{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,18]],"date-time":"2026-02-18T22:56:52Z","timestamp":1771455412335,"version":"3.50.1"},"reference-count":4,"publisher":"Massachusetts Medical Society","issue":"19","content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["N Engl J Med"],"published-print":{"date-parts":[[2024,5,16]]},"DOI":"10.1056\/nejmp2401271","type":"journal-article","created":{"date-parts":[[2024,5,11]],"date-time":"2024-05-11T11:30:35Z","timestamp":1715427035000},"page":"1742-1743","source":"Crossref","is-referenced-by-count":1,"title":["Learning to Say Goodbye"],"prefix":"10.1056","volume":"390","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3074-8805","authenticated-orcid":false,"given":"James A.","family":"Feinstein","sequence":"first","affiliation":[{"name":"From the Adult and Child Center for Outcomes Research and Delivery Science, University of Colorado, and Children\u2019s Hospital Colorado \u2014 both in Aurora."}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"150","reference":[{"key":"e_1_3_4_2_2","unstructured":"Dystrophic Epidermolysis Bullosa Research Association of America. EB in depth. March 2021 (https:\/\/www.debra.org\/about-eb\/eb-depth)."},{"key":"e_1_3_4_3_2","unstructured":"EB Research Partnership. What is EB? (https:\/\/www.ebresearch.org\/what-is-eb.html)."},{"key":"e_1_3_4_4_2","doi-asserted-by":"publisher","DOI":"10.1097\/ACM.0b013e31802d9489"},{"key":"e_1_3_4_5_2","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2017-3977"}],"container-title":["New England Journal of Medicine"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/www.nejm.org\/doi\/pdf\/10.1056\/NEJMp2401271","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,6,11]],"date-time":"2025-06-11T22:42:11Z","timestamp":1749681731000},"score":1,"resource":{"primary":{"URL":"http:\/\/www.nejm.org\/doi\/10.1056\/NEJMp2401271"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,5,16]]},"references-count":4,"journal-issue":{"issue":"19","published-print":{"date-parts":[[2024,5,16]]}},"alternative-id":["10.1056\/NEJMp2401271"],"URL":"https:\/\/doi.org\/10.1056\/nejmp2401271","relation":{},"ISSN":["0028-4793","1533-4406"],"issn-type":[{"value":"0028-4793","type":"print"},{"value":"1533-4406","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,5,16]]}}}