{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,2]],"date-time":"2026-10-02T10:55:11Z","timestamp":1790938511211,"version":"4.1.0"},"reference-count":51,"publisher":"Informa UK Limited","issue":"13","content-domain":{"domain":["www.tandfonline.com"],"crossmark-restriction":true},"short-container-title":["Disability and Rehabilitation"],"published-print":{"date-parts":[[2022,6,19]]},"DOI":"10.1080\/09638288.2020.1855261","type":"journal-article","created":{"date-parts":[[2020,12,10]],"date-time":"2020-12-10T09:16:19Z","timestamp":1607591779000},"page":"3095-3103","update-policy":"https:\/\/doi.org\/10.1080\/tandf_crossmark_01","source":"Crossref","is-referenced-by-count":17,"title":["How people living with motor neurone disease and their carers experience healthcare decision making: a qualitative exploration"],"prefix":"10.1080","volume":"44","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1845-126X","authenticated-orcid":false,"given":"C.","family":"Paynter","sequence":"first","affiliation":[{"name":"Centre for Neuroscience of Speech, University of Melbourne, Parkville, Australia"},{"name":"Department of Audiology and Speech Pathology, The University of Melbourne, Melbourne, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"S.","family":"Mathers","sequence":"additional","affiliation":[{"name":"Calvary Health Care Bethlehem, Melbourne, Australia"},{"name":"School of Clinical Sciences, Monash University, Melbourne, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"H.","family":"Gregory","sequence":"additional","affiliation":[{"name":"Calvary Health Care Bethlehem, Melbourne, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3505-2631","authenticated-orcid":false,"given":"A. P.","family":"Vogel","sequence":"additional","affiliation":[{"name":"Centre for Neuroscience of Speech, University of Melbourne, Parkville, Australia"},{"name":"Department of Audiology and Speech Pathology, The University of Melbourne, Melbourne, Australia"},{"name":"Department of Neurodegeneration, Hertie Institute for Clinical Brain Research, Germany"},{"name":"Redenlab, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7344-2262","authenticated-orcid":false,"given":"M.","family":"Cruice","sequence":"additional","affiliation":[{"name":"Division of Language and Communication Science, City, University of London, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"301","published-online":{"date-parts":[[2020,12,9]]},"reference":[{"key":"CIT0001","doi-asserted-by":"publisher","DOI":"10.1016\/S1474-4422(16)30199-5"},{"key":"CIT0002","first-page":"1","volume":"3","author":"Hardiman O","year":"2017","journal-title":"Nat Rev Dis Primers"},{"key":"CIT0003","unstructured":"NEJM Catalyst. What is patient-centered care? 2019 [9 Dec 2019]. Available from: https:\/\/catalyst.nejm.org\/what-is-patient-centered-care\/"},{"key":"CIT0004","doi-asserted-by":"publisher","DOI":"10.1080\/21678421.2019.1672748"},{"key":"CIT0005","doi-asserted-by":"publisher","DOI":"10.3109\/21678421.2013.805784"},{"key":"CIT0006","doi-asserted-by":"publisher","DOI":"10.1111\/jep.13219"},{"key":"CIT0007","doi-asserted-by":"publisher","DOI":"10.2147\/PPA.S40783"},{"key":"CIT0008","doi-asserted-by":"publisher","DOI":"10.1080\/21678421.2017.1353099"},{"key":"CIT0009","doi-asserted-by":"publisher","DOI":"10.2147\/PPA.S36759"},{"key":"CIT0010","doi-asserted-by":"publisher","DOI":"10.1007\/s00415-015-7665-z"},{"key":"CIT0011","doi-asserted-by":"publisher","DOI":"10.1186\/s12883-018-1112-6"},{"key":"CIT0012","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951510000027"},{"issue":"1","key":"CIT0013","doi-asserted-by":"crossref","first-page":"51","DOI":"10.1111\/j.1468-1331.2007.02000.x","volume":"15","author":"Chi\u00f2 A","year":"2008","journal-title":"Eur J Neurol"},{"key":"CIT0014","doi-asserted-by":"publisher","DOI":"10.2147\/PPA.S37851"},{"issue":"19","key":"CIT0015","first-page":"360","volume":"19","author":"Andersen PM","year":"2012","journal-title":"Eur J Neurol"},{"key":"CIT0016","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.0b013e3181bc01a4"},{"key":"CIT0017","doi-asserted-by":"publisher","DOI":"10.1080\/21678421.2017.1304558"},{"key":"CIT0018","doi-asserted-by":"publisher","DOI":"10.1177\/0269216311399664"},{"key":"CIT0019","doi-asserted-by":"publisher","DOI":"10.1016\/S0022-510X(99)00210-5"},{"key":"CIT0020","volume-title":"Qualitative inquiry and research