{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,3]],"date-time":"2026-05-03T05:32:39Z","timestamp":1777786359625,"version":"3.51.4"},"reference-count":23,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2024,8,1]],"date-time":"2024-08-01T00:00:00Z","timestamp":1722470400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Adolescent and Young Adult Oncology"],"published-print":{"date-parts":[[2024,8,1]]},"abstract":"<jats:sec>\n                    <jats:title>Purpose:<\/jats:title>\n                    <jats:p>Assessing patient and guardian experiences regarding their history of ovarian tissue cryopreservation (OTC) years after initial procedure.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>Cross-sectional follow-up telephone survey. A questionnaire developed by The Pediatric Initiative Network of the Oncofertility Consortium, modified to assess intent and attitudes regarding OTC, tissue access knowledge, financial burden of tissue storage, and intent to use tissue, was utilized. Interviews were conducted for those who underwent OTC at a metropolitan children's hospital between 2013 and 2022.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Of 60 eligible patients, 39 interviews were completed. Contacted patients were 3\u201328 years old, with minors accompanied by guardians. Average age at OTC was 8.5 years old, and 5.1% (2\/39) were deceased at the time of contact. All interviewees underwent OTC for fertility preservation before gonadotoxic treatment. Seventy percent of patients (7\/10) and 48.1% (13\/27) of guardians stated they would use frozen tissue for pregnancy, with 50% (5\/10) of patients and 59.3% (16\/27) of guardians not understanding tissue access. Regret occurred in 10% (1\/10) of patients and 3.4% (1\/29) of guardians. It was associated with 10.8% (4\/37) of tissue discard due to failed storage payments. Financial concerns occurred in 29.7% (11\/37) of interviewees. Overall, 92.3% (36\/39) would recommend OTC, and 94.9% (37\/39) would repeat their choice to undergo OTC.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Follow-up after OTC is essential to patient understanding of tissue status, access, and payments. Most do not regret OTC, except in cases of financial burden leading to tissue discard. Follow-up should be sequentially scheduled and include counseling on financial assistance programs.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1089\/jayao.2023.0148","type":"journal-article","created":{"date-parts":[[2024,4,10]],"date-time":"2024-04-10T10:33:55Z","timestamp":1712745235000},"page":"622-628","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Assessing Attitudes and Understanding After Ovarian Tissue Cryopreservation: A Follow-Up Telephone Interview Survey"],"prefix":"10.1177","volume":"13","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8370-530X","authenticated-orcid":false,"given":"Alexandra","family":"Piselli","sequence":"first","affiliation":[{"name":"Department of Obstetrics and Gynecology, Georgetown University School of Medicine, Washington, District of Columbia, USA."},{"name":"Children's National Hospital, Washington, District of Columbia, USA."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jacqueline C.","family":"Yano","sequence":"additional","affiliation":[{"name":"Children's National Hospital, Washington, District of Columbia, USA."},{"name":"National Institutes of Health, Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), Bethesda, Maryland, USA."}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Veronica","family":"Gomez-Lobo","sequence":"additional","affiliation":[{"name":"Children's National Hospital, Washington, District of Columbia, USA."},{"name":"National Institutes of Health, Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), Bethesda, Maryland, USA."