{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,1]],"date-time":"2026-07-01T13:50:00Z","timestamp":1782913800386,"version":"3.54.5"},"reference-count":20,"publisher":"Informa UK Limited","issue":"7","license":[{"start":{"date-parts":[[2026,5,21]],"date-time":"2026-05-21T00:00:00Z","timestamp":1779321600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/doi.org\/10.1080\/policies-text-data-mining"}],"content-domain":{"domain":["www.tandfonline.com"],"crossmark-restriction":true},"short-container-title":["Expert Review of Hematology"],"published-print":{"date-parts":[[2026,7,3]]},"DOI":"10.1080\/17474086.2026.2676241","type":"journal-article","created":{"date-parts":[[2026,5,18]],"date-time":"2026-05-18T12:44:41Z","timestamp":1779108281000},"page":"793-797","update-policy":"https:\/\/doi.org\/10.1080\/tandf_crossmark_01","source":"Crossref","is-referenced-by-count":0,"title":["Social challenges and support needs of patients with hemophilia in Pakistan: a qualitative exploratory study"],"prefix":"10.1080","volume":"19","author":[{"given":"Hassan","family":"Raza","sequence":"first","affiliation":[{"name":"University of Health Sciences","place":["Lahore, Pakistan"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Umme","family":"Habiba","sequence":"additional","affiliation":[{"name":"University of Health Sciences","place":["Lahore, Pakistan"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sidra","family":"Rasool","sequence":"additional","affiliation":[{"name":"University of Health Sciences","place":["Lahore, Pakistan"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Umera","family":"Saleem","sequence":"additional","affiliation":[{"name":"University of Health Sciences","place":["Lahore, Pakistan"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Saima","family":"Farhan","sequence":"additional","affiliation":[{"name":"University of Health Sciences","place":["Lahore, Pakistan"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Muhammad Asif","family":"Naveed","sequence":"additional","affiliation":[{"name":"University of Health Sciences","place":["Lahore, Pakistan"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Khansa","family":"Qamar","sequence":"additional","affiliation":[{"name":"University of Health Sciences","place":["Lahore, Pakistan"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"301","published-online":{"date-parts":[[2026,5,21]]},"reference":[{"issue":"6","key":"e_1_3_5_2_1","first-page":"6","article-title":"Haemophilia care in developing countries: a story in the making","volume":"27","author":"Peyvandi F","year":"2021","unstructured":"Peyvandi F, Garagiola I, Seregni S. Haemophilia care in developing countries: a story in the making. Haemophilia. 2021;27(6):6\u201314.","journal-title":"Haemophilia"},{"key":"e_1_3_5_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.14046"},{"key":"e_1_3_5_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.blre.2022.100940"},{"issue":"11","key":"e_1_3_5_5_1","first-page":"1953","article-title":"An exploration of social determinants impacting quality of life in Pakistani hemophilia patients","volume":"71","author":"Ali S","year":"2021","unstructured":"Ali S, Ahmed S, Khan F, et al. An exploration of social determinants impacting quality of life in Pakistani hemophilia patients. J Pak Med Assoc. 2021;71(11):1953\u20131959.","journal-title":"J Pak Med Assoc"},{"key":"e_1_3_5_6_1","doi-asserted-by":"publisher","DOI":"10.1080\/14780887.2020.1769238"},{"issue":"1","key":"e_1_3_5_7_1","first-page":"e135","article-title":"Perceived barriers to physical activity and school absenteeism in children with haemophilia","volume":"27","author":"Cuesta-Barriuso R","year":"2021","unstructured":"Cuesta-Barriuso R, Torres-Ortu\u00f1o A, P\u00e9rez-Alenda S, et al. Perceived barriers to physical activity and school absenteeism in children with haemophilia. Haemophilia. 2021;27(1):e135\u2013e142.","journal-title":"Haemophilia"},{"key":"e_1_3_5_8_1","doi-asserted-by":"publisher","DOI":"10.2147\/PPA.S443210"},{"key":"e_1_3_5_9_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-69909-7_3470-2"},{"issue":"3","key":"e_1_3_5_10_1","first-page":"403","article-title":"A qualitative analysis of quality of life domains in young adults with hemophilia","volume":"26","author":"Pocoski J","year":"2020","unstructured":"Pocoski J, Lattimore S, Tran G, et al. A qualitative analysis of quality of life domains in young adults with hemophilia. Haemophilia. 2020;26(3):403\u2013412.","journal-title":"Haemophilia"},{"issue":"1","key":"e_1_3_5_11_1","first-page":"2075983","article-title":"Coping and adaptation among Jordanian patients with chronic diseases: a qualitative study","volume":"17","author":"El-Maaytah M","year":"2022","unstructured":"El-Maaytah M, Al-Zaru I, Al-Hussami M. Coping and adaptation among Jordanian patients with chronic diseases: a qualitative study. Int J Qual Stud Health Well-Being. 