{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,29]],"date-time":"2026-03-29T21:07:19Z","timestamp":1774818439600,"version":"3.50.1"},"reference-count":41,"publisher":"Informa UK Limited","issue":"4","funder":[{"name":"This manuscript was supported by a grant though the Fahs-Beck Fund for Experimentation and Research."}],"content-domain":{"domain":["www.tandfonline.com"],"crossmark-restriction":true},"short-container-title":["Journal of Social Work in End-of-Life & Palliative Care"],"published-print":{"date-parts":[[2016,10]]},"DOI":"10.1080\/15524256.2016.1252828","type":"journal-article","created":{"date-parts":[[2016,12,19]],"date-time":"2016-12-19T02:52:50Z","timestamp":1482115970000},"page":"348-365","update-policy":"https:\/\/doi.org\/10.1080\/tandf_crossmark_01","source":"Crossref","is-referenced-by-count":14,"title":["Caregiving Youth Knowledge and Perceptions of Parental End-of-Life Wishes in Huntington\u2019s Disease"],"prefix":"10.1080","volume":"12","author":[{"given":"Melinda S.","family":"Kavanaugh","sequence":"first","affiliation":[{"name":"Helen Bader School of Social Welfare, University of Wisconsin-Milwaukee, Milwaukee, Wisconsin, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hyunjin","family":"Noh","sequence":"additional","affiliation":[{"name":"School of Social Work, University of Alabama, Tuscaloosa, Alabama, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lixia","family":"Zhang","sequence":"additional","affiliation":[{"name":"Helen Bader School of Social Welfare, University of Wisconsin-Milwaukee, Milwaukee, Wisconsin, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"301","published-online":{"date-parts":[[2016,12,12]]},"reference":[{"key":"CIT0001","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-2850.1995.tb00042.x"},{"key":"CIT0002","doi-asserted-by":"publisher","DOI":"10.1017\/s1478951504040519"},{"key":"CIT0003","doi-asserted-by":"publisher","DOI":"10.1007\/s00415-014-7479-4"},{"key":"CIT0004","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2010.0004"},{"key":"CIT0005","unstructured":"California Health Care Foundation. (2012). Final chapter: Californians\u2019 attitudes and experiences with death and dying. Retrieved from http:\/\/www.chcf.org\/publications\/2012\/02\/final-chapter-death-dying"},{"key":"CIT0006","doi-asserted-by":"publisher","DOI":"10.3138\/cja.27.3.285"},{"key":"CIT0007","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2015.21.9.453"},{"key":"CIT0008","volume-title":"Qualitative inquiry and research design: Choosing among the five approaches","author":"Creswell J.","year":"2007"},{"key":"CIT0009","doi-asserted-by":"publisher","DOI":"10.1111\/j.1442-2018.2004.00183.x"},{"key":"CIT0010","volume-title":"Living dying. A guide for adults supporting grieving children and teenagers","author":"Eaton R.","year":"2008"},{"key":"CIT0011","doi-asserted-by":"publisher","DOI":"10.1111\/j.1399-0004.2006.00702.x"},{"key":"CIT0012","doi-asserted-by":"publisher","DOI":"10.1034\/j.1399-0004.2003.00142.x"},{"key":"CIT0013","doi-asserted-by":"publisher","DOI":"10.1111\/j.1547-5069.1998.tb01229.x"},{"key":"CIT0014","volume-title":"Awareness of dying","author":"Glaser B.","year":"1965"},{"key":"CIT0015","doi-asserted-by":"publisher","DOI":"10.1177\/0192513X12444858"},{"key":"CIT0016","doi-asserted-by":"publisher","DOI":"10.3109\/13682820903105145"},{"key":"CIT0017","doi-asserted-by":"publisher","DOI":"10.1007\/s10897-006-9021-z"},{"key":"CIT0018","doi-asserted-by":"publisher","DOI":"10.1177\/1049732305276687"},{"key":"CIT0019","volume-title":"Dying in America: Improving quality and honoring individual preferences near the end of