{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,2]],"date-time":"2026-10-02T16:20:23Z","timestamp":1790958023811,"version":"4.1.0"},"reference-count":33,"publisher":"Informa UK Limited","issue":"3","license":[{"start":{"date-parts":[[2023,2,22]],"date-time":"2023-02-22T00:00:00Z","timestamp":1677024000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"name":"Fighting Blindness Canada","award":["Vision Science Research Program"],"award-info":[{"award-number":["Vision Science Research Program"]}]},{"DOI":"10.13039\/501100000262","name":"Foundation Fighting Blindness","doi-asserted-by":"publisher","award":["CD-CL-0617-0727-HSC"],"award-info":[{"award-number":["CD-CL-0617-0727-HSC"]}],"id":[{"id":"10.13039\/501100000262","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["www.tandfonline.com"],"crossmark-restriction":true},"short-container-title":["Ophthalmic Genetics"],"published-print":{"date-parts":[[2023,5,4]]},"DOI":"10.1080\/13816810.2023.2179074","type":"journal-article","created":{"date-parts":[[2023,2,22]],"date-time":"2023-02-22T14:30:32Z","timestamp":1677076232000},"page":"218-225","update-policy":"https:\/\/doi.org\/10.1080\/tandf_crossmark_01","source":"Crossref","is-referenced-by-count":9,"title":["The validation of inherited retinal disease-specific patient-reported outcome measures in adolescent patients"],"prefix":"10.1080","volume":"44","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2051-9577","authenticated-orcid":false,"given":"Kavin","family":"Selvan","sequence":"first","affiliation":[{"name":"Genetics and Genome Biology (GGB) Program, The Hospital for Sick Children Research Institute, Toronto, Ontario, Canada"},{"name":"Department of Ophthalmology and Vision Sciences, The Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada"},{"name":"Institute of Medical Science, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rebhi","family":"Abuzaitoun","sequence":"additional","affiliation":[{"name":"Department of Ophthalmology and Visual Sciences, University of Michigan Medical School, Ann Arbor, Michigan, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4194-9314","authenticated-orcid":false,"given":"Maria Fernanda","family":"Abalem","sequence":"additional","affiliation":[{"name":"Department of Ophthalmology and Visual Sciences, University of Michigan Medical School, Ann Arbor, Michigan, USA"},{"name":"Department of Ophthalmology and Otolaryngology, University of Sao Paulo Medical School, Sao Paulo, Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6446-3846","authenticated-orcid":false,"given":"Ajoy","family":"Vincent","sequence":"additional","affiliation":[{"name":"Genetics and Genome Biology (GGB) Program, The Hospital for Sick Children Research Institute, Toronto, Ontario, Canada"},{"name":"Department of Ophthalmology and Vision Sciences, The Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada"},{"name":"Institute of Medical Science, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5130-6374","authenticated-orcid":false,"given":"Chris A.","family":"Andrews","sequence":"additional","affiliation":[{"name":"Department of Ophthalmology and Visual Sciences, University of Michigan Medical School, Ann Arbor, Michigan, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3746-9326","authenticated-orcid":false,"given":"Gabrielle D.","family":"Lacy","sequence":"additional","affiliation":[{"name":"Department of Ophthalmology and Visual Sciences, University of Michigan Medical School, Ann Arbor, Michigan, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rafid","family":"Farjo","sequence":"additional","affiliation":[{"name":"Department of Ophthalmology and Visual Sciences, University of Michigan Medical School, Ann Arbor, Michigan, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karissa","family":"Kao","sequence":"additional","affiliation":[{"name":"Department of Ophthalmology and Visual Sciences, University of Michigan Medical School, Ann Arbor, Michigan, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Krystal","family":"Kao","sequence":"additional","affiliation":[{"name":"Department of Ophthalmology and Visual Sciences, University of Michigan Medical School, Ann Arbor, Michigan, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6707-9735","authenticated-orcid":false,"given":"Gislin","family":"Dagnelie","sequence":"additional","affiliation":[{"name":"Wilmer Eye Institute, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4164-3841","authenticated-orcid":false,"given":"David C.","family":"Musch","sequence":"additional","affiliation":[{"name":"Department of Ophthalmology and Visual Sciences, University of Michigan Medical School, Ann Arbor, Michigan, USA"},{"name":"Department of Epidemiology, School of Public Health, University of Michigan, Ann Arbor, Michigan, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4895-4818","authenticated-orcid":false,"given":"K. Thiran","family":"Jayasundera","sequence":"additional","affiliation":[{"name":"Department of Ophthalmology and Visual Sciences, University of Michigan