of Ambulatory Quality Improvement and Boston Clinic Operations, Boston Children\u2019s Hospital, Boston, MA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sidra","family":"Ahmad","sequence":"additional","affiliation":[{"name":"Research Assistant and Medical Student, Cardiology, Boston Children\u2019s Hospital, Boston, MA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christina","family":"Nielsen","sequence":"additional","affiliation":[{"name":"Project Manager, International Consortium for Health Outcomes Measurement, Boston, MA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rachel","family":"Zmora","sequence":"additional","affiliation":[{"name":"Assistant Professor, Epidemiology, Northwestern Medicine, Chicago, IL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah D.","family":"de Ferranti","sequence":"additional","affiliation":[{"name":"Chief, Division of Ambulatory Cardiology, Boston Children\u2019s Hospital, Boston, MA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kathy J.","family":"Jenkins","sequence":"additional","affiliation":[{"name":"Executive Director, Center for Applied Pediatric Quality Analytics, Boston Children\u2019s Hospital, Boston, MA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"150","reference":[{"key":"e_1_3_4_2_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2011.08.025"},{"key":"e_1_3_4_3_2","doi-asserted-by":"publisher","DOI":"10.1161\/JAHA.120.017704"},{"key":"e_1_3_4_4_2","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCULATIONAHA.110.946343"},{"key":"e_1_3_4_5_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.cjca.2014.07.749"},{"key":"e_1_3_4_6_2","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCULATIONAHA.122.060834"},{"key":"e_1_3_4_7_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2025.09.006"},{"key":"e_1_3_4_8_2","doi-asserted-by":"publisher","DOI":"10.1161\/HCQ.0000000000000110"},{"key":"e_1_3_4_9_2","doi-asserted-by":"publisher","DOI":"10.1161\/CIR.0000000000001211"},{"key":"e_1_3_4_10_2","doi-asserted-by":"publisher","DOI":"10.1161\/JAHA.119.012030"},{"key":"e_1_3_4_11_2","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2019.6762"},{"key":"e_1_3_4_12_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijcchd.2025.100610"},{"key":"e_1_3_4_13_2","doi-asserted-by":"publisher","DOI":"10.1001\/jamacardio.2020.6449"},{"key":"e_1_3_4_14_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.pedhc.2024.04.001"},{"key":"e_1_3_4_15_2","unstructured":"International Consortium for Health Outcomes Measurement. About ICHOM sets of patient-centered outcome measures. Boston MA: International Consortium for Health Outcomes Measurement. (https:\/\/www.ichom.org\/about-ichom-sets\/)."},{"key":"e_1_3_4_16_2","doi-asserted-by":"publisher","DOI":"10.1093\/ehjqcco\/qcab009"},{"key":"e_1_3_4_17_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2022.09.032"},{"key":"e_1_3_4_18_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2021.03.012"},{"key":"e_1_3_4_19_2","doi-asserted-by":"publisher","DOI":"10.1161\/JAHA.122.025278"},{"key":"e_1_3_4_20_2","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2020-1693"},{"key":"e_1_3_4_21_2","doi-asserted-by":"publisher","DOI":"10.1161\/CIR.0b013e318265ee8a"},{"key":"e_1_3_4_22_2","doi-asserted-by":"publisher","DOI":"10.1161\/CIR.0000000000001078"},{"key":"e_1_3_4_23_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2021.03.304"}],"container-title":["NEJM Catalyst"],"original-title":[],"language":"en","deposited":{"date-parts":[[2026,9,25]],"date-time":"2026-09-25T17:48:30Z","timestamp":1790358510000},"score":1,"resource":{"primary":{"URL":"https:\/\/catalyst.nejm.org\/doi\/10.1056\/CAT.25.0476"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9,16]]},"references-count":22,"journal-issue":{"issue":"10","published-print":{"date-parts":[[2026,9,16]]}},"alternative-id":["10.1056\/CAT.25.0476"],"URL":"https:\/\/doi.org\/10.1056\/cat.25.0476","relation":{},"ISSN":["2642-0007"],"issn-type":[{"value":"2642-0007","type":"print"}],"subject":[],"published":{"date-parts":[[2026,9,16]]}}}