{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,7]],"date-time":"2026-08-07T16:51:36Z","timestamp":1786121496731,"version":"build-2736575974"},"reference-count":112,"publisher":"Informa UK Limited","issue":"sup1","license":[{"start":{"date-parts":[[2026,7,31]],"date-time":"2026-07-31T00:00:00Z","timestamp":1785456000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2026,7,31]],"date-time":"2026-07-31T00:00:00Z","timestamp":1785456000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/doi.org\/10.1080\/policies-text-data-mining"}],"funder":[{"name":"National Bleeding Disorders Foundation"}],"content-domain":{"domain":["www.tandfonline.com"],"crossmark-restriction":true},"short-container-title":["Expert Review of Hematology"],"published-print":{"date-parts":[[2026,7,31]]},"DOI":"10.1080\/17474086.2026.2688869","type":"journal-article","created":{"date-parts":[[2026,8,7]],"date-time":"2026-08-07T04:59:07Z","timestamp":1786078747000},"page":"43-62","update-policy":"https:\/\/doi.org\/10.1080\/tandf_crossmark_01","source":"Crossref","is-referenced-by-count":0,"title":["Infrastructure and workforce development processes inspired by Lived Experience Experts and grounded in health equity for the Bleeding Disorders Research Collaborative"],"prefix":"10.1080","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9173-7179","authenticated-orcid":false,"given":"Lynn","family":"Malec","sequence":"first","affiliation":[{"name":"Versiti Comprehensive Center for Bleeding Disorders","place":["Milwaukee, USA"]},{"name":"Versiti Blood Research Institute","place":["Milwaukee, USA"]},{"name":"Medical College of Wisconsin","place":["Milwaukee, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1567-5540","authenticated-orcid":false,"suffix":"III","given":"Moses E.","family":"Miles","sequence":"additional","affiliation":[{"name":"American Thrombosis and Hemostasis Network","place":["Cornwall, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3357-898X","authenticated-orcid":false,"given":"Lauren E.","family":"Amos","sequence":"additional","affiliation":[{"name":"Children\u2019s Mercy Hospital","place":["Kansas City, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0007-3148-7324","authenticated-orcid":false,"given":"Samantha A.","family":"Carlson","sequence":"additional","affiliation":[{"name":"National Bleeding Disorders Foundation","place":["New York, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6208-4682","authenticated-orcid":false,"given":"Donna","family":"DiMichele","sequence":"additional","affiliation":[{"name":"LLC","place":["Washington, USA"]},{"name":"Weill Cornell Medical College","place":["New York, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0113-4874","authenticated-orcid":false,"given":"Iftikhar","family":"Haider","sequence":"additional","affiliation":[{"name":"Illinois State University","place":["Normal, USA"]},{"name":"University of Illinois at Urbana-Champaign","place":["Champaign, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4570-6595","authenticated-orcid":false,"given":"Andra H.","family":"James","sequence":"additional","affiliation":[{"name":"Duke University","place":["Durham, USA"]},{"name":"Duke University","place":["Durhama, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4782-2779","authenticated-orcid":false,"given":"Keri L.","family":"Norris","sequence":"additional","affiliation":[{"name":"National Bleeding Disorders Foundation","place":["New York, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0006-6078-7839","authenticated-orcid":false,"given":"Kristin","family":"Paulyson-Nu\u00f1ez","sequence":"additional","affiliation":[{"name":"Duke University Health Systems","place":["Durham, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2805-1016","authenticated-orcid":false,"given":"Michael","family":"Recht","sequence":"additional","affiliation":[{"name":"National Bleeding Disorders Foundation","place":["New York, USA"]},{"name":"Yale School of Medicine","place":["New Haven, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4286-271X","authenticated-orcid":false,"given":"Fiona","family":"Robinson","sequence":"additional","affiliation":[{"name":"Communications Fiona