}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2024,8,2]]},"reference":[{"key":"e_1_3_6_2_2","doi-asserted-by":"publisher","DOI":"10.1002\/1097-0142(19930515)71:10 <3463::AID-CNCR2820711753>3.0.CO;2-B"},{"key":"e_1_3_6_3_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2016.04.031"},{"key":"e_1_3_6_4_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2021.03.008"},{"key":"e_1_3_6_5_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2019.09.013"},{"key":"e_1_3_6_6_2","doi-asserted-by":"publisher","DOI":"10.1007\/s10815-016-0843-9"},{"key":"e_1_3_6_7_2","doi-asserted-by":"publisher","DOI":"10.1111\/aogs.12934"},{"key":"e_1_3_6_8_2","author":"Livebirth after orthotopic transplantation of cryopreserved ovarian tissue","unstructured":"Livebirth after orthotopic transplantation of cryopreserved ovarian tissue. Obstet Gynecol 2005;105(1):214; doi: 10.1097\/01.AOG.0000150288.43243.34","journal-title":"Obstet Gynecol"},{"key":"e_1_3_6_9_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.rbmo.2022.06.016"},{"key":"e_1_3_6_10_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.rbmo.2020.06.009"},{"key":"e_1_3_6_11_2","doi-asserted-by":"publisher","DOI":"10.1089\/jayao.2020.0014"},{"issue":"10","key":"e_1_3_6_12_2","first-page":"e30320","article-title":"Psychological problems related to infertility","volume":"14","author":"Sharma A","year":"2022","unstructured":"Sharma A, , Shrivastava D. Psychological problems related to infertility. Cureus, 2022; 14(10):e30320; doi: 10.7759\/cureus.30320","journal-title":"Cureus"},{"key":"e_1_3_6_13_2","doi-asserted-by":"publisher","DOI":"10.1111\/aogs.13735"},{"key":"e_1_3_6_14_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2020.03.037"},{"key":"e_1_3_6_15_2","doi-asserted-by":"publisher","DOI":"10.1111\/aogs.13616"},{"key":"e_1_3_6_16_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.rbmo.2023.05.011"},{"key":"e_1_3_6_17_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.rbms.2017.12.001"},{"key":"e_1_3_6_18_2","doi-asserted-by":"publisher","DOI":"10.1200\/OP.21.00275"},{"key":"e_1_3_6_19_2","doi-asserted-by":"publisher","DOI":"10.1158\/1055-9965.EPI-21-1305"},{"key":"e_1_3_6_20_2","unstructured":"Alliance for Fertility Preservation. State Laws and Legislation. Holyoke MA; Available from: https:\/\/www.allianceforfertilitypreservation.org\/state-legislation\/ [Last accessed: February 21 2024]."},{"key":"e_1_3_6_21_2","doi-asserted-by":"publisher","DOI":"10.1200\/JGO.2016.008144"},{"key":"e_1_3_6_22_2","article-title":"Anticipating Ovarian Tissue Cryopreservation in the Health-Care Marketplace: A Willingness to Pay Assessment","author":"Gardino SL","year":"2010","unstructured":"Gardino SL, , Sfekas A, , Dranove D. Anticipating Ovarian Tissue Cryopreservation in the Health-Care Marketplace: A Willingness to Pay Assessment. In: Oncofertility: Cancer Treatment and Research, vol. 156 (Woodruff T, Zoloth L, Campo-Engelstein L, et al. eds.) Springer: Boston, MA;, 2010; pp. 363\u2013370; doi: 10.1007\/978-1-4419-6518-9_27","journal-title":"In: Oncofertility: Cancer Treatment and Research, vol. 156 (Woodruff T, Zoloth L, Campo-Engelstein L, et al. eds.) Springer: Boston, MA;"},{"key":"e_1_3_6_23_2","unstructured":"National Marrow Donor Program. 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Available from: https:\/\/reprotech.com\/financial-assistance\/#:~:text=ReproTech%20offers%20discounted%20fees%20for%20clients%20facing%20financial%20hardship%20through catastrophic%2C%20or%20other%20unexpected%20situations [Last accessed: February21 2024]."}],"container-title":["Journal of Adolescent and Young Adult Oncology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1089\/jayao.2023.0148","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1089\/jayao.2023.0148","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1089\/jayao.2023.0148","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T19:46:51Z","timestamp":1777492011000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1089\/jayao.2023.0148"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,8,1]]},"references-count":23,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2024,8,1]]}},"alternative-id":["10.1089\/jayao.2023.0148"],"URL":"https:\/\/doi.org\/10.1089\/jayao.2023.0148","relation":{},"ISSN":["2156-5333","2156-535X"],"issn-type":[{"value":"2156-5333","type":"print"},{"value":"2156-535X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,8,1]]}}}