{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,27]],"date-time":"2026-09-27T15:13:22Z","timestamp":1790522002042,"version":"4.1.0"},"reference-count":34,"publisher":"Informa UK Limited","issue":"17","content-domain":{"domain":["www.tandfonline.com"],"crossmark-restriction":true},"short-container-title":["Disability and Rehabilitation"],"published-print":{"date-parts":[[2021,8,14]]},"DOI":"10.1080\/09638288.2019.1703145","type":"journal-article","created":{"date-parts":[[2019,12,18]],"date-time":"2019-12-18T08:05:02Z","timestamp":1576656302000},"page":"2464-2471","update-policy":"https:\/\/doi.org\/10.1080\/tandf_crossmark_01","source":"Crossref","is-referenced-by-count":15,"title":["Physical exercise for people with hereditable thoracic aortic disease. A study of patient perspectives"],"prefix":"10.1080","volume":"43","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5521-778X","authenticated-orcid":false,"given":"Gry","family":"Velvin","sequence":"first","affiliation":[{"name":"TRS National Resource Centre for Rare Disorders, Sunnaas Rehabilitation Hospital, Nesodden, Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Heidi","family":"Johansen","sequence":"additional","affiliation":[{"name":"TRS National Resource Centre for Rare Disorders, Sunnaas Rehabilitation Hospital, Nesodden, Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kjersti","family":"Vardeberg","sequence":"additional","affiliation":[{"name":"TRS National Resource Centre for Rare Disorders, Sunnaas Rehabilitation Hospital, Nesodden, Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kerstin","family":"Sj\u00f6gren Fugl-Meyer","sequence":"additional","affiliation":[{"name":"TRS National Resource Centre for Rare Disorders, Sunnaas Rehabilitation Hospital, Nesodden, Norway"},{"name":"Department of Neurobiology, Care Science and Society, Division of Family medicine and primary care, Karolinska Institutet, Stockholm, Sweden"},{"name":"Function area Social work in health care, Karolinska University hospital, Stockholm, Sweden"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jan-Erik","family":"Wilhelmsen","sequence":"additional","affiliation":[{"name":"TRS National Resource Centre for Rare Disorders, Sunnaas Rehabilitation Hospital, Nesodden, Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ingeborg","family":"Lidal","sequence":"additional","affiliation":[{"name":"TRS National Resource Centre for Rare Disorders, Sunnaas Rehabilitation Hospital, Nesodden, Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"301","published-online":{"date-parts":[[2019,12,17]]},"reference":[{"key":"CIT0001","doi-asserted-by":"publisher","DOI":"10.1136\/postgradmedj-2014-306440rep"},{"key":"CIT0002","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCULATIONAHA.116.009762"},{"key":"CIT0003","doi-asserted-by":"publisher","DOI":"10.1080\/14779072.2019.1585807"},{"key":"CIT0004","doi-asserted-by":"publisher","DOI":"10.1055\/s-0038-1639612"},{"key":"CIT0005","doi-asserted-by":"publisher","DOI":"10.1136\/jmg.2009.072785"},{"key":"CIT0006","doi-asserted-by":"publisher","DOI":"10.1016\/j.cjca.2015.11.007"},{"key":"CIT0007","doi-asserted-by":"publisher","DOI":"10.21037\/acs.2017.11.03"},{"key":"CIT0008","doi-asserted-by":"publisher","DOI":"10.1177\/1179546817709787"},{"key":"CIT0009","doi-asserted-by":"publisher","DOI":"10.1152\/japplphysiol.00132.2017"},{"key":"CIT0010","doi-asserted-by":"publisher","DOI":"10.1161\/JAHA.117.006438"},{"key":"CIT0011","doi-asserted-by":"publisher","DOI":"10.1016\/j.jacc.2015.09.039"},{"key":"CIT0012","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.a.36574"},{"key":"CIT0013","doi-asserted-by":"publisher","DOI":"10.1097\/AJP.0000000000000202"},{"key":"CIT0014","doi-asserted-by":"publisher","DOI":"10.1111\/cge.12699"},{"key":"CIT0015","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.a.37370"},{"key":"CIT0016","doi-asserted-by":"publisher","DOI":"10.1111\/cge.12422"},{"key":"CIT0017","doi-asserted-by":"publisher","DOI":"10.1055\/s-0039-1693663"},{"key":"CIT0018","doi-asserted-by":"publisher","DOI":"10.1016\/j.hlc.2015.05.003"},{"key":"CIT0019","unstructured":"Research (COREQ) check list. [cited 2019 Nov 10]. Available from: http:\/\/www.equator-network.org\/reporting-guidelines\/coreq\/."