{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,6]],"date-time":"2026-09-06T17:47:37Z","timestamp":1788716857559,"version":"build-2803163510"},"reference-count":20,"publisher":"Informa UK Limited","issue":"16","funder":[{"name":"Rare Disease Foundation and the BC Children\u2019s Hospital Foundation","award":["173\u201316"],"award-info":[{"award-number":["173\u201316"]}]}],"content-domain":{"domain":["www.tandfonline.com"],"crossmark-restriction":true},"short-container-title":["Disability and Rehabilitation"],"published-print":{"date-parts":[[2020,7,30]]},"DOI":"10.1080\/09638288.2018.1557268","type":"journal-article","created":{"date-parts":[[2019,1,29]],"date-time":"2019-01-29T21:58:35Z","timestamp":1548799115000},"page":"2304-2310","update-policy":"https:\/\/doi.org\/10.1080\/tandf_crossmark_01","source":"Crossref","is-referenced-by-count":7,"title":["Challenges and support service preferences of informal caregivers of people with systemic sclerosis: a cross-sectional survey"],"prefix":"10.1080","volume":"42","author":[{"given":"Danielle B.","family":"Rice","sequence":"first","affiliation":[{"name":"Lady Davis Institute, Jewish General Hospital, Montreal, QC, Canada;"},{"name":"Department of Psychology, McGill University, Montreal, QC, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mara","family":"Ca\u00f1edo-Ayala","sequence":"additional","affiliation":[{"name":"Lady Davis Institute, Jewish General Hospital, Montreal, QC, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrea","family":"Carboni-Jim\u00e9nez","sequence":"additional","affiliation":[{"name":"Lady Davis Institute, Jewish General Hospital, Montreal, QC, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marie-Eve","family":"Carrier","sequence":"additional","affiliation":[{"name":"Lady Davis Institute, Jewish General Hospital, Montreal, QC, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Julie","family":"Cumin","sequence":"additional","affiliation":[{"name":"Lady Davis Institute, Jewish General Hospital, Montreal, QC, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vanessa L.","family":"Malcarne","sequence":"additional","affiliation":[{"name":"Department of Psychology, San Diego State University, San Diego, CA, USA;"},{"name":"San Diego Joint Doctoral Program in Clinical Psychology, San Diego State University\/University of California, San Diego, CA, USA;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mari\u00ebt","family":"Hagedoorn","sequence":"additional","affiliation":[{"name":"University Medical Center Groningen, University of Groningen, Groningen, The Netherlands;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brett D.","family":"Thombs","sequence":"additional","affiliation":[{"name":"Lady Davis Institute, Jewish General Hospital, Montreal, QC, Canada;"},{"name":"Department of Psychology, McGill University, Montreal, QC, Canada;"},{"name":"Department of Psychiatry, McGill University, Montreal, QC, Canada;"},{"name":"Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montreal, QC, Canada;"},{"name":"Department of Medicine, McGill University, Montreal, QC, Canada;"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"Scleroderma Caregiver Advisory Team","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"301","published-online":{"date-parts":[[2019,1,29]]},"reference":[{"key":"CIT0001","doi-asserted-by":"publisher","DOI":"10.1016\/j.it.2005.09.004"},{"key":"CIT0002","doi-asserted-by":"publisher","DOI":"10.1002\/art.11073"},{"key":"CIT0003","doi-asserted-by":"publisher","DOI":"10.1016\/j.mayocp.2013.01.018"},{"key":"CIT0004","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2015.0464"},{"key":"CIT0005","unstructured":"Shire Report. Rare disease impact report: insights from patients and the medical community Global Genes Organization (US); 2013. Available from: https:\/\/globalgenes.org\/wp-content\/uploads\/2013\/04\/ShireReport-1.pdf"},{"key":"CIT0006","doi-asserted-by":"publisher","DOI":"10.1002\/acr.22167"},{"key":"CIT0007","volume-title":"Caring for a loved one with scleroderma: experiences of caregivers","author":"Maril V","year":"2012"},{"key":"CIT0008","unstructured":"National Alliance for Caregiving and AARP Public Policy Institute. Caregiving in the U.S. 2015 Report. National Alliance for Caregiving and AARP Public Policy Institute (US); 2015. Available from: https:\/\/www.aarp.org\/content\/dam\/aarp\/ppi\/2015\/caregiving-in-the-united-states-2015-report-revised.pdf"},{"key":"CIT0009","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2017-019726"},{"key":"CIT0010","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2013-003563"},{"key":"CIT0011","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2014.304"},{"key":"CIT0012","volume-title":"Guide for informal caregivers [Internet]","author":"Scleroderma Q","year":"2016"},{"key":"CIT0013","volume-title":"Scleroderma Foundation Michigian Chapter\u2019s guide for caregivers [Internet]","author":"Scleroderma Foundation Michigan Chapter"},{"key":"CIT0014","doi-asserted-by":"publisher","DOI":"10.1002\/gps.4016"},{"key":"CIT0015","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610206003462"},{"key":"CIT0016","doi-asserted-by":"publisher","DOI":"10.3109\/13682820109177887"},{"key":"CIT0017","doi-asserted-by":"publisher","DOI":"10.1007\/BF03404984"},{"key":"CIT0018","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2214.2006.00619.x"},{"key":"CIT0019","doi-asserted-by":"publisher","DOI":"10.1111\/j.1440-1630.2010.00858.x"},{"key":"CIT0020","doi-asserted-by":"crossref","first-page":"321","DOI":"10.1097\/NCC.0000000000000159","volume":"37","author":"Northouse L","year":"2014","journal-title":"Cancer Nurs"}],"container-title":["Disability and Rehabilitation"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.tandfonline.com\/doi\/pdf\/10.1080\/09638288.2018.1557268","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2020,11,25]],"date-time":"2020-11-25T01:14:39Z","timestamp":1606266879000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/09638288.2018.1557268"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,1,29]]},"references-count":20,"journal-issue":{"issue":"16","published-print":{"date-parts":[[2020,7,30]]}},"alternative-id":["10.1080\/09638288.2018.1557268"],"URL":"https:\/\/doi.org\/10.1080\/09638288.2018.1557268","relation":{},"ISSN":["0963-8288","1464-5165"],"issn-type":[{"value":"0963-8288","type":"print"},{"value":"1464-5165","type":"electronic"}],"subject":[],"published":{"date-parts":[[2019,1,29]]},"assertion":[{"value":"The publishing and review policy for this title is described in its Aims & Scope.","order":1,"name":"peerreview_statement","label":"Peer Review Statement"},{"value":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=idre20","URL":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=idre20","order":2,"name":"aims_and_scope_url","label":"Aim & Scope"},{"value":"2018-09-11","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2018-12-03","order":1,"name":"revised","label":"Revised","group":{"name":"publication_history","label":"Publication History"}},{"value":"2018-12-05","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2019-01-29","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}