{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,2]],"date-time":"2026-05-02T10:46:30Z","timestamp":1777718790306,"version":"3.51.4"},"reference-count":47,"publisher":"CSIRO Publishing","issue":"1","license":[{"start":{"date-parts":[[2025,8,6]],"date-time":"2025-08-06T00:00:00Z","timestamp":1754438400000},"content-version":"vor","delay-in-days":559,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2024,3,14]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Acoustic neuromas (ANs) are consistently associated with decreased quality of life (QOL) related to the physical and psychosocial impacts of symptoms experienced from the tumour and its treatment. This study explored patient-reported experiences of ANs in New Zealand, with a focus on the impact on QOL and the provision of information, support and services.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A mixed methods approach was taken, conducting an online community survey that included the Penn Acoustic Neuroma Quality of Life Scale (N = 52). Those who indicated interest were offered semi-structured interviews after the survey (N = 17), which were analysed using content analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>A negative impact on QOL was found, highlighting five key themes in the experiences of people: (1) ongoing physical, social and psychological impacts; (2) information and support from the medical system; (3) autonomy and decision-making; (4) the importance of peer support; and (5) remaining positive \u2013 life goes on.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Our findings indicate areas for improvement that may benefit people\u2019s healthcare experience and QOL. Both quantitative and qualitative results identified gaps associated with person-centred care and the need for information, education, emotional support and access to services. Recommendations include a need for more information (verbal and written) during all stages of diagnosis and treatment, shared decision-making and increased access to allied health, including psychological services and support groups.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1071\/ib23072","type":"journal-article","created":{"date-parts":[[2024,1,25]],"date-time":"2024-01-25T00:10:11Z","timestamp":1706141411000},"source":"Crossref","is-referenced-by-count":7,"title":["Quality of life and broader experiences of those with acoustic neuroma: a mixed methods approach"],"prefix":"10.1071","volume":"25","author":[{"given":"Lior","family":"Ben-Harosh","sequence":"first","affiliation":[{"name":"ASchool of Psychology, The University of Auckland, New Zealand."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Suzanne","family":"Barker-Collo","sequence":"additional","affiliation":[{"name":"ASchool of Psychology, The University of Auckland, New Zealand."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alicja","family":"Nowacka","sequence":"additional","affiliation":[{"name":"ASchool of Psychology, The University of Auckland, New Zealand."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Joanne","family":"Garrett","sequence":"additional","affiliation":[{"name":"ASchool of Psychology, The University of Auckland, New Zealand."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3260-5824","authenticated-orcid":true,"given":"Anna","family":"Miles","sequence":"additional","affiliation":[{"name":"ASchool of Psychology, The University of Auckland, New Zealand."}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"67","published-online":{"date-parts":[[2024,1,25]]},"reference":[{"issue":"1","key":"2025110416133421500_R1","doi-asserted-by":"publisher","DOI":"10.1186\/s43163-022-00285-z","article-title":"Quality of life outcomes in acoustic neuroma: Systematic review (2000\u20132021).","volume":"38","author":"Barker-Collo","year":"2022","journal-title":"The Egyptian Journal of Otolaryngology"},{"issue":"5","key":"2025110416133421500_R2","doi-asserted-by":"publisher","first-page":"818","DOI":"10.3171\/jns.2003.99.5.0818","article-title":"Self-assessed quality of life after acoustic neuroma surgery.","volume":"99","author":"Betchen","year":"2003","journal-title":"Journal of Neurosurgery"},{"issue":"2","key":"2025110416133421500_R3","doi-asserted-by":"publisher","first-page":"201","DOI":"10.1080\/2159676X.2019.1704846","article-title":"To saturate or not to saturate? 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