},{"key":"CIT0020","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1096-8628(19960424)62:4<417::AID-AJMG15>3.0.CO;2-R"},{"key":"CIT0021","doi-asserted-by":"publisher","DOI":"10.1034\/j.1399-0004.2001.600405.x"},{"key":"CIT0022","doi-asserted-by":"publisher","DOI":"10.1177\/1403494812465030"},{"key":"CIT0023","doi-asserted-by":"publisher","DOI":"10.1080\/03098260600927575"},{"key":"CIT0024","doi-asserted-by":"publisher","DOI":"10.1177\/1049732308314853"},{"key":"CIT0025","doi-asserted-by":"publisher","DOI":"10.1097\/GIM.0b013e3181ea4c1c"},{"key":"CIT0026","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.12867"},{"key":"CIT0027","doi-asserted-by":"publisher","DOI":"10.1186\/s12872-017-0512-7"},{"key":"CIT0028","unstructured":"de Ferranti SD, Krieger E. Physical activity and exercise in patients with congenital heath disease, Literature review current through: Feb 2019 [cited 2019 Nov 10]. Available from: https:\/\/www.uptodate.com\/contents\/physical-activity-and-exercise-in-patients-with-congenital-heart-disease-chd."},{"key":"CIT0029","doi-asserted-by":"publisher","DOI":"10.1002\/clc.22418"},{"key":"CIT0030","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-017-0679-0"},{"key":"CIT0031","doi-asserted-by":"publisher","DOI":"10.4135\/9781473957657"},{"key":"CIT0032","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(01)05627-6"},{"key":"CIT0033","volume-title":"Fokusgrupper som forskningsmetode for medisin og helsefag","author":"Malterud K.","year":"2012"},{"key":"CIT0034","unstructured":"TRS, National Resource Centre for Rare Disorders, Sunnaas Rehabilitation Hospital, Norway."}],"container-title":["Disability and Rehabilitation"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.tandfonline.com\/doi\/pdf\/10.1080\/09638288.2019.1703145","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2021,8,25]],"date-time":"2021-08-25T03:40:23Z","timestamp":1629862823000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/09638288.2019.1703145"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,12,17]]},"references-count":34,"journal-issue":{"issue":"17","published-print":{"date-parts":[[2021,8,14]]}},"alternative-id":["10.1080\/09638288.2019.1703145"],"URL":"https:\/\/doi.org\/10.1080\/09638288.2019.1703145","relation":{},"ISSN":["0963-8288","1464-5165"],"issn-type":[{"value":"0963-8288","type":"print"},{"value":"1464-5165","type":"electronic"}],"subject":[],"published":{"date-parts":[[2019,12,17]]},"assertion":[{"value":"The publishing and review policy for this title is described in its Aims & Scope.","order":1,"name":"peerreview_statement","label":"Peer Review Statement"},{"value":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=idre20","URL":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=idre20","order":2,"name":"aims_and_scope_url","label":"Aim & Scope"},{"value":"2019-04-22","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2019-12-02","order":1,"name":"revised","label":"Revised","group":{"name":"publication_history","label":"Publication History"}},{"value":"2019-12-07","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2019-12-17","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}