Robinson, PhD","place":["Montr\u00e9al, Canada"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2029-677X","authenticated-orcid":false,"given":"Maria E.","family":"Santaella","sequence":"additional","affiliation":[{"name":"National Bleeding Disorders Foundation","place":["New York, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0005-9259-054X","authenticated-orcid":false,"given":"Raymond W.","family":"Stanhope","sequence":"additional","affiliation":[{"name":"Lone Star Bleeding Disorders Foundation","place":["Houston, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0002-3485-8470","authenticated-orcid":false,"given":"Sammie","family":"Valadez","sequence":"additional","affiliation":[{"name":"Bleeding Disorders Alliance of Illinois","place":["Peru"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0758-286X","authenticated-orcid":false,"given":"Michelle L.","family":"Witkop","sequence":"additional","affiliation":[{"name":"Consultant for Inherited Bleeding Disorders","place":["Traverse City, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8399-5431","authenticated-orcid":false,"given":"Ziva","family":"Mann","sequence":"additional","affiliation":[{"name":"National Bleeding Disorders Foundation","place":["New York, USA"]},{"name":"Lived Experience Expert","place":["Newton, USA"]},{"name":"Ascent Leadership Networks","place":["Newton, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2821-7159","authenticated-orcid":false,"given":"Amy D.","family":"Shapiro","sequence":"additional","affiliation":[{"name":"Versiti Blood Research Institute","place":["Milwaukee, USA"]},{"name":"Innovative Hematology Inc. and Indiana Hemophilia and Thrombosis Center","place":["Indianapolis, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7830-5379","authenticated-orcid":false,"given":"Margaret V.","family":"Ragni","sequence":"additional","affiliation":[{"name":"National Bleeding Disorders Foundation","place":["New York, USA"]},{"name":"University of Pittsburgh Medical Center","place":["Pittsburgh, USA"]}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"301","published-online":{"date-parts":[[2026,8,6]]},"reference":[{"key":"e_1_3_6_2_1","doi-asserted-by":"publisher","DOI":"10.1080\/17474086.2023.2175660"},{"key":"e_1_3_6_3_1","doi-asserted-by":"publisher","DOI":"10.1080\/17474086.2023.2175661"},{"key":"e_1_3_6_4_1","doi-asserted-by":"publisher","DOI":"10.1080\/17474086.2023.2171983"},{"key":"e_1_3_6_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/17474086.2023.2171981"},{"key":"e_1_3_6_6_1","doi-asserted-by":"publisher","DOI":"10.7326\/M19-1208"},{"key":"e_1_3_6_7_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41572-024-00536-8"},{"key":"e_1_3_6_8_1","doi-asserted-by":"publisher","DOI":"10.3390\/pathogens12020318"},{"key":"e_1_3_6_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.14970"},{"key":"e_1_3_6_10_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMoa067659"},{"key":"e_1_3_6_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2516.2008.01946.x"},{"key":"e_1_3_6_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.thromres.2019.07.014"},{"key":"e_1_3_6_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.13862"},{"key":"e_1_3_6_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.14046"},{"key":"e_1_3_6_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/jvh.13882"},{"key":"e_1_3_6_16_1","doi-asserted-by":"publisher","DOI":"10.2147\/JBM.S325031"},{"key":"e_1_3_6_17_1","doi-asserted-by":"publisher","DOI":"10.1182\/bloodadvances.2019001311"},{"key":"e_1_3_6_18_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.14956"},{"key":"e_1_3_6_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jtha.2023.12.027"},{"key":"e_1_3_6_20_1","doi-asserted-by":"publisher","DOI":"10.1002\/rth2.12468"},{"key":"e_1_3_6_21_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.bvth.2025.100099"},{"key":"e_1_3_6_22_1","doi-asserted-by":"publisher","DOI":"10.1080\/17474086.2023.2183836"},{"key":"e_1_3_6_23_1","unstructured":"World Health Organization. Health topics - health equity [cited 16 February 2024]. Available from: