{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,23]],"date-time":"2026-01-23T05:27:02Z","timestamp":1769146022167,"version":"3.49.0"},"reference-count":86,"publisher":"Informa UK Limited","content-domain":{"domain":["www.tandfonline.com"],"crossmark-restriction":true},"short-container-title":["Medical Anthropology"],"DOI":"10.1080\/01459740.2026.2617654","type":"journal-article","created":{"date-parts":[[2026,1,22]],"date-time":"2026-01-22T14:14:37Z","timestamp":1769091277000},"page":"1-18","update-policy":"https:\/\/doi.org\/10.1080\/tandf_crossmark_01","source":"Crossref","is-referenced-by-count":0,"title":["Uterine Vulnerability: A Lived Experience Response to Endometriosis"],"prefix":"10.1080","author":[{"given":"Caroline","family":"Meier zu Biesen","sequence":"first","affiliation":[{"name":"Vrije Universiteit Amsterdam","place":["Amsterdam, the Netherlands"]}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"301","published-online":{"date-parts":[[2026,1,22]]},"reference":[{"key":"e_1_3_5_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2006.04.054"},{"key":"e_1_3_5_3_1","volume-title":"Endometriosis: The Complete Reference for Taking Charge of Your Health","author":"Ballweg Mary Lou.","year":"2003","unstructured":"Ballweg, Mary Lou. 2003 Endometriosis: The Complete Reference for Taking Charge of Your Health. New York, NY: McGraw-Hill."},{"key":"e_1_3_5_4_1","doi-asserted-by":"publisher","DOI":"10.1525\/sp.2002.49.3.279"},{"key":"e_1_3_5_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.12527"},{"key":"e_1_3_5_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ajog.2019.01.238"},{"key":"e_1_3_5_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.ep11339939"},{"key":"e_1_3_5_8_1","volume-title":"Experiences of Women with Endometriosis. An Interpretative Phenomenological Analysis","author":"Clark Michelle.","year":"2012","unstructured":"Clark, Michelle. 2012 Experiences of Women with Endometriosis. An Interpretative Phenomenological Analysis. Edinburgh: Queen Magaret University."},{"key":"e_1_3_5_9_1","volume-title":"Unwell Women. Misdiagnosis and Myth in a Man-Made World","author":"Cleghorn Elinor.","year":"2021","unstructured":"Cleghorn, Elinor. 2021 Unwell Women. Misdiagnosis and Myth in a Man-Made World. Weidenfeld & Nicolson, UK: Engels."},{"key":"e_1_3_5_10_1","doi-asserted-by":"publisher","DOI":"10.1177\/0959353520930602"},{"key":"e_1_3_5_11_1","doi-asserted-by":"publisher","DOI":"10.3917\/comla1.214.0073"},{"key":"e_1_3_5_12_1","volume-title":"Pain. A Sociological Introduction","author":"Denny Elaine.","year":"2017","unstructured":"Denny, Elaine. 2017 Pain. A Sociological Introduction. Cambridge, MA: Polity Press."},{"key":"e_1_3_5_13_1","article-title":"Reframing Endometriosis Histories. Conference paper at the conference Reframing Endometriosis","author":"Denny Elaine.","year":"2023","unstructured":"Denny, Elaine. 2023 Reframing Endometriosis Histories. Conference paper at the conference Reframing Endometriosis: Power, Politics and Potential Futures, Birmingham, July 6. British Academy\/Wellcome Trust Conference.","journal-title":"Power, Politics and Potential Futures, Birmingham"},{"key":"e_1_3_5_14_1","unstructured":"Denny Elaine L. Culley I. Papadopoulos and P. Apenteng 2010 Endometriosis and cultural diversity. Improving services for minority ethnic women. Birmingham: Final report for Research for Patient Benefit Grant: Birmingham City University."},{"key":"e_1_3_5_15_1","first-page":"733","volume-title":"The SAGE Handbook of Qualitative Research","author":"Ellis Carolyn","year":"2000","unstructured":"Ellis, Carolyn, and B. Art 2000 Autoethnography, personal narrative, reflexivity. Researcher as subject. In The SAGE Handbook of Qualitative Research. Norman K. Denzin and Yvonna S. Lincoln, eds. Pp. 733\u2013768. Thousand Oaks, CA: Sage."