{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T17:09:05Z","timestamp":1777914545138,"version":"3.51.4"},"reference-count":23,"publisher":"SAGE Publications","issue":"10","license":[{"start":{"date-parts":[[2015,10,1]],"date-time":"2015-10-01T00:00:00Z","timestamp":1443657600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Palliative Medicine"],"published-print":{"date-parts":[[2015,10,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Despite a life-limiting fetal diagnosis, prenatal attachment often occurs in varying degrees resulting in role identification by an individual as a parent. Parents recognize quality care and report their satisfaction when interfacing with health care providers.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>The aim was to test an instrument measuring parental satisfaction and quality indicators with parents electing to continue a pregnancy after learning of a life-limiting fetal diagnosis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>\n                      A cross sectional survey design gathered data using a computer-mediated platform. Subjects were parents (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      =405) who opted to continue a pregnancy affected by a life-limiting diagnosis. Factor analysis using principal component analysis with Varimax rotation was used to validate the instrument, evaluate components, and summarize the explained variance achieved among quality indicator items. The Prenatal Scale was reduced to 37 items with a three-component solution explaining 66.19% of the variance and internal consistency reliability of 0.98. The Intrapartum Scale included 37 items with a four-component solution explaining 66.93% of the variance and a Cronbach \u03b1 of 0.977. The Postnatal Scale was reduced to 44 items with a six-component solution explaining 67.48% of the variance. Internal consistency reliability was 0.975.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>The Parental Satisfaction and Quality Indicators of Perinatal Palliative Care Instrument is a valid and reliable measure for parent-reported quality care and satisfaction.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Use of this instrument will enable clinicians and researchers to measure quality indicators and parental satisfaction. The instrument is useful for assessing, analyzing, and reporting data on quality for care delivered during the prenatal, intrapartum, and postnatal periods.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1089\/jpm.2015.0135","type":"journal-article","created":{"date-parts":[[2015,6,25]],"date-time":"2015-06-25T14:16:20Z","timestamp":1435241780000},"page":"872-877","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":18,"title":["Instrument Psychometrics: Parental Satisfaction and Quality Indicators of Perinatal Palliative Care"],"prefix":"10.1177","volume":"18","author":[{"given":"Charlotte","family":"Wool","sequence":"first","affiliation":[{"name":"York College of Pennsylvania"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2015,10,1]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1111\/1552-6909.12034"},{"key":"e_1_3_3_3_2","unstructured":"Center for Advanced Palliative Care: Measuring Quality & Impact of Palliative Care Programs. 2014. www.capc.org\/buildinga-hospital-based-palliative-care-program\/measuring- qualityand-impact (Last accessed April 16 2015)."},{"key":"e_1_3_3_4_2","unstructured":"The Joint Commission: Performance Measurement Requirements for Palliative Care. 2014. www.jointcommissionorg\/ certification\/performance_measurement_requireme nts_palliative_care.aspx (Last accessed April 16 2015)."},{"key":"e_1_3_3_5_2","volume-title":"Describing Death in America: What We Need to Know","author":"Lunney JR","year":"2003","unstructured":"Lunney JR, , Foley KM, , Smith TJ, , Gelband H: Describing Death in America: What We Need to Know. Washington, DC: National Academies Press, 2003."},{"key":"e_1_3_3_6_2","doi-asserted-by":"crossref","unstructured":"Dahlin C: National Consensus Project for Quality Palliative Care. Clinical Practice Guidelines for Quality Palliative Care 3 e. Pittsburgh: National Consensus Project for Quality Palliative Care 2013. http:\/\/www.nationalconsensusproject.org\/ Accessed April 16 2015.","DOI":"10.1093\/med\/9780199332342.003.0002"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.1097\/NJH.0000000000000163"},{"key":"e_1_3_3_8_2","first-page":"59","article-title":"Roots of attachment: The relationship of parents with their unborn","volume":"17","author":"Cranley MS","year":"1981","unstructured":"Cranley MS: Roots of attachment: The relationship of parents with their unborn. Birth Defects Orig Artic Ser, 1981b;17:59\u201383.","journal-title":"Birth Defects Orig Artic Ser"},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.3109\/01674828509016729"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.1976.tb00921.x"},{"key":"e_1_3_3_11_2","first-page":"201","article-title":"A history of the theory of prenatal attachment","volume":"23","author":"Brandon AR","year":"2009","unstructured":"Brandon AR, , Pitts S, , Denton WH, et al.: A history of the theory of prenatal attachment. J Prenatal Perinat Psych Health, 2009:23:201\u2013222.","journal-title":"J Prenatal Perinat Psych Health"},{"key":"e_1_3_3_12_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.2044-8341.1997.tb01912.x"},{"key":"e_1_3_3_13_2","unstructured":"Kuebelbeck A Davis DL: A Gift of Time: Continuing Your Pregnancy When Your Baby's Life Is Expected to Be Brief. Baltimore: Johns Hopkins University Press 2011."},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1523-536X.2011.00478.x"},{"key":"e_1_3_3_15_2","unstructured":"Field A: Understanding Statistics Using SPSS 3 e. Los Angeles CA: Sage 2009."},{"key":"e_1_3_3_16_2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2011.0165"},{"key":"e_1_3_3_17_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2008.09.069"},{"key":"e_1_3_3_18_2","doi-asserted-by":"publisher","DOI":"10.1097\/JPN.0b013e318201edff"},{"key":"e_1_3_3_19_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejogrb.2010.04.003"},{"key":"e_1_3_3_20_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2015.01.012"},{"key":"e_1_3_3_21_2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2010.0194"},{"key":"e_1_3_3_22_2","unstructured":"Center for Advanced Palliative Care: Measuring Quality & Impact of Palliative Care Programs. 2014. wwwcapcorg\/building-a-hospital-based-palliative-care-program\/measuring-quality-and-impact (Last accessed April 16 2015)."},{"key":"e_1_3_3_23_2","unstructured":"The Joint Commission: Performance Measurement Requirements for Palliative Care 2014. wwwjointcommiss ionorg\/certification\/performance_measurement_requireme nts_palliative_careaspx (Last accessed April 16 2015)."},{"key":"e_1_3_3_24_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2014.06.008"}],"container-title":["Journal of Palliative Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1089\/jpm.2015.0135","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1089\/jpm.2015.0135","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1089\/jpm.2015.0135","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T16:55:04Z","timestamp":1777654504000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1089\/jpm.2015.0135"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2015,10,1]]},"references-count":23,"journal-issue":{"issue":"10","published-print":{"date-parts":[[2015,10,1]]}},"alternative-id":["10.1089\/jpm.2015.0135"],"URL":"https:\/\/doi.org\/10.1089\/jpm.2015.0135","relation":{},"ISSN":["1096-6218","1557-7740"],"issn-type":[{"value":"1096-6218","type":"print"},{"value":"1557-7740","type":"electronic"}],"subject":[],"published":{"date-parts":[[2015,10,1]]}}}