Medical School, Ann Arbor, Michigan, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4143-9311","authenticated-orcid":false,"given":"Elise","family":"H\u00e9on","sequence":"additional","affiliation":[{"name":"Genetics and Genome Biology (GGB) Program, The Hospital for Sick Children Research Institute, Toronto, Ontario, Canada"},{"name":"Department of Ophthalmology and Vision Sciences, The Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada"},{"name":"Institute of Medical Science, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"301","published-online":{"date-parts":[[2023,2,22]]},"reference":[{"key":"cit0001","doi-asserted-by":"publisher","DOI":"10.1097\/ICU.0000000000000660"},{"key":"cit0002","doi-asserted-by":"publisher","DOI":"10.1080\/13816810.2020.1731836"},{"key":"cit0003","doi-asserted-by":"publisher","DOI":"10.1016\/j.ajo.2020.08.032"},{"key":"cit0004","doi-asserted-by":"publisher","DOI":"10.1016\/j.ajo.2020.12.001"},{"key":"cit0005","doi-asserted-by":"publisher","DOI":"10.1007\/s40123-022-00514-x"},{"key":"cit0006","doi-asserted-by":"publisher","DOI":"10.1007\/s10728-017-0347-5"},{"key":"cit0007","doi-asserted-by":"publisher","DOI":"10.1136\/bjophthalmol-2016-309955"},{"issue":"4","key":"cit0008","first-page":"14","volume":"32","author":"Poochikian-Sarkissian S","year":"2010","journal-title":"Can J Neurosci Nurs"},{"key":"cit0009","doi-asserted-by":"publisher","DOI":"10.1038\/s41433-021-01763-z"},{"key":"cit0010","doi-asserted-by":"publisher","DOI":"10.1111\/j.1524-4733.2007.00275.x"},{"key":"cit0011","doi-asserted-by":"publisher","DOI":"10.1093\/humrep\/der386"},{"key":"cit0012","doi-asserted-by":"publisher","DOI":"10.1016\/j.rbmo.2017.10.106"},{"key":"cit0013","doi-asserted-by":"publisher","DOI":"10.1093\/eurheartj\/ehab057"},{"key":"cit0014","doi-asserted-by":"publisher","DOI":"10.1080\/03004430.2010.483115"},{"key":"cit0015","doi-asserted-by":"publisher","DOI":"10.1111\/j.1524-4733.2007.00293.x"},{"key":"cit0016","doi-asserted-by":"publisher","DOI":"10.1186\/1477-7525-5-1"},{"key":"cit0017","doi-asserted-by":"publisher","DOI":"10.1183\/09031936.97.10102285"},{"key":"cit0018","doi-asserted-by":"publisher","DOI":"10.1186\/1477-7525-4-79"},{"key":"cit0019","unstructured":"Patient registry | fighting blindness Canada [Internet]. Fighting Blindness Canada (FBC). [accessed 2022 Apr 16]. https:\/\/www.fightingblindness.ca\/patient-registry\/."},{"key":"cit0020","doi-asserted-by":"publisher","DOI":"10.1167\/iovs.14-16049"},{"key":"cit0021","doi-asserted-by":"publisher","DOI":"10.1111\/j.1742-1241.2010.02408.x"},{"key":"cit0022","doi-asserted-by":"publisher","DOI":"10.1111\/pde.14513"},{"key":"cit0023","doi-asserted-by":"publisher","DOI":"10.1016\/S0033-3182(09)70864-3"},{"key":"cit0024","doi-asserted-by":"publisher","DOI":"10.1177\/0009922820905861"},{"key":"cit0025","doi-asserted-by":"publisher","DOI":"10.1097\/OPX.0000000000000158"},{"key":"cit0026","doi-asserted-by":"publisher","DOI":"10.1016\/j.ajo.2021.03.033"},{"key":"cit0027","doi-asserted-by":"publisher","DOI":"10.4103\/ijo.IJO_2333_20"},{"key":"cit0028","doi-asserted-by":"publisher","DOI":"10.1007\/s11336-009-9136-x"},{"key":"cit0029","doi-asserted-by":"publisher","DOI":"10.18637\/jss.v048.i06"},{"key":"cit0030","doi-asserted-by":"publisher","DOI":"10.1177\/096228029900800204"},{"key":"cit0031","doi-asserted-by":"publisher","DOI":"10.1080\/13816810.2021.1897848"},{"key":"cit0032","doi-asserted-by":"publisher","DOI":"10.1111\/j.1399-0004.2010.01592.x"},{"key":"cit0033","doi-asserted-by":"publisher","DOI":"10.1167\/tvst.7.5.8"}],"container-title":["Ophthalmic Genetics"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.tandfonline.com\/doi\/pdf\/10.1080\/13816810.2023.2179074","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,6,19]],"date-time":"2023-06-19T10:47:09Z","timestamp":1687171629000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/13816810.2023.2179074"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,2,22]]},"references-count":33,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2023,5,4]]}},"alternative-id":["10.1080\/13816810.2023.2179074"],"URL":"https:\/\/doi.org\/10.1080\/13816810.2023.2179074","relation":{},"ISSN":["1381-6810","1744-5094"],"issn-type":[{"value":"1381-6810","type":"print"},{"value":"1744-5094","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,2,22]]},"assertion":[{"value":"The publishing and review policy for this title is described in its Aims & Scope.","order":1,"name":"peerreview_statement","label":"Peer Review Statement"},{"value":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=iopg20","URL":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=iopg20","order":2,"name":"aims_and_scope_url","label":"Aim & Scope"},{"value":"2022-11-07","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-01-09","order":1,"name":"revised","label":"Revised","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-02-06","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-02-22","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}