},{"key":"e_1_3_5_16_1","doi-asserted-by":"publisher","DOI":"10.17157\/mat.11.1.7390"},{"key":"e_1_3_5_17_1","doi-asserted-by":"publisher","DOI":"10.1037\/h0089849"},{"key":"e_1_3_5_18_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1005411818318"},{"key":"e_1_3_5_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2006.06.015"},{"key":"e_1_3_5_20_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMcp1000274"},{"key":"e_1_3_5_21_1","volume-title":"Stigma. Notes on the Management of Spoiled Identity","author":"Goffman Erving.","year":"1963","unstructured":"Goffman, Erving. 1963 Stigma. Notes on the Management of Spoiled Identity. New York: Touchstone."},{"key":"e_1_3_5_22_1","doi-asserted-by":"publisher","DOI":"10.1057\/s41286-017-0033-y"},{"key":"e_1_3_5_23_1","doi-asserted-by":"crossref","first-page":"35","DOI":"10.5040\/9781978731097.ch-2","volume-title":"Stigma Syndemics: New Directions in Biosocial Health. Lanham: Lexington Books","author":"Griffith V\u00e9ronique A.S.","year":"2017","unstructured":"Griffith, V\u00e9ronique A.S. 2017 The Syndemic of endometriosis, stress, and stigma. In Stigma Syndemics: New Directions in Biosocial Health. Lanham: Lexington Books. B Ostrach, S Lerman, and M Singer, eds. Pp. 35\u201360. https:\/\/rowman.com\/ISBN\/9781498552158\/Stigma-Syndemics-New-Directions-in-Biosocial-Health."},{"key":"e_1_3_5_24_1","volume-title":"Healers and Patients Talk \u2013 Narratives of a Chronic Gynecological Disease","author":"Griffith V\u00e9ronique A.S.","year":"2020","unstructured":"Griffith, V\u00e9ronique A.S. 2020 Healers and Patients Talk \u2013 Narratives of a Chronic Gynecological Disease. London: Lexington Books."},{"key":"e_1_3_5_25_1","doi-asserted-by":"crossref","first-page":"269","DOI":"10.1007\/978-981-15-0614-7_22","volume-title":"The Palgrave Handbook of Critical Menstruation","author":"Guidone Heather C.","year":"2020","unstructured":"Guidone, Heather C. 2020 The womb wanders not. Enhancing endometriosis education in a culture of menstrual misinformation. In The Palgrave Handbook of Critical Menstruation. Chris Bobel, Inga T. Winkler, Breanne Fahs, Katie Ann Hasson, Elizabeth Arveda Kissling, and Tomi-Ann Roberts, eds. Pp. 269\u2013286. Singapore: Palgrave Macmillan Singapore."},{"key":"e_1_3_5_26_1","doi-asserted-by":"publisher","DOI":"10.1017\/hyp.2023.116"},{"issue":"4","key":"e_1_3_5_27_1","article-title":"Endo Episteme: Epistemic injustice and the misrecognition of endometriosis","volume":"10","author":"Hallstr\u00f6m Ina","year":"2024","unstructured":"Hallstr\u00f6m, Ina 2024b Endo Episteme: Epistemic injustice and the misrecognition of endometriosis. Feminist Philosophy Quarterly 10(4): https:\/\/ojs.lib.uwo.ca\/index.php\/fpq\/article\/view\/16491.","journal-title":"Feminist Philosophy Quarterly"},{"key":"e_1_3_5_28_1","volume-title":"Please Read This Leaflet Carefully. Keep This Leaflet. You May Need to Read it Again","author":"Havelin Karen.","year":"2019","unstructured":"Havelin, Karen. 2019 Please Read This Leaflet Carefully. Keep This Leaflet. You May Need to Read it Again. New York: Dottir Press."},{"key":"e_1_3_5_29_1","volume-title":"Black and Blue : The Origins and Consequences of Medical Racism","author":"Hoberman John.","year":"2012","unstructured":"Hoberman, John. 2012 Black and Blue : The Origins and Consequences of Medical Racism. Berkeley, CA: University of California Press."