https:\/\/www.who.int\/health-topics\/health-equity#tab=tab_1"},{"key":"e_1_3_6_24_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.amepre.2011.09.003"},{"key":"e_1_3_6_25_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-018-0936-x"},{"key":"e_1_3_6_26_1","unstructured":"National Institute for Health and Care Research. Briefing notes for researchers - public involvement in NHS health and social care research. [cited 2024 Aug 7]. Available from: https:\/\/www.nihr.ac.uk\/documents\/briefing-notes-for-researchers-public-involvement-in-nhs-health-and-social-care-research\/27371"},{"key":"e_1_3_6_27_1","unstructured":"Patient-Centered Outcomes Research Institute. The patient-centered outcomes research Institute strategic plan: generating evidence to achieve more efficient effective and equitable health care and improve health for all. [cited 2024 Aug 7]. Available from: https:\/\/www.pcori.org\/about\/about-pcori\/pcori-strategic-plan"},{"key":"e_1_3_6_28_1","unstructured":"U.S. Food and Drug Administration Center for Drug Evaluation and Research. Advancing the development of Therapeutics through rare disease patient community engagement: virtual public meeting. 2023 Dec 14 [cited 2024 Aug 7]. Available from: https:\/\/www.fda.gov\/media\/179199\/download?attachment"},{"key":"e_1_3_6_29_1","doi-asserted-by":"publisher","DOI":"10.1057\/s41285-024-00208-3"},{"key":"e_1_3_6_30_1","doi-asserted-by":"publisher","DOI":"10.1080\/17474086.2023.2178410"},{"key":"e_1_3_6_31_1","doi-asserted-by":"publisher","DOI":"10.1377\/hlthaff.2018.05067"},{"key":"e_1_3_6_32_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2009.184036"},{"key":"e_1_3_6_33_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.k4738"},{"key":"e_1_3_6_34_1","doi-asserted-by":"publisher","DOI":"10.1111\/cts.13547"},{"key":"e_1_3_6_35_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.amepre.2010.11.011"},{"key":"e_1_3_6_36_1","doi-asserted-by":"publisher","DOI":"10.1089\/heq.2024.0146"},{"key":"e_1_3_6_37_1","doi-asserted-by":"publisher","DOI":"10.1182\/bloodadvances.2024012862"},{"key":"e_1_3_6_38_1","volume-title":"Improving representation in clinical trials and research: building research Equity for women and underrepresented groups","author":"National Academies of Sciences, Engineering, and Medicine","year":"2022","unstructured":"National Academies of Sciences, Engineering, and Medicine. Improving representation in clinical trials and research: building research Equity for women and underrepresented groups. Washington (DC): The National Academies Press; 2022. Available from: https:\/\/www.ncbi.nlm.nih.gov\/pubmed\/36137057"},{"key":"e_1_3_6_39_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMp2112233"},{"key":"e_1_3_6_40_1","unstructured":"Association of American Medical Colleges. Underrepresented in Medicine Definition. [cited 2024 Oct 28]. Available from: https:\/\/www.aamc.org\/what-we-do\/equity-diversity-inclusion\/underrepresented-in-medicine"},{"key":"e_1_3_6_41_1","unstructured":"Association of American Medical Colleges. Table 16: U.S. Medical School faculty by gender race\/ethnicity and department. 2020 [cited 2024 Oct 28]. Available from: https:\/\/www.aamc.org\/media\/8881\/download"},{"key":"e_1_3_6_42_1","doi-asserted-by":"publisher","DOI":"10.1080\/17474086.2026.2688867"},{"key":"e_1_3_6_43_1","unstructured":"National Hemophilia Program Coordinating Center. Regional Hemophilia Networks. [cited 2024 Oct 2]. Available from: https:\/\/nhpcc.org\/regional-hemophilia-networks\/"},{"key":"e_1_3_6_44_1","unstructured":"Racism: science and tools for the public health professional. Washinton (DC): APHA Press; 2019. Available from: https:\/\/ajph.aphapublications.org\/doi\/book\/10.2105\/9780875533049"},{"key":"e_1_3_6_45_1","doi-asserted-by":"publisher","DOI":"10.1097\/ANS.0000000000000435"},{"key":"e_1_3_6_46_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11266-023-00627-2"},{"key":"e_1_3_6_47_1","unstructured":"Rau T. Sociocracy - a brief introduction 2021. [cited 2024 Oct 24]. Available from: https:\/\/www.sociocracyforall.org\/wp-content\/uploads\/2022\/06\/Sociocracy-summary-booklet1.pdf"},{"key":"e_1_3_6_48_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.14588"},{"key":"e_1_3_6_49_1","doi-asserted-by":"publisher","DOI":"10.1080\/17474086.2023.2181782"},{"key":"e_1_3_6_50_1","doi-asserted-by":"publisher","DOI":"10.1080\/17474086.2023.2181781"},{"key":"e_1_3_6_51_1","doi-asserted-by":"publisher","DOI":"10.1080\/17474086.2026.2688871"},{"key":"e_1_3_6_52_1","doi-asserted-by":"publisher","DOI":"10.1080\/17474086.2026.2688873"},{"key":"e_1_3_6_53_1","unstructured":"Coutu D. Why teams Don\u2019t work: Harvard business review. 