{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,10]],"date-time":"2026-07-10T03:54:27Z","timestamp":1783655667621,"version":"3.55.0"},"reference-count":48,"publisher":"Informa UK Limited","issue":"1","license":[{"start":{"date-parts":[[2026,4,12]],"date-time":"2026-04-12T00:00:00Z","timestamp":1775952000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100001809","name":"National Natural Science Foundation of China","doi-asserted-by":"publisher","award":["81300130"],"award-info":[{"award-number":["81300130"]}],"id":[{"id":"10.13039\/501100001809","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Science and Technology Projects for People\u2019s Livelihood of Liaoning Province","award":["2021JH\/10300008"],"award-info":[{"award-number":["2021JH\/10300008"]}]},{"name":"Basic Research Projects of Liaoning Province","award":["JYTMS20230073"],"award-info":[{"award-number":["JYTMS20230073"]}]},{"name":"Provincial Natural Science Foundation Joint Fund of Liaoning","award":["2023-BSBA-363"],"award-info":[{"award-number":["2023-BSBA-363"]}]}],"content-domain":{"domain":["www.tandfonline.com"],"crossmark-restriction":true},"short-container-title":["Annals of Medicine"],"published-print":{"date-parts":[[2026,12,31]]},"DOI":"10.1080\/07853890.2026.2649405","type":"journal-article","created":{"date-parts":[[2026,4,13]],"date-time":"2026-04-13T06:48:17Z","timestamp":1776062897000},"update-policy":"https:\/\/doi.org\/10.1080\/tandf_crossmark_01","source":"Crossref","is-referenced-by-count":1,"title":["Development and validation of a self-management efficacy questionnaire for patients with Fabry disease in China"],"prefix":"10.1080","volume":"58","author":[{"given":"Mei-ling","family":"Cao","sequence":"first","affiliation":[{"name":"Department of Neonatology, The First Hospital of China Medical University","place":["Shenyang, China"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jia-hui","family":"Zou","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, The First Hospital of China Medical University","place":["Shenyang, China"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ming-yue","family":"Shi","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, The First Hospital of China Medical University","place":["Shenyang, China"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yuan-hui","family":"Sun","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, The First Hospital of China Medical University","place":["Shenyang, China"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dan-yang","family":"Zhao","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, The First Hospital of China Medical University","place":["Shenyang, China"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lei","family":"Li","sequence":"additional","affiliation":[{"name":"Department of Orthopaedic Surgery, Shengjing Hospital of China Medical University","place":["Shenyang, China"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hong-kun","family":"Jiang","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, The First Hospital of China Medical University","place":["Shenyang, China"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"301","published-online":{"date-parts":[[2026,4,12]]},"reference":[{"key":"e_1_3_7_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(08)61589-5"},{"key":"e_1_3_7_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ymgme.2022.07.010"},{"key":"e_1_3_7_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(11)61266-X"},{"key":"e_1_3_7_5_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10545-017-0098-3"},{"key":"e_1_3_7_6_1","volume-title":"GeneReviews\u00ae","author":"Mehta A","year":"1993","unstructured":"Mehta A, Hughes DA. Fabry Disease. In: adam MP, Feldman J, Mirzaa GM, et al. eds. GeneReviews\u00ae. University of Washington, Seattle; 1993. Accessed April 20, 2024. http:\/\/www.ncbi.nlm.nih.gov\/books\/NBK1292\/"},{"key":"e_1_3_7_7_1","doi-asserted-by":"publisher","DOI":"10.20452\/pamw.15117"},{"key":"e_1_3_7_8_1","doi-asserted-by":"publisher","DOI":"10.1038\/jhg.2015.155"},{"key":"e_1_3_7_9_1","doi-asserted-by":"publisher","DOI":"10.2174\/1570159X20666220601124117"},{"key":"e_1_3_7_10_1","doi-asserted-by":"publisher","DOI":"10.1002\/jmd2.12240"},{"key":"e_1_3_7_11_1","doi-asserted-by":"publisher","DOI":"10.1177\/1090198104263660"},{"key":"e_1_3_7_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2702.2006.01304.x"},{"key":"e_1_3_7_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/2047-3095.12143"},{"key":"e_1_3_7_14_1","doi-asserted-by":"publisher","DOI":"10.1186\/1477-7525-7-86"},{"key":"e_1_3_7_15_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-019-1254-7"},{"key":"e_1_3_7_16_1","doi-asserted-by":"publisher","DOI":"10.1037\/\/0033-295x.84.2.191