},{"key":"e_1_3_5_30_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.rbms.2021.07.003"},{"key":"e_1_3_5_31_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.12392"},{"key":"e_1_3_5_32_1","first-page":"138","volume-title":"Pain as Human Experience. An Anthropological Perspective","author":"Jackson Jean E.","year":"1992","unstructured":"Jackson, Jean E. 1992 \u2018After a while No one Nelieves you\u2019. Real and unreal pain. In Pain as Human Experience. An Anthropological Perspective. Mary-Jo DelVecchio Good, Paul Brodwin, Byron J. Good, and Arthur Kleinman, eds. Pp. 138\u2013168. Berkeley, CA: University of California Press."},{"key":"e_1_3_5_33_1","doi-asserted-by":"publisher","DOI":"10.1080\/00497878.2015.1078212"},{"key":"e_1_3_5_34_1","doi-asserted-by":"publisher","DOI":"10.1080\/10894160.2020.1778852"},{"key":"e_1_3_5_35_1","first-page":"733","volume-title":"The SAGE Handbook of Qualitative Research","author":"Jones Stacy H.","year":"2005","unstructured":"Jones, Stacy H. 2005 Autoethnography. Making the personal political. In The SAGE Handbook of Qualitative Research. Norman K. Denzin and Yvonna S. Lincoln, eds. Pp. 733\u2013768. Thousand Oaks, CA: Sage."},{"key":"e_1_3_5_36_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-9566.2008.01152.x"},{"key":"e_1_3_5_37_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2011.07.014"},{"key":"e_1_3_5_38_1","doi-asserted-by":"publisher","DOI":"10.1086\/705782"},{"key":"e_1_3_5_39_1","volume-title":"A Memoir","author":"Khakpour Porochista.","year":"2018","unstructured":"Khakpour, Porochista. 2018 A Memoir. Edinburgh: Canongate."},{"key":"e_1_3_5_40_1","doi-asserted-by":"publisher","DOI":"10.1080\/13697137.2019.1578743"},{"key":"e_1_3_5_41_1","doi-asserted-by":"publisher","DOI":"10.1525\/maq.1992.6.4.02a00020"},{"key":"e_1_3_5_42_1","doi-asserted-by":"publisher","DOI":"10.1111\/awr.70005"},{"key":"e_1_3_5_43_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-1-349-21176-0"},{"key":"e_1_3_5_44_1","doi-asserted-by":"crossref","first-page":"17","DOI":"10.1007\/978-94-015-7924-7_2","volume-title":"The Body in Medical Thought and Practice","author":"Leder Drew.","year":"1992","unstructured":"Leder, Drew. 1992 A tale of two bodies. The cartesian corpse and the lived body. In The Body in Medical Thought and Practice. Drew Leder, ed. Pp. 17\u201335. Dordrecht: Springer Dordrecht."},{"key":"e_1_3_5_45_1","volume-title":"Bleed. Destroying Myths and Misogyny in Endometriosis Care","author":"Lindeman Tracey.","year":"2023","unstructured":"Lindeman, Tracey. 2023 Bleed. Destroying Myths and Misogyny in Endometriosis Care. Toronto, ON: ECW Press."},{"key":"e_1_3_5_46_1","volume-title":"Bleed: Destroying Myths and Misogyny in Endometriosis Care","author":"Lindeman Tracey.","year":"2023","unstructured":"Lindeman, Tracey. 2023 Bleed: Destroying Myths and Misogyny in Endometriosis Care. Toronto: ECW Press."},{"key":"e_1_3_5_47_1","first-page":"94","volume-title":"Foucault, Health and Medicine","author":"Lupton Deborah.","year":"1997","unstructured":"Lupton, Deborah. 1997 Foucault and the Medicalisation Critique. In Foucault, Health and Medicine. Alan Peterson and Bryan S. Turner, eds. Pp. 94\u2013110. London: Routledge."},{"key":"e_1_3_5_48_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732308315432"},{"key":"e_1_3_5_49_1","unstructured":"Mantel Hilary. 2004 Every part of my body hurt. The Guardian. June 07. https:\/\/www.theguardian.com\/society\/2004\/jun\/07\/health.genderissues accessed January 15 2024."},{"key":"e_1_3_5_50_1","volume-title":"GIVING UP THE GHOST. A Memoir","author":"Mantel Hilary.","year":"2010","unstructured":"Mantel, Hilary. 2010 GIVING UP THE GHOST. A Memoir. London: Fourth Estate."},{"key":"e_1_3_5_51_1","volume-title":"Disability: Controversial Debates and Psychosocial Perspectives","author":"Marks Deborah.","year":"1999","unstructured":"Marks, Deborah. 