{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,1]],"date-time":"2025-12-01T00:02:55Z","timestamp":1764547375306,"version":"3.46.0"},"reference-count":59,"publisher":"CSIRO Publishing","issue":"4","license":[{"start":{"date-parts":[[2025,11,26]],"date-time":"2025-11-26T00:00:00Z","timestamp":1764115200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":[],"published-print":{"date-parts":[[2025,12,23]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>To understand the experience of family members of people with severe acquired brain injury (ABI) as they support their loved one to commence community and social participation during inpatient rehabilitation and transition to the community.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Constructivist grounded theory methodology guided the process of data collection and analysis. Data were collected via in-depth interviews using a semi-structured interview guide.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Eight family members were interviewed, inclusive of five parents and three spouses of people living with severe ABI. The participants\u2019 family member with ABI were on average 4\u00a0years post-discharge from hospital at the time of the interview. Data analysis produced a core category: \u2018An arduous journey\u2019 and four categories: adjusting to change, overwhelming responsibility, learning on the job and needing people to understand.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Although family members clearly play an important role in the achievement of community and social participation, the participants of this study identified many factors that impact their experience of supporting positive outcomes. There are important implications for rehabilitation services, such as ensuring families feel welcomed and engaged within rehabilitation, positioning the person with ABI within their family context in rehabilitation, and providing opportunities for supported, meaningful and contextual experiences within rehabilitation.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1071\/ib25061","type":"journal-article","created":{"date-parts":[[2025,11,26]],"date-time":"2025-11-26T04:47:46Z","timestamp":1764132466000},"source":"Crossref","is-referenced-by-count":0,"title":["\u2018Thrown in the deep end\u2019: a qualitative study of community participation during inpatient rehabilitation and transition to community living from the perspective of family members of people with severe brain injury"],"prefix":"10.1071","volume":"26","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5692-3045","authenticated-orcid":true,"given":"Suzanne","family":"Currie","sequence":"first","affiliation":[{"name":"ASchool of Allied Health, Human Services & Sport, La Trobe University, Melbourne, Australia."},{"name":"BSummer Foundation, Melbourne, Australia."},{"name":"CAlfred Health, Melbourne, Australia."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jacinta","family":"Douglas","sequence":"additional","affiliation":[{"name":"ASchool of Allied Health, Human Services & Sport, La Trobe University, Melbourne, Australia."},{"name":"BSummer Foundation, Melbourne, Australia."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kate","family":"D\u2019Cruz","sequence":"additional","affiliation":[{"name":"ASchool of Allied Health, Human Services & Sport, La Trobe University, Melbourne, Australia."},{"name":"BSummer Foundation, Melbourne, Australia."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Di","family":"Winkler","sequence":"additional","affiliation":[{"name":"ASchool of Allied Health, Human Services & Sport, La Trobe University, Melbourne, Australia."},{"name":"BSummer Foundation, Melbourne, Australia."}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"67","published-online":{"date-parts":[[2025,12,1]]},"reference":[{"issue":"17","key":"2025113019014038300_R1","doi-asserted-by":"publisher","first-page":"1683","DOI":"10.1080\/09638288.2016.1211755","article-title":"Experiences of patients with traumatic brain injury and their carers during transition from inpatient rehabilitation to the community: a qualitative study.","volume":"39","author":"Abrahamson","year":"2017","journal-title":"Disability and Rehabilitation"},{"key":"2025113019014038300_R2","doi-asserted-by":"publisher","first-page":"820","DOI":"10.1111\/j.1471-6712.2012.01086.x","article-title":"Social identity and stroke: \u2018they don\u2019t make me feel like, there\u2019s something wrong with me.","volume":"27","author":"Anderson","year":"2013","journal-title":"Scandinavian Journal of Caring Sciences"},{"issue":"25","key":"2025113019014038300_R3","doi-asserted-by":"publisher","first-page":"7974","DOI":"10.1080\/09638288.2021.2005162","article-title":"\u201cThe bucket of gold at the end of the rainbow\u201d: personal experiences of hope after acquired brain injury.","volume":"44","author":"Bellon","year":"2022","journal-title":"Disability and Rehabilitation"},{"issue":"3\u20134","key":"2025113019014038300_R4","doi-asserted-by":"publisher","first-page":"285","DOI":"10.1080\/1536710X.2016.1220882","article-title":"Holding resilience in trust: Working systemically with families following an Acquired Brain Injury.","volume":"15","author":"Butera-Prinzi","year":"2016","journal-title":"Journal of Social Work in Disability & Rehabilitation"},{"issue":"10","key":"2025113019014038300_R5","doi-asserted-by":"publisher","first-page":"1655","DOI":"10.1080\/09638288.2022.2072959","article-title":"Who are relatives? 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