2009 [cited 2024 Oct 15]. Available from: https:\/\/hbr.org\/2009\/05\/why-teams-dont-work"},{"key":"e_1_3_6_54_1","unstructured":"Hackman JR. Leading teams: setting the stage for great performances. Boston (MA): Harvard Business School Press; 2002. p. xiii 312. Available from: http:\/\/www.loc.gov\/catdir\/enhancements\/fy1311\/2002000757-d.html"},{"key":"e_1_3_6_55_1","unstructured":"Team CHACT-BCL. Cambridge health Alliance model of team-based care implementation guide and Toolkit. [cited 2024 Oct 16]. Available from: https:\/\/www.safetynetmedicalhome.org\/sites\/default\/files\/CHA-Teams-Guide.pdf"},{"key":"e_1_3_6_56_1","doi-asserted-by":"publisher","DOI":"10.1080\/17474086.2026.2688870"},{"key":"e_1_3_6_57_1","unstructured":"Ries E. The minimum viable product: a primer 2015. [cited 2024 Oct 25]. Available from: https:\/\/medium.com\/galleys\/the-minimum-viable-product-a-primer-3d9a76dd5213"},{"key":"e_1_3_6_58_1","unstructured":"Ries E. Minimum viable product: a guide 2009. [cited 2024 Oct 25]. Available from: https:\/\/www.startuplessonslearned.com\/2009\/08\/minimum-viable-product-guide.html"},{"key":"e_1_3_6_59_1","doi-asserted-by":"publisher","DOI":"10.1080\/0142159X.2022.2118038"},{"key":"e_1_3_6_60_1","unstructured":"Ries E. Methodology. [cited 2024 Oct 25]. Available from: https:\/\/theleanstartup.com\/principles"},{"key":"e_1_3_6_61_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2020.569198"},{"key":"e_1_3_6_62_1","doi-asserted-by":"publisher","DOI":"10.1177\/1523422316645885"},{"key":"e_1_3_6_63_1","unstructured":"National Health Council. Patient Compensation Tools. Available from: https:\/\/nationalhealthcouncil.org\/additional-resources\/patient-compensation-tools\/"},{"key":"e_1_3_6_64_1","unstructured":"Patient-centered outcomes research Institute. Financial compensation of patients caregivers and patient\/Caregiver organizations engaged in PCORI-Funded research as engaged research partners Available from: http:\/\/nationalhealthcouncil.org\/additional-resources\/patient-compensation-tools\/"},{"key":"e_1_3_6_65_1","unstructured":"Patient-centered outcomes research Institute. Engagement resources. [cited 2024 Oct 26]. Available from: https:\/\/www.pcori.org\/engagement-research\/engagement-resources"},{"key":"e_1_3_6_66_1","unstructured":"National Bleeding Disorders Foundation. Clinical Trials Essentials. [cited 2024 Oct 26]. Available from: https:\/\/www.bleeding.org\/research\/research-projects\/clinical-trials-essentials"},{"key":"e_1_3_6_67_1","doi-asserted-by":"publisher","DOI":"10.2478\/jhp-2024-0020"},{"key":"e_1_3_6_68_1","doi-asserted-by":"publisher","DOI":"10.6069\/Y2BV-YW94"},{"key":"e_1_3_6_69_1","unstructured":"CJE SeniorLife Leonard Schanfield Research Institute. How to talk about research: a training Toolkit for nursing home residents and stay-at-home elders. 2017. [cited 2024 Oct 26]. Available from Oct. Available from: https:\/\/www.pcori.org\/sites\/default\/files\/Bureau-of-Sages-Training-Toolkit.pdf"},{"key":"e_1_3_6_70_1","unstructured":"American Society of Hematology. ASH Hematology-focused fellowship training Program (HFFTP). [cited 2024 Oct 6]. Available from: http:\/\/www.htrs.org\/meetings-events"},{"key":"e_1_3_6_71_1","unstructured":"American Thrombosis and Hemostasis Network. ATHN projects and research studies. [cited 2024 Oct 6]. Available from: https:\/\/athn.org\/what-we-do\/national-projects\/athn-projects-and-research-studies.html"},{"key":"e_1_3_6_72_1","unstructured":"Foundation for Women and Girls with Blood Disorders. Resources. [cited 2024 Oct 6]. Available from: https:\/\/www.fwgbd.org\/resources"},{"key":"e_1_3_6_73_1","unstructured":"Hemostasis and Thrombosis Research Society. Meetings and events. [cited 2024 Oct 6]. Available from: https:\/\/www.htrs.org\/meetings-events"},{"key":"e_1_3_6_74_1","unstructured":"International