1999 Disability: Controversial Debates and Psychosocial Perspectives. London and New York: Routledge."},{"key":"e_1_3_5_52_1","doi-asserted-by":"publisher","DOI":"10.1111\/soc4.12058"},{"key":"e_1_3_5_53_1","volume-title":"Endometriose - Die untersch\u00e4tzte Krankheit. Diagnose, Behandlung und was Sie selbst tun k\u00f6nnen [Endometriosis \u2013 The underestimated disease. Diagnosis, treatment, and what you can do]","author":"Mechsner Sylvia.","year":"2021","unstructured":"Mechsner, Sylvia. 2021 Endometriose - Die untersch\u00e4tzte Krankheit. Diagnose, Behandlung und was Sie selbst tun k\u00f6nnen [Endometriosis \u2013 The underestimated disease. Diagnosis, treatment, and what you can do]. M\u00fcnchen: ZS Verlag GmbH."},{"key":"e_1_3_5_54_1","doi-asserted-by":"publisher","DOI":"10.4000\/rac.686>7"},{"key":"e_1_3_5_55_1","doi-asserted-by":"publisher","DOI":"10.4324\/9780203927076"},{"key":"e_1_3_5_56_1","doi-asserted-by":"publisher","DOI":"10.1186\/1472-6874-14-123"},{"key":"e_1_3_5_57_1","doi-asserted-by":"publisher","DOI":"10.1177\/160940690500400105"},{"key":"e_1_3_5_58_1","volume-title":"The Body Silent. The Different World of the Disabled","author":"Murphy Robert F.","year":"2001","unstructured":"Murphy, Robert F. 2001 The Body Silent. The Different World of the Disabled. New York and London: W.W. Norton."},{"key":"e_1_3_5_59_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2012.08.001"},{"key":"e_1_3_5_60_1","volume-title":"Ask Me About My Uterus. A Quest to Make Doctors Believe in Women\u2019s Pain","author":"Norman Abby.","year":"2018","unstructured":"Norman, Abby. 2018 Ask Me About My Uterus. A Quest to Make Doctors Believe in Women\u2019s Pain. New York: Nation Books."},{"key":"e_1_3_5_61_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.c3727"},{"key":"e_1_3_5_62_1","doi-asserted-by":"publisher","DOI":"10.1146\/annurev.so.18.080192.001233"},{"key":"e_1_3_5_63_1","volume-title":"Coping with Endometriosis. A Practical Guide to Understanding, Treating, and Living with Chronic Endometriosis","author":"Phillips Robert H.","year":"2000","unstructured":"Phillips, Robert H., and G. Motta 2000 Coping with Endometriosis. A Practical Guide to Understanding, Treating, and Living with Chronic Endometriosis. New York: Avery."},{"key":"e_1_3_5_64_1","doi-asserted-by":"publisher","DOI":"10.1016\/s1701-2163(16)30050-0"},{"key":"e_1_3_5_65_1","doi-asserted-by":"publisher","DOI":"10.1353\/ff.2018.0010"},{"key":"e_1_3_5_66_1","doi-asserted-by":"publisher","DOI":"10.1177\/104973230832586"},{"key":"e_1_3_5_67_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.12281"},{"key":"e_1_3_5_68_1","doi-asserted-by":"crossref","DOI":"10.1515\/9781400827503","volume-title":"The Politics of Life Itself : Biomedicine, Power, and Subjectiviry in the Twenty-First Century","author":"Rose Nicholas.","year":"2007","unstructured":"Rose, Nicholas. 2007 The Politics of Life Itself : Biomedicine, Power, and Subjectiviry in the Twenty-First Century. Oxford: Princeton University Press."},{"key":"e_1_3_5_69_1","doi-asserted-by":"publisher","DOI":"10.1007\/s12529-022-10118-1"},{"key":"e_1_3_5_70_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.13367"},{"key":"e_1_3_5_71_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2009.07.023"},{"key":"e_1_3_5_72_1","volume-title":"The Makings of a Modern Epidemic. Endometriosis, Gender and Politics","author":"Seear Kate.","year":"2014","unstructured":"Seear, Kate. 2014 The Makings of a Modern Epidemic. Endometriosis, Gender and Politics. Farnham and Burlington, VT: Ashgate."