"},{"key":"e_1_3_7_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2702.2006.01573.x"},{"key":"e_1_3_7_18_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-009-9540-9"},{"key":"e_1_3_7_19_1","doi-asserted-by":"publisher","DOI":"10.3760\/cma.j.cn112138-20201218-01028"},{"key":"e_1_3_7_20_1","doi-asserted-by":"publisher","DOI":"10.5116\/ijme.4dfb.8dfd28029643"},{"key":"e_1_3_7_21_1","doi-asserted-by":"publisher","DOI":"10.1016\/s0895-4356(03)00084-2"},{"key":"e_1_3_7_22_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijms25105158"},{"key":"e_1_3_7_23_1","doi-asserted-by":"publisher","DOI":"10.2215\/CJN.09480819"},{"key":"e_1_3_7_24_1","doi-asserted-by":"publisher","DOI":"10.1159\/000540236"},{"key":"e_1_3_7_25_1","doi-asserted-by":"publisher","DOI":"10.3390\/diseases9040072"},{"key":"e_1_3_7_26_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnurstu.2009.09.011"},{"key":"e_1_3_7_27_1","doi-asserted-by":"publisher","DOI":"10.1177\/0306624X20904703"},{"key":"e_1_3_7_28_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0292426"},{"key":"e_1_3_7_29_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jad.2019.10.026"},{"key":"e_1_3_7_30_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.sapharm.2018.03.066"},{"key":"e_1_3_7_31_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12955-023-02134-w"},{"key":"e_1_3_7_32_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10545-017-0095-6"},{"key":"e_1_3_7_33_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ymgme.2023.107692"},{"key":"e_1_3_7_34_1","doi-asserted-by":"publisher","DOI":"10.1023\/a:1015511908710"},{"key":"e_1_3_7_35_1","doi-asserted-by":"publisher","DOI":"10.1023\/a:1015009210639"},{"key":"e_1_3_7_36_1","doi-asserted-by":"publisher","DOI":"10.1136\/heartjnl-2020-317922"},{"key":"e_1_3_7_37_1","unstructured":"Females with Fabry disease frequently have major organ involvement: lessons from the Fabry Registry - PubMed. Accessed June 1 ; 2024. https:\/\/pubmed.ncbi.nlm.nih.gov\/18037317\/."},{"key":"e_1_3_7_38_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2020.12.024"},{"key":"e_1_3_7_39_1","unstructured":"Accumulation of \u03b1-synuclein mediates podocyte injury in Fabry nephropathy - PubMed. Accessed June 1 2024. https:\/\/pubmed.ncbi.nlm.nih.gov\/37014703\/."},{"key":"e_1_3_7_40_1","doi-asserted-by":"publisher","DOI":"10.1172\/jci.insight.172869"},{"key":"e_1_3_7_41_1","doi-asserted-by":"publisher","DOI":"10.1164\/rccm.202303-0505OC"},{"key":"e_1_3_7_42_1","unstructured":"2022 National Standards for Diabetes Self-Management Education and Support - PubMed. Accessed May 25 2024. https:\/\/pubmed.ncbi.nlm.nih.gov\/35050365\/."},{"key":"e_1_3_7_43_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamainternmed.2021.4097"},{"key":"e_1_3_7_44_1","doi-asserted-by":"publisher","DOI":"10.1186\/1477-7525-10-116"},{"key":"e_1_3_7_45_1","unstructured":"EuroQol\u2013a new facility for the measurement of health-related quality of life - PubMed. Accessed June 1 2024. https:\/\/pubmed.ncbi.nlm.nih.gov\/10109801\/."},{"key":"e_1_3_7_46_1","doi-asserted-by":"publisher","DOI":"10.1097\/j.pain.0000000000002691"},{"key":"e_1_3_7_47_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10545-013-9643-x"},{"key":"e_1_3_7_48_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-020-1307-y"},{"key":"e_1_3_7_49_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ymgme.2023.107585"}],"container-title":["Annals of Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.tandfonline.com\/doi\/pdf\/10.1080\/07853890.2026.2649405","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,13]],"date-time":"2026-04-13T06:48:24Z","timestamp":1776062904000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/07853890.2026.2649405"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,4,12]]},"references-count":48,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2026,12,31]]}},"alternative-id":["10.1080\/07853890.2026.2649405"],"URL":"https:\/\/doi.org\/10.1080\/07853890.2026.2649405","relation":{},"ISSN":["0785-3890","1365-2060"],"issn-type":[{"value":"0785-3890","type":"print"},{"value":"1365-2060","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,4,12]]},"assertion":[{"value":"The publishing and review policy for this title is described in its Aims & Scope.","order":1,"name":"peerreview_statement","label":"Peer Review Statement"},{"value":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=iann20","URL":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=iann20","order":2,"name":"aims_and_scope_url","label":"Aim & Scope"},{"value":"2025-09-23","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-03-18","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-04-12","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"2649405"}}