Society on Thrombosis and Haemostasis. Education and outreach. [cited 2024 Oct 6]. Available from: https:\/\/www.isth.org\/page\/Education"},{"key":"e_1_3_6_75_1","unstructured":"World Federation of Hemophilia. Training for HCPs. [cited 2025 Mar 25]. Available from: https:\/\/wfh.org\/training\/#training-for-HCPs"},{"key":"e_1_3_6_76_1","unstructured":"Cure HHT. HHT treatment centers. [cited 2026 Apr 28]. Available from: https:\/\/curehht.org\/understanding-hht\/get-support\/hht-treatment-centers\/"},{"key":"e_1_3_6_77_1","unstructured":"Cure HHT. Cure HHT research. [cited 2026 Apr 28]. Available from: https:\/\/curehht.org\/research-overview\/"},{"key":"e_1_3_6_78_1","doi-asserted-by":"publisher","DOI":"10.1177\/1524839918818830"},{"key":"e_1_3_6_79_1","unstructured":"National Bleeding Disorders Foundation. Community voices in research. [cited 2024 Oct 26: bleeding.org\/cvr."},{"key":"e_1_3_6_80_1","unstructured":"Partners in Bleeding Disorders Education. Live events and online learning. [cited 2024 Oct 6]. Available from: https:\/\/partnersprn.org\/"},{"key":"e_1_3_6_81_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.12810"},{"key":"e_1_3_6_82_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.14983"},{"key":"e_1_3_6_83_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.14403"},{"key":"e_1_3_6_84_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.14176"},{"key":"e_1_3_6_85_1","doi-asserted-by":"publisher","DOI":"10.1017\/cts.2025.10178"},{"issue":"4","key":"e_1_3_6_86_1","doi-asserted-by":"crossref","first-page":"361","DOI":"10.1182\/bloodadvances.2017013722","article-title":"Determinants of hematology-oncology trainees\u2019 postfellowship career pathways with a focus on nonmalignant hematology","volume":"2","author":"Marshall AL","year":"2018","unstructured":"Marshall AL, Jenkins S, Mikhael J, et al. Determinants of hematology-oncology trainees\u2019 postfellowship career pathways with a focus on nonmalignant hematology. Blood Adv. 2018;2(4):361\u2013369.","journal-title":"Blood Adv"},{"key":"e_1_3_6_87_1","unstructured":"U.S. Centers for Disease Control and Prevention. About community counts. [cited 2024 Oct 27]. Available from: https:\/\/www.cdc.gov\/hemophilia-community-counts\/php\/about\/index.html"},{"key":"e_1_3_6_88_1","unstructured":"U.S. Centers for Disease Control and Prevention. HTC population profile \u2014 March 2024. [cited 2025 Apr 4]. Available from: https:\/\/www.cdc.gov\/hemophilia-community-counts\/php\/data-research\/2024-march-htc-population-profile-patient-characteristics.html"},{"key":"e_1_3_6_89_1","unstructured":"National Bleeding Disorders Foundation. Chapters of the National bleeding disorders Foundation. [cited 2024 Mar 8]. Available from: https:\/\/www.hemophilia.org\/community-resources\/resources-near-you\/chapter-network"},{"key":"e_1_3_6_90_1","doi-asserted-by":"publisher","DOI":"10.1146\/annurev-publhealth-052620-103528"},{"key":"e_1_3_6_91_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12910-017-0179-8"},{"key":"e_1_3_6_92_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11606-016-3616-3"},{"key":"e_1_3_6_93_1","unstructured":"National Institutes of Health Community Engagement Alliance. Who we are. Available from: https:\/\/ceal.nih.gov\/who-we-are"},{"key":"e_1_3_6_94_1","unstructured":"Children\u2019s Oncology Group. Children\u2019s Oncology group research. [cited 2024 Aug 6]. Available from: https:\/\/childrensoncologygroup.org\/childrens-oncology-group"},{"key":"e_1_3_6_95_1","doi-asserted-by":"publisher","DOI":"10.1097\/COH.0000000000000605"},{"key":"e_1_3_6_96_1","unstructured":"American thrombosis and Hemostasis Network. Welcome to ATHN transcends. [cited 2024 Oct 27]. Available from: https:\/\/m.athn.org\/what-we-do\/national-projects\/athn-transcends.html"},{"key":"e_1_3_6_97_1","doi-asserted-by":"publisher","DOI":"10.1182\/bloodadvances.2020002789"},{"key":"e_1_3_6_98_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.13717"},{"issue":"1","key":"e_1_3_6_99_1","doi-asserted-by":"crossref","first-page":"39","DOI":"10.1001\/jama.2022.23257","article-title":"Long-term (180-day) outcomes in critically Ill patients with COVID-19 in the