{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,27]],"date-time":"2026-08-27T22:46:44Z","timestamp":1787870804586,"version":"build-2784847793"},"reference-count":9,"publisher":"Informa UK Limited","issue":"10","content-domain":{"domain":["www.tandfonline.com"],"crossmark-restriction":true},"short-container-title":["The American Journal of Bioethics"],"published-print":{"date-parts":[[2017,10,3]]},"DOI":"10.1080\/15265161.2017.1365198","type":"journal-article","created":{"date-parts":[[2017,10,11]],"date-time":"2017-10-11T18:58:31Z","timestamp":1507748311000},"page":"71-73","update-policy":"https:\/\/doi.org\/10.1080\/tandf_crossmark_01","source":"Crossref","is-referenced-by-count":2,"title":["Fairness and Transparency in an Expanded Access Program: Allocation of the Only Treatment for SMA1"],"prefix":"10.1080","volume":"17","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2917-7806","authenticated-orcid":false,"given":"Alyssa M.","family":"Burgart","sequence":"first","affiliation":[{"name":"Stanford University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Julie","family":"Collier","sequence":"additional","affiliation":[{"name":"Stanford University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1669-3932","authenticated-orcid":false,"given":"Mildred K.","family":"Cho","sequence":"additional","affiliation":[{"name":"Stanford University"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"301","published-online":{"date-parts":[[2017,10,11]]},"reference":[{"key":"cit0001","doi-asserted-by":"publisher","DOI":"10.1111\/j.1600-6143.2007.01848.x"},{"key":"cit0002","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2016.0416"},{"key":"cit0003","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(16)31408-8"},{"key":"cit0004","doi-asserted-by":"publisher","DOI":"10.1001\/virtualmentor.2012.14.11.ecas3-1211"},{"key":"cit0005","doi-asserted-by":"publisher","DOI":"10.1136\/medethics-2016-103868"},{"key":"cit0006","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMp1307792"},{"key":"cit0007","doi-asserted-by":"publisher","DOI":"10.1111\/j.1399-3046.2008.01072.x"},{"key":"cit0008","doi-asserted-by":"publisher","DOI":"10.3748\/wjg.v22.i10.2922"},{"key":"cit0009","doi-asserted-by":"publisher","DOI":"10.1016\/j.spen.2015.05.001"}],"container-title":["The American Journal of Bioethics"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.tandfonline.com\/doi\/pdf\/10.1080\/15265161.2017.1365198","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2017,10,11]],"date-time":"2017-10-11T18:58:33Z","timestamp":1507748313000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/15265161.2017.1365198"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,10,3]]},"references-count":9,"journal-issue":{"issue":"10","published-online":{"date-parts":[[2017,10,11]]},"published-print":{"date-parts":[[2017,10,3]]}},"alternative-id":["10.1080\/15265161.2017.1365198"],"URL":"https:\/\/doi.org\/10.1080\/15265161.2017.1365198","relation":{},"ISSN":["1526-5161","1536-0075"],"issn-type":[{"value":"1526-5161","type":"print"},{"value":"1536-0075","type":"electronic"}],"subject":[],"published":{"date-parts":[[2017,10,3]]},"assertion":[{"value":"The publishing and review policy for this title is described in its Aims & Scope.","order":1,"name":"peerreview_statement","label":"Peer Review Statement"},{"value":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=uajb20","URL":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=uajb20","order":2,"name":"aims_and_scope_url","label":"Aim & Scope"}]}}