2022;17(1):2075983.","journal-title":"Int J Qual Stud Health Well-Being"},{"issue":"6","key":"e_1_3_5_12_1","first-page":"e533","article-title":"The lived experience of chronic pain and its impact on social participation in adults with haemophilia","volume":"27","author":"Larsson KS","year":"2021","unstructured":"Larsson KS, M\u00e5\u00e5g E, Baghaei F, et al. The lived experience of chronic pain and its impact on social participation in adults with haemophilia. Haemophilia. 2021;27(6):e533\u2013e540.","journal-title":"Haemophilia"},{"key":"e_1_3_5_13_1","first-page":"72","article-title":"Factors associated with psychosocial adjustment in adults with haemophilia: a cross-sectional study","volume":"11","author":"Silva J","year":"2023","unstructured":"Silva J, Costa E, Oliveira C, et al. Factors associated with psychosocial adjustment in adults with haemophilia: a cross-sectional study. BMC Psychol. 2023;11:72.","journal-title":"BMC Psychol"},{"key":"e_1_3_5_14_1","doi-asserted-by":"publisher","DOI":"10.4103\/njcp.njcp_319_17"},{"key":"e_1_3_5_15_1","first-page":"e45","article-title":"Resilience in adolescents with hemophilia: a qualitative exploration from their perspective","volume":"66","author":"Dardas LA","year":"2022","unstructured":"Dardas LA, Khalaf I, Nabolsi M, et al. Resilience in adolescents with hemophilia: a qualitative exploration from their perspective. J Pediatr Nurs. 2022;66:e45\u2013e53.","journal-title":"J Pediatr Nurs"},{"issue":"2","key":"e_1_3_5_16_1","first-page":"123","article-title":"The effectiveness of family-centered care models on patient and family outcomes in chronic illness: a systematic review","volume":"28","author":"Dardas LA","year":"2022","unstructured":"Dardas LA, Sweis KA, Tawalbeh L. The effectiveness of family-centered care models on patient and family outcomes in chronic illness: a systematic review. J Fam Nurs. 2022;28(2):123\u2013135.","journal-title":"J Fam Nurs"},{"key":"e_1_3_5_17_1","doi-asserted-by":"publisher","DOI":"10.1097\/MBC.0000000000000549"},{"key":"e_1_3_5_18_1","doi-asserted-by":"publisher","DOI":"10.2147\/JBM.S291536"},{"issue":"1","key":"e_1_3_5_19_1","first-page":"21","article-title":"Global perspectives on achieving equity in hemophilia care","volume":"30","author":"Srivastava A","year":"2024","unstructured":"Srivastava A, You C, Diop S, et al. Global perspectives on achieving equity in hemophilia care. Haemophilia. 2024;30(1):21\u201329.","journal-title":"Haemophilia"},{"issue":"5","key":"e_1_3_5_20_1","first-page":"103107","article-title":"Innovative outreach models for comprehensive hemophilia management in resource-constrained settings","volume":"62","author":"Sahoo R","year":"2023","unstructured":"Sahoo R, Dash G, Patel S. Innovative outreach models for comprehensive hemophilia management in resource-constrained settings. Transfus Apher Sci. 2023;62(5):103107.","journal-title":"Transfus Apher Sci"},{"issue":"6","key":"e_1_3_5_21_1","first-page":"1034","article-title":"Telemedicine for the management of haemophilia: patient perspectives and future directions","volume":"28","author":"Pasca S","year":"2022","unstructured":"Pasca S, Zanon E, Milan M, et al. Telemedicine for the management of haemophilia: patient perspectives and future directions. Haemophilia. 2022;28(6):1034\u20131041.","journal-title":"Haemophilia"}],"container-title":["Expert Review of Hematology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.tandfonline.com\/doi\/pdf\/10.1080\/17474086.2026.2676241","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/www.tandfonline.com\/doi\/full-xml\/10.1080\/17474086.2026.2676241","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/www.tandfonline.com\/doi\/pdf\/10.1080\/17474086.2026.2676241","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,7,1]],"date-time":"2026-07-01T13:29:09Z","timestamp":1782912549000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/17474086.2026.2676241"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,5,21]]},"references-count":20,"journal-issue":{"issue":"7","published-print":{"date-parts":[[2026,7,3]]}},"alternative-id":["10.1080\/17474086.2026.2676241"],"URL":"https:\/\/doi.org\/10.1080\/17474086.2026.2676241","relation":{},"ISSN":["1747-4086","1747-4094"],"issn-type":[{"value":"1747-4086","type":"print"},{"value":"1747-4094","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,5,21]]},"assertion":[{"value":"The publishing and review policy for this title is described in its Aims & Scope.","order":1,"name":"peerreview_statement","label":"Peer Review Statement"},{"value":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=ierr20","URL":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=ierr20","order":2,"name":"aims_and_scope_url","label":"Aim & Scope"},{"value":"2025-12-05","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-04-27","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-05-21","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}