REMAP-CAP randomized clinical trial","volume":"329","author":"Writing Committee for the REMAP-CAP Investigators","year":"2023","unstructured":"Writing Committee for the REMAP-CAP Investigators; Higgins AM, Berry LR, et al. Long-term (180-day) outcomes in critically Ill patients with COVID-19 in the REMAP-CAP randomized clinical trial. JAMA. 2023;329(1):39\u201351.","journal-title":"JAMA"},{"key":"e_1_3_6_100_1","doi-asserted-by":"publisher","DOI":"10.2196\/38579"},{"key":"e_1_3_6_101_1","doi-asserted-by":"publisher","DOI":"10.3389\/fmmed.2022.827340"},{"key":"e_1_3_6_102_1","unstructured":"U.S. Food and Drug Administration. Master protocols: efficient clinical trial design strategies to expedite development of Oncology drugs and Biologics guidance for industry 2022. [cited 2024 Oct 27]. Available from: https:\/\/www.fda.gov\/media\/120721\/download"},{"key":"e_1_3_6_103_1","unstructured":"U.S. Food and Drug Administration. Decentralized clinical trials for drugs biological products and devices guidance for industry investigators and other stakeholders. [cited 2024 Sept 12]. Available from: https:\/\/www.fda.gov\/media\/167696\/download"},{"key":"e_1_3_6_104_1","unstructured":"Institute for Stem Cell & Regenerative Medicine. NIH grant will support collaborative hemophilia study. [cited 2025 Mar 27]. Available from: https:\/\/iscrm.uw.edu\/nih-grant-will-support-collaborative-hemophilia-study\/"},{"key":"e_1_3_6_105_1","doi-asserted-by":"publisher","DOI":"10.3233\/shti200020"},{"key":"e_1_3_6_106_1","unstructured":"U.S. Department of Education. The health literacy of America\u2019s adults results from the 2003 National assessment of adult literacy 2006. [cited 2024 Oct 27]. Available from: https:\/\/files.eric.ed.gov\/fulltext\/ED493284.pdf"},{"key":"e_1_3_6_107_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0229099"},{"key":"e_1_3_6_108_1","doi-asserted-by":"publisher","DOI":"10.3390\/jcm11154443"},{"key":"e_1_3_6_109_1","doi-asserted-by":"publisher","DOI":"10.1111\/ans.17559"},{"key":"e_1_3_6_110_1","doi-asserted-by":"publisher","DOI":"10.1057\/hep.2012.11"},{"key":"e_1_3_6_111_1","doi-asserted-by":"publisher","DOI":"10.1057\/hep.2012.16"},{"key":"e_1_3_6_112_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2025.6643"},{"key":"e_1_3_6_113_1","unstructured":"U.S. Department of Health and Human Services. Celebrating 100 days of the trump Administration. [cited 2025 May 5]. Available from: https:\/\/www.hhs.gov\/hhs-100-days-big-wins-maha\/index.html"}],"container-title":["Expert Review of Hematology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/www.tandfonline.com\/doi\/pdf\/10.1080\/17474086.2026.2688869","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/www.tandfonline.com\/doi\/full-xml\/10.1080\/17474086.2026.2688869","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/www.tandfonline.com\/doi\/pdf\/10.1080\/17474086.2026.2688869","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,8,7]],"date-time":"2026-08-07T04:59:30Z","timestamp":1786078770000},"score":1,"resource":{"primary":{"URL":"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/17474086.2026.2688869"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,7,31]]},"references-count":112,"journal-issue":{"issue":"sup1","published-print":{"date-parts":[[2026,7,31]]}},"alternative-id":["10.1080\/17474086.2026.2688869"],"URL":"https:\/\/doi.org\/10.1080\/17474086.2026.2688869","relation":{},"ISSN":["1747-4086","1747-4094"],"issn-type":[{"value":"1747-4086","type":"print"},{"value":"1747-4094","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,7,31]]},"assertion":[{"value":"The publishing and review policy for this title is described in its Aims & Scope.","order":1,"name":"peerreview_statement","label":"Peer Review Statement"},{"value":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=ierr20","URL":"http:\/\/www.tandfonline.com\/action\/journalInformation?show=aimsScope&journalCode=ierr20","order":2,"name":"aims_and_scope_url","label":"Aim & Scope"},{"value":"2025-09-09","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-06-10","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-08-06","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}