design; chosing among five approaches","author":"Creswell JW","year":"2018","edition":"4"},{"key":"CIT0021","doi-asserted-by":"publisher","DOI":"10.4324\/9781315426259"},{"key":"CIT0022","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1098-240X(199704)20:2<169::AID-NUR9>3.0.CO;2-I"},{"key":"CIT0023","doi-asserted-by":"publisher","DOI":"10.1177\/1049732309344612"},{"key":"CIT0024","doi-asserted-by":"publisher","DOI":"10.1080\/09638288.2018.1429499"},{"key":"CIT0025","doi-asserted-by":"publisher","DOI":"10.1093\/pch\/21.3.e17"},{"key":"CIT0026","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-019-0493-7"},{"key":"CIT0027","doi-asserted-by":"publisher","DOI":"10.1111\/scs.12745"},{"key":"CIT0028","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"CIT0029","doi-asserted-by":"publisher","DOI":"10.1007\/978-981-10-2779-6_103-1"},{"key":"CIT0030","doi-asserted-by":"publisher","DOI":"10.1136\/ebn.3.3.68"},{"key":"CIT0031","doi-asserted-by":"publisher","DOI":"10.1016\/0147-1767(85)90062-8"},{"key":"CIT0032","volume-title":"Qualitative research methods","author":"Liamputtong P.","year":"2013","edition":"4"},{"key":"CIT0033","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzm042"},{"key":"CIT0034","doi-asserted-by":"publisher","DOI":"10.3109\/07434618.2012.737023"},{"issue":"896","key":"CIT0035","first-page":"1","volume":"10","author":"Nijhuis FAP","year":"2019","journal-title":"Front Neurol"},{"key":"CIT0036","doi-asserted-by":"publisher","DOI":"10.1136\/practneurol-2016-001408"},{"key":"CIT0037","doi-asserted-by":"publisher","DOI":"10.5946\/ce.2016.106"},{"key":"CIT0038","unstructured":"Chhetri SK. Outcomes of enteral feeding in motor neurone disease [MD Dissertation University of Central Lancaster, UK]. University of Central Lancashire; 2015."},{"key":"CIT0039","doi-asserted-by":"publisher","DOI":"10.1111\/bjhp.12388"},{"key":"CIT0040","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2019-034751"},{"key":"CIT0041","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2013-000497"},{"key":"CIT0042","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.14350"},{"key":"CIT0043","doi-asserted-by":"publisher","DOI":"10.1016\/j.colegn.2019.02.002"},{"key":"CIT0044","doi-asserted-by":"publisher","DOI":"10.1111\/hex.12497"},{"key":"CIT0045","doi-asserted-by":"publisher","DOI":"10.1177\/0269216315613902"},{"key":"CIT0046","doi-asserted-by":"publisher","DOI":"10.1080\/07434610600650276"},{"key":"CIT0047","doi-asserted-by":"publisher","DOI":"10.1080\/17549507.2018.1428687"},{"key":"CIT0048","doi-asserted-by":"publisher","DOI":"10.1503\/cmaj.070690"},{"key":"CIT0049","doi-asserted-by":"publisher","DOI":"10.1093\/heapro\/15.3.259"},{"key":"CIT0050","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-018-2921-4"},{"key":"CIT0051","doi-asserted-by":"publisher","DOI":"10.3109\/17482968.2012.690419"}],"container-title":["Disability and Rehabilitation"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.tandfonline.com\/doi\/pdf\/10.1080\/09638288.2020.1855261","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,10,27]],"date-time":"2023-10-27T22:02:20Z","timestamp":1698444140000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/09638288.2020.1855261"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,12,9]]},"references-count":51,"journal-issue":{"issue":"13","published-print":{"date-parts":[[2022,6,19]]}},"alternative-id":["10.1080\/09638288.2020.1855261"],"URL":"https:\/\/doi.org\/10.1080\/09638288.2020.1855261","relation":{},"ISSN":["0963-8288","1464-5165"],"issn-type":[{"value":"0963-8288","type":"print"},{"value":"1464-5165","type":"electronic"}],"subject":[],"published":{"date-parts":[[2020,12,9]]},"assertion":[{"value":"The publishing and review policy for this title is described in its Aims & Scope.","order":1,"name":"peerreview_statement","label":"Peer Review Statement"},{"value":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=idre20","URL":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=idre20","order":2,"name":"aims_and_scope_url","label":"Aim & Scope"},{"value":"2020-04-25","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2020-11-12","order":1,"name":"revised","label":"Revised","group":{"name":"publication_history","label":"Publication History"}},{"value":"2020-11-20","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2020-12-09","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}