{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,19]],"date-time":"2025-12-19T10:14:24Z","timestamp":1766139264805,"version":"3.45.0"},"reference-count":108,"publisher":"CSIRO Publishing","issue":"3","license":[{"start":{"date-parts":[[2025,11,18]],"date-time":"2025-11-18T00:00:00Z","timestamp":1763424000000},"content-version":"vor","delay-in-days":64,"URL":"https:\/\/doi.org\/10.1071\/journalslicense"}],"funder":[{"name":"National Institutes of Health; Hamilton Health Sciences Summer Bursary","award":["NIH R01-HD071089-06A1"],"award-info":[{"award-number":["NIH R01-HD071089-06A1"]}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,9,19]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Computer-mediated communication (CMC) \u2013 using technology to engage with others via digital platforms (e.g. social media) \u2013 is an integral mode of social interaction for adolescents. Integrating CMC into rehabilitation could benefit adolescents with acquired brain injury (ABI), yet its use is under-studied. This study aimed to address this gap by co-designing a survey on CMC use among adolescents with ABI and evaluating the project team\u2019s perceptions of engagement in the co-design process post-study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>The project team comprised 10 interest-holders: youth with ABI (n\u00a0=\u00a02), rehabilitation professionals (n\u00a0=\u00a02), researchers (n\u00a0=\u00a05), and a family member (n\u00a0=\u00a01). Survey co-design sessions conducted via videoconferencing were guided by the Double Diamond (DD) Framework. Mixed-methods analysis included descriptive statistics from the Patient and Public Engagement Evaluation Tool (PPEET), qualitative insights on team engagement and reflexive thematic analysis of memos, and overview of survey categories and questions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Five co-design sessions resulted in the Social Media Building Blocks (SMBB) survey, refined through piloting with two youth with ABI and a health literacy review. PPEET data showed strong team engagement, with 5\/6 \u2018strongly agreeing\u2019 their views were heard and valued. Thematic analysis of team memos identified three themes: valuing diverse perspectives, enthusiastic engagement in co-design, and the importance of reflexivity. The final SMBB survey included four question categories: participation in online communication, accessibility, post-ABI communication experiences, and desired supports.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Project team members valued the collaborative survey design phases and engaging youth with ABI. Findings highlight co-design frameworks\u2019 potential to enhance engagement in rehabilitation research.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1071\/ib25005","type":"journal-article","created":{"date-parts":[[2025,9,15]],"date-time":"2025-09-15T01:30:09Z","timestamp":1757899809000},"source":"Crossref","is-referenced-by-count":1,"title":["Co-designing a survey on computer-mediated communication use among adolescents with acquired brain injury: evaluating participant experiences in a mixed-methods study"],"prefix":"10.1071","volume":"26","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4164-6716","authenticated-orcid":true,"given":"Lisa","family":"Kakonge","sequence":"first","affiliation":[{"name":"ASchool of Rehabilitation Science, McMaster University, Hamilton, ON, Canada."},{"name":"BHolland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada."},{"name":"CDepartment of Speech-Language Pathology, University of Toronto, Toronto, ON, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hannah","family":"Boamah","sequence":"additional","affiliation":[{"name":"DSchool of Community Services, Seneca Polytechnic College King Campus, King City, ON, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Shannon E.","family":"Scratch","sequence":"additional","affiliation":[{"name":"BHolland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada."},{"name":"EDepartment of Paediatrics, University of Toronto, Toronto, ON, Canada."},{"name":"FRehabilitation Sciences Institute, University of Toronto, Toronto, ON, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nnenna","family":"Utomi","sequence":"additional","affiliation":[{"name":"ASchool of Rehabilitation Science, McMaster University, Hamilton, ON, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Amtul","family":"Hayee","sequence":"additional","affiliation":[{"name":"GPeel District School Board, Brampton, ON, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Danaeya","family":"Wolfe","sequence":"additional","affiliation":[{"name":"ASchool of Rehabilitation Science, McMaster University, Hamilton, ON, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jessica","family":"Tomarchio","sequence":"additional","affiliation":[{"name":"BHolland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kathy","family":"Gravel","sequence":"additional","affiliation":[{"name":"BHolland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michelle","family":"Phoenix","sequence":"additional","affiliation":[{"name":"ASchool of Rehabilitation Science, McMaster University, Hamilton, ON, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Briano","family":"Di Rezze","sequence":"additional","affiliation":[{"name":"ASchool of Rehabilitation Science, McMaster University, Hamilton, ON, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Catherine","family":"Wiseman-Hakes","sequence":"additional","affiliation":[{"name":"ASchool of Rehabilitation Science, McMaster University, Hamilton, ON, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lyn S.","family":"Turkstra","sequence":"additional","affiliation":[{"name":"ASchool of Rehabilitation Science, McMaster University, Hamilton, ON, Canada."}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"67","published-online":{"date-parts":[[2025,9,15]]},"reference":[{"issue":"5","key":"2025111816261149300_R1","doi-asserted-by":"publisher","first-page":"369","DOI":"10.3109\/17518423.2010.499409","article-title":"Community integration interventions for youth with acquired brain injuries: a review.","volume":"13","author":"Agnihotri","year":"2010","journal-title":"Developmental Neurorehabilitation"},{"issue":"22","key":"2025111816261149300_R2","doi-asserted-by":"publisher","first-page":"1877","DOI":"10.3109\/09638281003734409","article-title":"iSupport: do social networking sites have a role to play in concussion awareness?","volume":"32","author":"Ahmed","year":"2010","journal-title":"Disability and Rehabilitation"},{"issue":"11","key":"2025111816261149300_R3","doi-asserted-by":"publisher","DOI":"10.1002\/cesm.70007","article-title":"\u201cInterest-holders\u201d: A new term to replace \u201cstakeholders\u201d in the context of health research and policy.","volume":"2","author":"Akl","year":"2024","journal-title":"Cochrane Evidence Synthesis and Methods"},{"issue":"9","key":"2025111816261149300_R4","doi-asserted-by":"publisher","first-page":"715","DOI":"10.1080\/01900692.2021.1912089","article-title":"Too Vulnerable to Involve? 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