life","year":"2014"},{"key":"CIT0020","doi-asserted-by":"publisher","DOI":"10.1177\/014572170403000517"},{"key":"CIT0021","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951507070034"},{"key":"CIT0022","doi-asserted-by":"publisher","DOI":"10.1007\/s10566-014-9258-x"},{"key":"CIT0023","doi-asserted-by":"publisher","DOI":"10.1080\/17450128.2014.980370"},{"key":"CIT0024","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2008.14.5.29490"},{"key":"CIT0025","doi-asserted-by":"publisher","DOI":"10.1016\/j.jad.2008.06.022"},{"key":"CIT0026","doi-asserted-by":"publisher","DOI":"10.1891\/1521-0987.9.2.75"},{"key":"CIT0027","doi-asserted-by":"publisher","DOI":"10.1080\/13576270500102872"},{"key":"CIT0028","doi-asserted-by":"publisher","DOI":"10.1016\/j.parkreldis.2011.10.021"},{"key":"CIT0029","doi-asserted-by":"publisher","DOI":"10.1016\/S0733-8619(05)70050-5"},{"key":"CIT0030","volume-title":"Young caregivers in the U.S.: Report of findings","year":"2005"},{"key":"CIT0031","unstructured":"National Hospice and Palliative Care Organization. (2015). What are advance directives? Retrieved from http:\/\/www.caringinfo.org\/i4a\/pages\/index.cfm?pageid=3285"},{"key":"CIT0032","volume-title":"The forgotten mourners: Guidelines for working with bereaved children","author":"Pennells S.","year":"1995"},{"key":"CIT0033","doi-asserted-by":"publisher","DOI":"10.1177\/1049909113517163"},{"key":"CIT0034","doi-asserted-by":"publisher","DOI":"10.2307\/584891"},{"key":"CIT0035","doi-asserted-by":"publisher","DOI":"10.1215\/15228517-2007-040"},{"key":"CIT0036","doi-asserted-by":"publisher","DOI":"10.1080\/01650250244000371"},{"key":"CIT0037","doi-asserted-by":"publisher","DOI":"10.1097\/01.NHH.0000281610.66176.13"},{"issue":"4","key":"CIT0038","first-page":"442","volume":"35","author":"Strokes J.","year":"1999","journal-title":"Journal of the American Academy of Child and Adolescent Psychiatry"},{"key":"CIT0039","unstructured":"Tompson, T., Benz, J., Agiesta, J., Junius, D., Nguyen, K. & Lowell, K. (2013). Long-term care: Perceptions, experiences, and attitudes among Americans 40 or older. Retrieved from http:\/\/www.apnorc.org\/projects\/Pages\/long-term-care-perceptions-experiences-and-attitudes-among-americans-40-or-older.aspx"},{"key":"CIT0041","doi-asserted-by":"publisher","DOI":"10.1177\/1074840709337126"},{"key":"CIT0042","doi-asserted-by":"publisher","DOI":"10.1001\/jamainternmed.2014.7732"}],"container-title":["Journal of Social Work in End-of-Life & Palliative Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.tandfonline.com\/doi\/pdf\/10.1080\/15524256.2016.1252828","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2017,7,20]],"date-time":"2017-07-20T12:52:16Z","timestamp":1500555136000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/15524256.2016.1252828"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2016,10]]},"references-count":41,"journal-issue":{"issue":"4","published-online":{"date-parts":[[2016,12,12]]},"published-print":{"date-parts":[[2016,10]]}},"alternative-id":["10.1080\/15524256.2016.1252828"],"URL":"https:\/\/doi.org\/10.1080\/15524256.2016.1252828","relation":{},"ISSN":["1552-4256","1552-4264"],"issn-type":[{"value":"1552-4256","type":"print"},{"value":"1552-4264","type":"electronic"}],"subject":[],"published":{"date-parts":[[2016,10]]},"assertion":[{"value":"The publishing and review policy for this title is described in its Aims & Scope.","order":1,"name":"peerreview_statement","label":"Peer Review Statement"},{"value":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=wswe20","URL":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=wswe20","order":2,"name":"aims_and_scope_url","label":"Aim & Scope"}]}}