{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,8]],"date-time":"2026-05-08T20:21:33Z","timestamp":1778271693774,"version":"3.51.4"},"reference-count":35,"publisher":"Informa UK Limited","issue":"9","content-domain":{"domain":["www.tandfonline.com"],"crossmark-restriction":true},"short-container-title":["Death Studies"],"published-print":{"date-parts":[[2022,10,21]]},"DOI":"10.1080\/07481187.2021.1909669","type":"journal-article","created":{"date-parts":[[2021,4,17]],"date-time":"2021-04-17T10:32:26Z","timestamp":1618655546000},"page":"2198-2207","update-policy":"https:\/\/doi.org\/10.1080\/tandf_crossmark_01","source":"Crossref","is-referenced-by-count":10,"title":["The impact of anencephaly on parents: A mixed-methods study"],"prefix":"10.1080","volume":"46","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1681-7328","authenticated-orcid":false,"given":"Shandeigh N.","family":"Berry","sequence":"first","affiliation":[{"name":"College of Arts & Sciences, Saint Martin\u2019s University, Olympia, Washington, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Billie","family":"Severtsen","sequence":"additional","affiliation":[{"name":"College of Nursing, Washington State University, Spokane, Washington, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Andra","family":"Davis","sequence":"additional","affiliation":[{"name":"College of Nursing, Washington State University, Spokane, Washington, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lonnie","family":"Nelson","sequence":"additional","affiliation":[{"name":"College of Nursing, Washington State University, Spokane, Washington, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marianne H.","family":"Hutti","sequence":"additional","affiliation":[{"name":"College of Nursing, University of Kentucky, Louisville, Kentucky, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Gail","family":"Oneal","sequence":"additional","affiliation":[{"name":"College of Nursing, Washington State University, Spokane, Washington, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"301","published-online":{"date-parts":[[2021,4,17]]},"reference":[{"key":"CIT0001","doi-asserted-by":"publisher","DOI":"10.1007\/s11019-015-9639-4"},{"key":"CIT0002","doi-asserted-by":"publisher","DOI":"10.1038\/jp.2011.22"},{"key":"CIT0003","doi-asserted-by":"publisher","DOI":"10.1097\/JPN.0000000000000390"},{"key":"CIT0004","doi-asserted-by":"publisher","DOI":"10.1097\/01.AOG.0000264548.10767.ea"},{"key":"CIT0005","doi-asserted-by":"publisher","DOI":"10.1097\/NMC.0000000000000495"},{"key":"CIT0006","unstructured":"CDC. (2017).Facts about anencephaly. CDC. https:\/\/www.cdc.gov\/ncbddd\/birthdefects\/anencephaly.html"},{"key":"CIT0007","doi-asserted-by":"publisher","DOI":"10.1016\/j.jogn.2017.01.014"},{"key":"CIT0008","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2011.0165"},{"key":"CIT0009","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2016.02.033"},{"key":"CIT0010","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2006.03898.x"},{"issue":"138","key":"CIT0011","first-page":"1","volume":"17","author":"Due C.","year":"2017","journal-title":"BMC"},{"key":"CIT0013","volume-title":"Encyclopedia of nursing research","author":"Fitzpatrick J. J.","year":"2012","edition":"3"},{"key":"CIT0015","first-page":"2014","volume":"316","author":"Gregory E. C.","year":"2018","journal-title":"NCHS Data Brief"},{"key":"CIT0016","doi-asserted-by":"publisher","DOI":"10.5811\/westjem.2016.5.30326"},{"key":"CIT0017","unstructured":"Hannon, P. (2020). Clarity, honesty matter most in critical\u00a0care talks with patients.Stanford Medicine News Latter. https:\/\/med.stanford.edu\/news\/all-news\/2019\/12\/clarity\u2013honesty-matter-most-in-critical-care-talks-with-patient.html"},{"key":"CIT0018","volume-title":"Being and time","author":"Heidegger M.","year":"1927","edition":"7"},{"issue":"7","key":"CIT0019","first-page":"1","volume":"65","author":"Hoyert D. L.","year":"2016","journal-title":"Mational Vital Statistics"},{"key":"CIT0020","unstructured":"Hutti, M. (2017). Perinatal grief intensity scale. http:\/\/uoflnursingpgis.org\/pgis\/"},{"key":"CIT0021","doi-asserted-by":"publisher","DOI":"10.1080\/07481189208252588"},{"key":"CIT0022","doi-asserted-by":"publisher","DOI":"10.1111\/1552-6909.12249"},{"key":"CIT0023","doi-asserted-by":"publisher","DOI":"10.1111\/1552-6909.12539"},{"key":"CIT0024","doi-asserted-by":"publisher","DOI":"10.1016\/j.jogn.2018.01.003"},{"key":"CIT0025","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpsychores.2017.07.016"},{"key":"CIT0026","doi-asserted-by":"publisher","DOI":"10.17265\/2159-5313\/2016.09.003"},{"key":"CIT0027","doi-asserted-by":"publisher","DOI":"10.3928\/0148-4834-20031101-09"},{"key":"CIT0028","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2393-12-137"},{"key":"CIT0029","doi-asserted-by":"publisher","DOI":"10.31887\/DCNS.2012.14.2\/akersting"},{"issue":"6","key":"CIT0030","first-page":"CD000452","volume":"2013","author":"Koopmans L.","year":"2013","journal-title":"Cochrane Database of Systematic Reviews"},{"key":"CIT0031","doi-asserted-by":"publisher","DOI":"10.1177\/1049732313484198"},{"key":"CIT0032","doi-asserted-by":"publisher","DOI":"10.1111\/birt.12217"},{"key":"CIT0034","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0191635"},{"issue":"2","key":"CIT0036","first-page":"512","volume":"110","author":"Nuzum D.","year":"2017","journal-title":"Irish Medical Journal"},{"key":"CIT0037","doi-asserted-by":"publisher","DOI":"10.1016\/j.midw.2018.12.016"},{"key":"CIT0038","doi-asserted-by":"publisher","DOI":"10.1080\/02646831003587346"},{"issue":"3","key":"CIT0039","doi-asserted-by":"crossref","first-page":"8","DOI":"10.37464\/2006.233.1929","volume":"23","author":"St John A.","year":"2006","journal-title":"Australian Journal of Advanced Nursing"}],"container-title":["Death Studies"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.tandfonline.com\/doi\/pdf\/10.1080\/07481187.2021.1909669","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,8,28]],"date-time":"2024-08-28T16:38:33Z","timestamp":1724863113000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/07481187.2021.1909669"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,4,17]]},"references-count":35,"journal-issue":{"issue":"9","published-print":{"date-parts":[[2022,10,21]]}},"alternative-id":["10.1080\/07481187.2021.1909669"],"URL":"https:\/\/doi.org\/10.1080\/07481187.2021.1909669","relation":{},"ISSN":["0748-1187","1091-7683"],"issn-type":[{"value":"0748-1187","type":"print"},{"value":"1091-7683","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,4,17]]},"assertion":[{"value":"The publishing and review policy for this title is described in its Aims & Scope.","order":1,"name":"peerreview_statement","label":"Peer Review Statement"},{"value":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=udst20","URL":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=udst20","order":2,"name":"aims_and_scope_url","label":"Aim & Scope"},{"value":"2021-04-17","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}