},{"key":"e_1_3_5_73_1","doi-asserted-by":"publisher","DOI":"10.1215\/02705346-10-2_29-57"},{"key":"e_1_3_5_74_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12905-023-02794-2"},{"key":"e_1_3_5_75_1","first-page":"21","volume-title":"Chronic Conditions, Fluid States. Chronicity and the Anthropology of Illnes","author":"Smith-Morris Carolyn.","year":"2010","unstructured":"Smith-Morris, Carolyn. The chronicity of life, the acuteness of diagnosis. In Lenore Manderson, and Carolyn Smith-Morris, eds. 2010 Chronic Conditions, Fluid States. Chronicity and the Anthropology of Illnes. Pp. 21\u201337. New Brunswick, NJ: Rutgers University Press."},{"key":"e_1_3_5_76_1","volume-title":"Recollections of My Non-Existence","author":"Solnit Rebecca.","year":"2020","unstructured":"Solnit, Rebecca. 2020 Recollections of My Non-Existence. London: Granta."},{"key":"e_1_3_5_77_1","doi-asserted-by":"publisher","DOI":"10.1155\/2014\/179515"},{"key":"e_1_3_5_78_1","doi-asserted-by":"publisher","DOI":"10.1080\/09612020000200260"},{"key":"e_1_3_5_79_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(21)00389-5"},{"key":"e_1_3_5_80_1","volume-title":"Private Parts. How to Really Live with Endometriosis","author":"Thom Eleanor.","year":"2019","unstructured":"Thom, Eleanor. 2019 Private Parts. How to Really Live with Endometriosis. London: Coronet."},{"key":"e_1_3_5_81_1","doi-asserted-by":"crossref","DOI":"10.4324\/9780203328422","volume-title":"Managing the Monstrous Feminine. Regulating the Reproductive Body","author":"Ussher Jane M.","year":"2006","unstructured":"Ussher, Jane M. 2006 Managing the Monstrous Feminine. Regulating the Reproductive Body. London: Routledge."},{"key":"e_1_3_5_82_1","article-title":"Chronic living: Ethnographic explorations of daily lives swayed by (multiple) medical conditions","author":"Wahlberg Ayo","year":"2021","unstructured":"Wahlberg, Ayo, J. Lee, A. Mann, A. Dokumaci, N. Kingod, M. Kofod Svensson, and L. Louise Heinsen 2021 Chronic living: Ethnographic explorations of daily lives swayed by (multiple) medical conditions. Somatosphere. https:\/\/somatosphere.com\/2021\/chronic-living.html\/, accessed February 25, 2021.","journal-title":"Somatosphere"},{"key":"e_1_3_5_83_1","doi-asserted-by":"publisher","DOI":"10.1177\/13634593030074005"},{"key":"e_1_3_5_84_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-9566.2007.01024.x"},{"key":"e_1_3_5_85_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1548-1387.2009.01034.x"},{"key":"e_1_3_5_86_1","doi-asserted-by":"publisher","DOI":"10.1177\/095935351881570"},{"key":"e_1_3_5_87_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1573-7861.2012.01357.x"}],"container-title":["Medical Anthropology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.tandfonline.com\/doi\/pdf\/10.1080\/01459740.2026.2617654","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,1,22]],"date-time":"2026-01-22T14:14:43Z","timestamp":1769091283000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/01459740.2026.2617654"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,1,22]]},"references-count":86,"alternative-id":["10.1080\/01459740.2026.2617654"],"URL":"https:\/\/doi.org\/10.1080\/01459740.2026.2617654","relation":{},"ISSN":["0145-9740","1545-5882"],"issn-type":[{"value":"0145-9740","type":"print"},{"value":"1545-5882","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,1,22]]},"assertion":[{"value":"The publishing and review policy for this title is described in its Aims & Scope.","order":1,"name":"peerreview_statement","label":"Peer Review Statement"},{"value":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=gmea20","URL":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=gmea20","order":2,"name":"aims_and_scope_url","label":"Aim & Scope"},{"value":"2026-01-22","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}